Important info! Pls help!

No one talked about this but I have this weird sensation. Whenever I pee I normally always get this satisfying vibration over my whole body. Idk how to describe it it just feels good and I used to always have that but since Lyme and the co-infections I always try to force that feeling but I barely get it... Does anyone know the feeling xD? I hope this is not weird haha

Lol i think i know what you're talking about. Its like a quick goose bump feeling all over the body right? Like a satisfying relaxing feeling?

Hey, Kevin. It sounds like general anhedonia to me, or a neuropathy disruption which are very common and manifest in a number of ways; I experience the lack of certain sensations, because Lyme has either deadened the neural pathways or disrupted them in some way or depleted some basic chemicals that make for euphoria and general pleasure, like serotonin and dopamine if I were to guess. I think I recall an LLMD saying that this is why standard SSRIs and antidepressants don't really work for Lyme and co-infections (and the related associated deeper levels of depression or anxiety.)

I can vaguely remember how good it felt to exercise, and it is troubling to me after having been an athlete, that I've almost trained my body to avoid exercise completely now, because of the energy toll it takes and feeling inordinately fatigued and pains afterward.

The brain fog or emotional flatness, and other bizarre neurological palsy, it doesn't surprise me, or rather I seem to lack certain startle responses, or natural emotions. I want to force myself to exercise again so I can get back some of my natural processes, (like that feeling you describe has gone missing after taking a good whiz for instance); in the past it's like my body sometimes misinterpreted intense exercise as auto-immune dysregulation, like that time I got hives from a sprint at the park (!)

Really, the symptoms are so across the board with this awful disease, that if you hadn't experienced it, or closely known someone who you know would never malinger or see a doctor unless they felt really sick and was truly suffering, or else read and researched a lot about "the great imitator 3.0" syphilis' smarter cousin, you wouldn't believe it.

But I know, I believe it, that we are robbed of certain simple pleasures, and much more. Instances like these let us know something is off.

It is like spinning a wheel of bizarre symptoms that were never there before, for me it was clumsiness where I never was before at all, general balance problems, a weird wall-eyed type of feeling accompanied by a feeling of unreality. Absence of dreams and un-refreshing un-restorative sleep.

I'm still fighting to get these back.

Thank you, The Dude Abides.

It's nice to at least not suffer alone, and to be understood is comforting too.

I just re-read the symptoms list (lyme brain not being what it used to be) from CajunGirl's post https://www.healingwell.com/community/default.aspx?f=30&m=1606610 , that lists Chronic Fatigue Syndrome and Fibromyalgia sources in it also. I can recognize around 2 or 3 from each group that I have felt acutely.

It's uncanny, yet so familiar how many of us have these same symptoms.

I had been up most of yesterday, trying to get work done, had taken a lot of supplements that help me think and gave me a bit of energy (energy drinks, I know not the best idea, and racetams). That thread last night was the last thing I wrote with that little burst of clarity and energy, trying to put things in perspective, it's good to know someone can relate.

Yes I can confirm that this is not something people would make up as a hoax, like I or we just make up this specific type of misery, with all the same symptoms, for fun.

Anyway I had been feeling more alone in this fight lately, so thanks again for your reply as it has made me feel less alone today.

Girlie I think the word you're looking for is frisson, which you get from good music/movies haha

jb1994 said...
Girlie I think the word you're looking for is frisson, which you get from good music/movies haha

Oh really? Never heard that term.
Is the frisson response coming from the limbic system in the brain?
Dr J said I had limbic system irritability.

jb1994 said...
Hmm I am not sure about the limbic system but I believe a good portion of the population gets frisson that don't have Lyme. There is even a website with links that provoke it, reddit.com/r/frisson lol

Yes - but I’m having it too often and too intense.
Happening when it shouldn’t!!

Bubbly urine is often just salt in the urine.