So one of the first symptoms I noticed when I first got ill back in 2005 is my muscles would feel like they were on fire anytime I ingested anything with gluten. It was horrible. Tried visiting rheumatologist, put me on anti-inflammatories.. Nothing helped. Cut out gluten, it was the only thing that worked. Only if I ingested even the smallest amount of gluten, my muscles would be on fire again. I stayed gluten-free for well over 10 years, with the occasional hiccup here and there - where I'd be punished by the muscle flares.

So a few weeks ago I tried gluten for the first time again and nothing. No muscle pain. No feeling ill. No flushed eyes. Nothing. My body didn't react to it. Since then I've been able to eat anything I want.

When I went to the grocery store for the first time to buy real shopping again I nearly cried. I nearly cried because it was the first time in almost 15 years that I had completely cured one of my symptoms. Instead of being confined to the gluten-free isle in the store, I was able to buy anything I wanted. Things I haven't eaten in a decade that I once loved I could eat again!

The rest of my symptoms are still present (mostly neurologicial), but I'll be going back on abx soon - this time IV (last time I only tried oral).

I can't conclusively say the antibiotics cured my gluten autoimmune response, but I can say it's the only thing I did differently. I am 90% sure the antibiotics did it.

I'm a long way from being better, but at least I finally got one symptom cured. Completely.

I dunno if anyone else had this reaction to gluten, but it was a killer for me.

Girlie said...
That’s great news Sean!

Nerve pain is the WORST thing ever!


Just curious - During that time - were you checked for Celiac disease?

Yes but negative for antibodies. I didn't get much gut problems with gluten, it was more the muscle pain, flushed eyes, throat would swell up sometimes, etc.. I would also feel really ill - like fluish.

Oh god if I had to give up gluten I don't know what I'd do. GF is so nasty...

Do you think it could have been the glyphosate in the wheat? I’ve read some articles lately saying some may not be gluten sensitive but reacting to the glyphosate in it. Are you now eating conventional or organic?

Anyway, best wishes for continued success!

Thats great to hear.

Are you cured of lyme to? edit - oh guess not yet.."I'll be going back on abx soon - this time IV"

Gluten can obviously have lasting effects over time.

I would still take it easy and use this as a trial period to see how you feel in a month or so.- sometimes it can take that long

Gluten is somewhat inflammatory to me (cytokins, no antibodies though) , going GF made my 10 year thyroid nodule disappear per imaging.

I eat ok gf, I used to it now since im not into pre packaged foods. Target and wallmart have a new, better tasting gf bread thats 5$ a loaf.

Biggest issue for me with GF along with alcohol free, is both put complicate social outings.

I quit even light drinking to be as anti-inflammatory as possible and for liver health. I really only drank beer, they have one good gf beer (gluten removed actually), but its still an alcohol beverage and is spendy.

Post Edited (astroman) : 3/30/2019 1:44:37 PM (GMT-6)

Oh yes - I can't drink any alcohol. I get like 4 day hangovers. Truly. Not worth the pain.

Also with my horrible depersonalization, getting drunk just doesn't feel enjoyable anymore. I'm already too spaced out.