After daily migraines for over 5 years, I have been migraine ( face pressure ) free for 4 days...

Thanks to this forum and the research I've done reading posts on here on what could be causing these issues.

Over the last few years I've been on many antibiotics and herbs to take care of the Lyme I was diagnosed with believing the headaches were a direct cause by them however someone on the forum suggested sinus pressure migraines could be due to yeast and/or mold. The migraines got worse when I was eating certain certain foods so I thought it could be an MCAS issue or leaky gut.

Turns out the office I was working in was tested and came back with high levels of stacchybotris black mold, which I've been in the last 10+ years.

That said I looked into yeast issues caused by being in black mold environment. There seems to be a correlation if you look on this forum of people complaining about yeast and leaky gut and being exposed to mold.

So for the last 2 weeks I have done the follow regimen which has been everyday making me feel like my old self again:

Morning:

15g of L-Glutamine in water mixed with 1 packet of VSL#3 ( the visobiome version )
1 clove of raw garlic crushed with a garlic crusher and put on a spoon and swallowed with water.
1 900mg dose of turmeric ( got it from vitamine shoppe )

Night:

Same as morning only I also take one 200mg fluconazole as well.

I also try to get in 3 doses of modified citrus pectin a day spaced out in between the protocol above and the food I'm eating.

I have also been eating lots of onions and cooking with lots of coconut oil. I have stayed away from sugar as well for the last 2 weeks except for last night, I had a banana and some peanut butter, and some yogurt with strawberry and banana mixed in. I was surprised I didn't react to it, when I normally would, which made me really excited.

Lastly, I got out of the mold environment and got an air purifier for my room.

The only issue I have left is some respiratory issues, air hunger I guess you would call it. Thought my shoemaker certified doctor called it hyperventilation.

I went to the shoemaker doctor at the suggestion of someone on this forum who had me take a barrage of mold illness blood tests as well as adrenal/hormone tests as he suspects a lot of these problems are happening due to the weakening of the system due to the long term mold exposure.

Everyday I'm feeling more and more like my old self.

Just want to thank everyone on here who contributes because with everyone doing so, I wouldn't have been able to pinpoint what was going on with me and a solution.

If the tests come back with mold illness my doctor will probably put me on cholestyramine but for the time being he suggested I stay taking the modified citrus pectin. I've read on here from people that have had the air hunger resolved from the cholestryamine.

I want to also note that the first several days on this protocol the headaches and air hunger seemed to get worse but now seems to be better then they ever had before.

I'm thinking if I had a systemic fungal infection + mold + leaky gut then the mineral absorption the past years has been crummy so I'm thinking as I get better and better my body will start fixing its deficiencies.

Hopefully this helps someone who has a similar story.

Cheers!

cr3ativegirl said...
Congrats on figuring out the puzzle. Mold creates so many weird symptoms. You probably have the dreaded HLA-gene polymorphism that doesn't allow your body to detox mold properly. I had a similar situation - I had sinus surgery in 2006, and the doctor told me mold had eaten the bone! Fast forward to 2015, and my ENT learned at a conference about reducing biofilms with a drop of baby shampoo in the nasal rinse (lots of studies on it). When I did that, a huge black gelatinous mass slid out of my nose the size of my palm. After that, I was able to make tons of progress on my lyme and co-infections.

Cholestyramine does work great. I still take 2x a week as there is 100% days of moderate to high mold in my external living environment. I will caution you that if you are really toxin (you have suffered for years), you might herx after you take it. Follow it up with some charcoal.

I have been at 95% better and some days 100% better going on about 2 years. My doc says working through biofilms can take years, though. I'm currently working with a trainer at my gym and burning off any remaining fat which I suspect is full of stored mold and lyme toxins because I do herx a tiny bit afterwards. Doc suggested I just follow up my work outs with some cholestryramine. Unfortunately, detox is a way of life for some of us that are genetically impaired to deal with toxins.

Cheers! Glad you are doing great.

My doctor tested for the gene, haven't gotten the test results back yet. We shall see.

Interesting on the baby shampoo... I have nasal congestion too. It seems as if only one nostril wants to allow air through it at one time. Then the nostrils will switch. LOL.

Hey Dude work in some Black Seed Oil this stuff is a very potent anti-fungal the most potent one I've used and i've tried a lot of them.

Work up to 1 tsp 3x/day but be careful starting out as it kills off the fungus and releases toxins which intensify symptoms.

Rikky,
Do you have mold issues, too? I don’t remember you talking about mold before.

Thanks for the tip on black seed oil. I started it a couple weeks ago. Increasing by a drop a week.