Isolation

I also wanna ask about mediation for anxiety. I’m trying to keep from doing this because I know Lyme is the cause for this but does anybody take these meds to help along the way of healing Lyme?

Sorry to hear your daughter is going through this. She sounds very strong! & what you’re saying does make sense. I think a lot of the reason why I become so isolated is because I really just don’t have the energy to have conversation at times. Sometimes I do and sometimes I don’t and I think it confuses a lot of people, especially since I looks so normal on the outside.

Jaypoppa keep your head up bud. Hopefully one day all this makes sense. Right now I’m just struggling to accept it & move on.

Blakeleysmom,

Has your daughter tried GABA supplement for anxiety? Might be able to take a few pills a hour or two before Church and be able to power through it.

Also holding on the bible and squeezing it indefinitely brings the protective power of the holy spirit for me! I have a small pocket bible that works well for this.

The same happened to me. I was always a social extrovert and had huge amounts of people around me. As soon as I got encephalitis I became immediately socially withdrawn and uncomfortable in social situations. My SPECT scan shows this

My daughter has not tried GABA but I will definitely look into it. Thank you!

Tarheels8 said...
I have become the definition of a loner.

I’ve never been a social butterfly but I was never like this before. I use to get out and do things and interact with people, especially my family. If I see somebody I know in public I literally run.

Now it’s like I just can’t do those things. I literally just work, then come home and sleep. On my days off I just sleep and hide in my house.

What makes Lyme disease do this to us? It’s caused social anxiety for me but I feel like whatever is causing me to just hide is something else. I feel like I’m missing soooo much on my daughters life because I’m just never their. She’s just 2 years old so I know she can’t inderstand why her dad isn’t there for her. It’s like I want to so bad but I just can’t.

Is this something that is normal with Lyme,& gets better or is this more of a personal issue I have to deal with aside from Lyme? Should I be fighting these feelings and trying to put myself out their even though I know it’s not gonna work?

I literally almost had a panic attack at Walmart last week because there was just so many people there! I couldn’t focus on nothing I was doing or focus on conversations with my girlfriend. My mind was just racing as I kept seeing faces.

I am so screwed up man. I just want to live my life the way I did in the past.

that's just about what happened with me ~~ stopped seeing family ~ relatives ~ friends ~ and im living alone right now ~~ :D

most of its recovered my lyme ~~ but the anxiety stayed ~~ must be persistors affect nervous system

i am currently using essential oils to try to kill them topically and through oil diffusor - ~~ i really need to go away

I withdraw from people too, and then I get even more depressed that no one is around, lol.

I wanted to add that if you have issues at Walmart, it might be a vision processing issue caused by damage from inflammation. See if you can go to a vision therapist and ask about prism glasses. (We can't afford the vision therapy at this time, but the glasses have helped me and my son a lot.)

jb1994 said...
I call myself antisocial but honestly I think it's because I'm incapable of doing so many things people do my age. Like drinking and...drinking...

Not everyone your age is drinking. Find the few who aren’t. Make new friends.

It's not easy WBF, trust me. I have my Lyme friends and that's about it. Everyone is drinking as long as they can. Or getting high. At my age they don't have responsibilities or declining health preventing them from doing otherwise.

jb1994 said...
It's not easy WBF, trust me. I have my Lyme friends and that's about it. Everyone is drinking as long as they can. Or getting high. At my age they don't have responsibilities or declining health preventing them from doing otherwise.

Your feelings are totally normal and understandable. I went down at 26 and was at the prime of my life career-wise and partying-wise. It came to an abrupt end and I always had the itch that I never got it out of my system. Doing things with people of your age is normal and a right of passage. It makes sense that you long for it.
You'll have it. And when you do you'll be bringing a more appreciative, jovial aspect to it that your friends never did because they never lost it. You'll also have other priorities in order that they don't because you spent time forced to concentrate on other things. You've been able to observe things from the outside and when you're able, will reintegrate with a more coherent vision of where you're headed and what's important. They won't have that.
That and whiskey. You'll have lots of whiskey.

Tarheels8 said...

What makes Lyme disease do this to us? It’s caused social anxiety for me but I feel like whatever is causing me to just hide is something else. I feel like I’m missing soooo much on my daughters life because I’m just never their. She’s just 2 years old so I know she can’t inderstand why her dad isn’t there for her. It’s like I want to so bad but I just can’t.

Is this something that is normal with Lyme,& gets better or is this more of a personal issue I have to deal with aside from Lyme? Should I be fighting these feelings and trying to put myself out their even though I know it’s not gonna work?

Sounds like neurological symptoms of bartonella. I had babesia and borrelia for 7 years, until bartonella popped up and caused anxiety, fear, OCD and other werid stuff.

Any other symptoms of sore feet, electric shocks in feet? OCD or Intrusive Thoughts... Stretch marks or small red marks common with Bartonella? Heart racing in the morning? TMJ/jaw pain? Red burning eyes? Ammonia in urine or sweat?

You look on the Bartonella Group on facebook and the sign some Bartonella patients get is high ammonia for whatever reason, as well as those stretch marks, I suspect borrelia also gives off ammonia on die off, but it seems after listening to people on the HealingWell.com forum and the Facebook Group, many have that ammonia smell coming from their body. I theorize that it may be also causing some of the neurological symptoms with bartonella, as once ammonia gets in your head it can cause psychosis, anxiety, all sorts of weird stuff. NOW L-Orthinine and Allergy Research's L-Orthinine L-Aspartate has really help keep my head clear. And KAL magnesium glycinate or Natural Vitality's CALM really helps with anxiety. Get on these supplements and it should help, read the reviews on Amazon, as many patients report the clearing of their head when on L-Orthinine L-Aspartate.

Increase in Probiotics/Fermented Foods can also help anxiety as well.
https://www.hopkinsmedicine.org/health/wellness-and-prevention/can-probiotics-improve-your-mood

If you can, exercising like just walking can increase endorphins in the brain, also helps with anxiety.

What you're going through is very common with chronic lyme, but I believe if anxiety gets really bad, this is usually bartonella. Do a search on "anxiety bartonella" on here and on the facebook groups, if you have bartonella and if you're not using the specific antibiotics for it, you won't get better. It's a unique type of bacteria that needs antibiotics like bactrim, rifampin, biaxin, rifabutin, pyrazinamide. Some of the weaker antibiotics do help like mino, omnicef, and doxy. Also herbs like a-bart. It's a very resilient bacteria, I just heard reports of some lyme patients finally trying the turberculosis persister cell drug pyrazinamide, which some bartonella patients reporting that it was the only thing that put them in remission or helped them tremendously. This is a drug that Dr. H recommends when all else fails with bartonella it seems, according to the video.
https://youtu.be/bzu0weofvm8?t=5980

Post Edited (Charlie55) : 10/14/2019 8:55:04 AM (GMT-6)