Posted 3/4/2019 5:49 PM (GMT -5)
I’m not sure what has caused my weight gain... I guess it could be antibiotics but I’ve never been so stationary in my life so it’s probably a little bit of everything.... I’d love to try the rowing machine I’ll look into that.... I know my doctor now tested me for co infections but they all came back negative... I know that doesn’t really hold any weight on if I have been infected with them or not, but the whole not being able to walk is the POTS flare up.. the fact that I have seen improvement in my pots symptoms gives me hope.. my thinking is this; if I have a few moments of normalcy then 100% normalcy should be possible. To me, If nerve damage was causing my POTS/Autonomic dysfunction would it not be constant? To me the fact I have days my symptoms flare up would suggest an active infection right? I do know that I normally don’t have just one symptom come back, if my ear is ringing my head is hurting and my skin is crawling, my heart is racing and my depersonalization is better.. I don’t really have an inbetween.. I’m either decent or I’m dying, I’m not sure where to turn from here.. I’m all in on Lyme causing all my issues. It’s the only thing that makes sense, although I have seen such great improvement I suppose I’m just impatient.. and I’ve also found that the line between feeling “the best I’ve felt in 6 months” and a trip to the ER is about 60 seconds wide. I think the shortness of breath is definitely more of my autonomic nervous system. I could be wrong and it could be bartonella or babesia. I also feel like I’ve had some lymph node swelling, whenever I began doxy the lymph nodes in my neck and under my arms swelled up, it lasted about a week and went down, and now occasionally the ones in my leg get sore. I’m not sure if you all remember but the doctor I’m seeing now I feel like has kind of underplayed my symptoms. I’m telling you, when this first began I was literally having the worst panic attacks 18-20 hours a day. Intrusive thoughts, suicidal thoughts, mood swings, the debilitation fatigue, when I brought this up to him and told him how terrible my quality of life has been he basically told me I shouldn’t speak to my wife about how I’m feeling mentally.. which is bogus... I know for a fact the dude is a clown.. he claims to have had Lyme but seemed suprised when I told him my pshyciatric symptoms.. I let it go in one ear and out the other. I’m using dr. J clinic pulsing schedule and all of their clinical advice I was given. My insurance just pays for the clown I went and saw and he gave me antibiotics so just for that I am thankful, I’m gonna keep seeing him as long as I’m seeing small improvements.. BUT if any of you have any suggestions on where I could go next, I would appreciate it. I’d love to find another doctor my insurance covers (blue cross blue shield) and I’m really looking for a place that’s pretty personal.. I’ve said it before, I’ll eat a hot steamy plate of dog crap a day to get better I’m sure most of you would agree with that..