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Lyme disease burning vagina / Vulvodynia

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Posted 8/2/2019 6:10 PM (GMT -5)
Hello - I just joined this forum today. My interest is in any relationship between recovering from Lyme disease and recovering from vulvodynia. I am so sorry for all of the suffering I am reading here. The posts here are at least 4 years old, so I would love to hear if anyone is finally symptom free (especially the vaginal burning part.) My daughter has struggled with Lyme symptoms for 20 years and for the past 9 years has also struggled with vulvodynia. So I am interested in how the lyme patients also suffering from vulvodynia have progressed? In addition, I wanted to let you know about a Dr. Fowler in Scottsdale AZ who has helped a LOT of women past their pelvic pain issues! https://www.fowlergyninternational.com My daughter is currently under his treatment, but right now she is also on a very regimented protocol to detox (lyme disease, metal and other toxic poisoning), and her vulvodynia symptoms are really intense right now. It breaks my heart. I do think the lyme detoxing has something to do with the ramped up pelvic burning issues. Can anyone relate to this and how/when were you helped on your journey with getting past the Lyme?
Posted 8/4/2019 4:59 PM (GMT -5)
No surprise, lyme loves to hide in the digestive and urinary pathways. While your symptoms can be caused by a great many factors, have you been tested for Candida or yeast overgrowth? For me this often accompanied with itchy or inflamed skin.

If so, I'd recommend taking a probiotic supplement called saccharomyces boulardii. This probiotic literally devours the candida and protects your body (inside and out). You can take this orally, but I also apply it directly to inflamed areas too. Id also recommend bathing in baking soda and epsom salts too. Both have antibacterial antifungal applications and it certainly couldnt hurt.

Post Edited (vcast) : 8/4/2019 4:05:28 PM (GMT-6)

Posted 8/4/2019 5:36 PM (GMT -5)
Welcome to our forum, mumfifty!

I’m sorry your daughter has suffered so long with that horrible symptom.

Does she have a good Lyme Dr treating her?
Posted 8/4/2019 7:26 PM (GMT -5)
Hi girls. So sorry you’re all dealing with this. I too dealt with this for years but my was well before I had Lyme, it was actually caused by HSV2. I finally found relief AFTER I got Lyme when my doctor put me on LDN, it’s literally the ONLY thing that has helped me. Maybe try getting a prescription? Good luck!
Posted 9/14/2019 3:23 PM (GMT -5)
Just finding your replies today. Thanks so much.

HeartsinPain - thanks for the reference to LDN. My daughter will have to clear that through a couple of folks who have been helping her over the last year.

Girlie - yes, she spent almost 3 months at Envita - a clinic in AZ treating chronic diseases (mostly lyme and cancer patients). This was where, after 20 years, she finally had a definite confirmation that she does have lyme (the test was a DNA test that identifies the pathogens (lyme and co-infections) and measures how much of each she has). Had intense therapy there. Now she is on an intense protocol to rid herself of the rest of the lyme and some major toxicity. If you look up Mercury Madness/Connie Fox, you can read about the protocol my daughter is on.

Vcast - thanks so much for your thoughts and advice. She is currently under the care of Dr Stuart Fowler for the vulvodynia but doesn't seem to be making much progress, yet. He knows she is also struggling with Lyme, and I am hoping that once the lyme/co-infections and all the awful toxicity she has are almost gone, the vulvodynia symptoms will disappear. It is so hard, as Dr Fowler's website has TONS of grateful testimonials, yet my daughter has yet to experience such relief.

Thank you all for responding with your helpful ideas!
Posted 9/14/2019 3:49 PM (GMT -5)
Niccdunn93

I have experienced peri-anal myalgia or "proctalgia," and burning. All throughout my 20's I was also afflicted with vaginal candidiasis.

With my recent flare I experienced a buzzing or fasiculating pelvis and vaginal area. Not painful like what your experiencing. I have had "fleeting zinging burns," in that area but yours sounds more chronic.

I would talk to an Ob/Gyn that can refer you to a physical therapist that specializes in women's health to address hyperactive genitourinary nerves.

Post Edited (ElizKA26) : 9/14/2019 2:52:42 PM (GMT-6)

Posted 9/14/2019 7:55 PM (GMT -5)
So sorry that you are dealing with this. I know someone who had to sadly deal with this kind of pain and she found a product online which was a thin ice pack that fits right inside your underwear, she said it really helped her with the burning. I hope this helps, try to hang in there!

Post Edited (CalmLittleBuddha) : 9/14/2019 7:46:36 PM (GMT-6)

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