Girlie said...
Aerose91 said...
Ive tested positive for bartonella, mycoplasma pneumonia & chlamydia pneumonia. Doctors have only gone after the bart as a primary problem but i addressed mycoplsma and bart on my own with Buhner herbs.
I'm just trying to think (hope) that there's something else missing. I'm overly frustrated with zero progress in 7 years. It took me all that time to get to an endpoint now where i can't think of something else to try so im just bumbling around waiting for my next doctor visit. None of which have ever benefited me. I just feel like i can't take a single more day of this insidious disease
So, no symptoms have improved...have you stayed the same...or gotten worse in the 7 years?
i hear ya! I get really upset when I look back at the years lost......I keep thinking how great it will be to be well ....but I'm so darned upset and angry about
it all...the hoops I've had to jump through...etc. will I be able to put it behind me?
And (except for my husband) no one really knows the suffering we've endured. And the financial loss....it's devastating...I think of it every day...how much my loss of income has affected us. Even though it's not my fault....I do sometimes feel guilty...I had 3 major downturns since falling ill. At 6 months, 1 year and 2 years. After 6 months and 1 year i got much worse but things were slowly improvimg over time. Then, at the 2 year mark i got encephalitis and all this horrific crap in my brain started. It was like a switch flipped then, and things stopped improving over time. In fact for the first year or so after the encephalitis i was having some big disease progression episodes, mostly from overexertion. That's where I've stayed ever since. Nothing has budged