What does "getting better" feel like over time??

cppoly - it wasn't like a light switch for me. My symptoms ever-so-slowly reduced until they were gone.

I had so many that it would take me looking at my long list of symptoms to realize that some had left.
I have/had a few really bad ones so often I wouldn't notice one of the others had left.

Two months is relatively early...have you herxed much in this time?
Are any symptoms improved yet?

Thanks, I had a feeling it takes time. Unfortunately, for so many of us we just don't have the time to wait but I know I have to. Because looking at the global picture, how do we know something is working or not by waiting 4 to 6 months on being a protocol? Then what if no improvement, try something else and repeat and other 4 to 6 months, and repeat again, etc. Yea I'm getting impatient but the whole process is so crappy that the only way of knowing is by waiting.

I'm seeing an herbalist and she is very good. Was just thinking about this situation and what to expect when I see her in a month from now and tell no improvement. Not sure if I've herxed or not but my only symptom insomnia has gotten worse by being on the protocol maybe slightly.

Just wish there was a better way.

I know what you mean. I've been on treatment now for almost 6 months and at times I feel like I'm back at square one. You really need to keep close track of your symptoms. I keep a log on a spreadsheet of what my symptoms are like, the severity (scale of 1-10), and duration for each day. Then I trend the severity data on a weekly basis for each one of my major symptoms. This way, I have a visual way of boosting my morale on the hard days. Although it may seem like you aren't making any progress in the midst of your herxing or flares, you actually may be gradually improving. This is usually a long disease for many of us and 2 months is definitely not much time at all. For me personally 2 months in, I wasn't feeling any better..in fact I was feeling worse than when I initially started my treatment protocol...but then I noticed it was part of the process of herxing. From my records, about 2.5 months in I started making small improvements though (slightly less fatigue, slightly less duration symptomatic during day). Gotta celebrate the small victories. Feel free to PM me if you want to see my sheets.

Hang in there!

Oh yes, detoxing can really help a lot of patients with herxes and managing symptoms. I'd try to implement a variety: binders like activated charcoal, lemon water (can add alka seltzer gold), burbur, pinella, etc etc. Try different things and see if any give you relief.

It took me a long time for symptoms to gradually improve. It's always been the meds that make me flare (herx) where I end up seeing improvement. Some people don't flare though... but for me herxing has always been a big issue which can also make it hard to gauge improvement. Usually after I've been on a med for a while that has been making me herx, well it's after I stop that therapy that I notice that my baseline gets bumped up. if you are not seeing improvement or herxing after 3 months on a protocol I think it is a good idea to rotate therapeutics. Also a good idea to look at other potential issues like mold, heavy metals, parasites, viruses, thyroid, etc.

It also took me a while to figure out what my herxing patterns were. In the beginning I was so overwhelmed with symptoms I couldn't tell if I was herxing or not. Then as I tried different therapies and saw consistent flares I got a feel for how treatment affected me and what was effective in my situation.

Revisiting this.

Sebreg you mentioned viruses. Looking through recent bloodwork, epstein-barr was flagged 40 times the outer limit on of my tests (IGG was >750 and outer limit was <18) and HHV-6 was eight times outer limit (AB IGG, IFA was 1:160 and outer limit was <1:20), is there any significance to these?

Girlie I will ask my LLMD about introducing pinella and/or CNS/PNS thanks - but I'm thinking these shouldn't interfere with any treatment plan anyway so it "can't hurt" to just throw these in right without asking right?

Well, I'm not 100% on interpreting those antibody tests, higher numbers might just mean your immune system is more highly responsive, has circulating antibodies controlling the infection. So higher numbers may not mean viral load is high, there may be pcr tests that can measure load? I'll try and look it up a bit and see if I can get more clarity on it.

That said, it might not hurt to add something like monolaurin (lauricidin). My doc had me on that for a while, it is good for herpes' viruses, including epstein barr. I think I've read it also has biofilm busting potential.

I just came across this a minute ago in regards to epstein-barr:

"EPSTEINE BARR VIRUS [EBV]…PCR

EPSTEIN BARR VIRUS [Mononucleosis]
If you test significantly positive for Epstein Barr Virus [EBV] with high positive IgG titer and your doctor says its "just and old infection"...Request that your doctor order an EVB PCR test Polymerase Chain Reaction.

POLYMERASE CHAIN REACTION….TEST
The Polymerase Chain Reaction (PCR) is a test used to amplify a single copy or a few copies of a piece of DNA across several orders of magnitude, generating thousands to millions of copies of a particular DNA sequence making it easier to detect.

If the EBV PCR is positive then the virus is very likely ACTIVE."