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Feel Like Novocaine All Over

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Posted 10/11/2019 2:21 PM (GMT -5)
I am getting worried that I am getting worse. For months (maybe longer), I have had increasing numbness anywhere and everywhere. I notice it the most on my face, back of head, front of neck, and right thigh.

I know mold can cause numbness, too, but my latest CIRS labs don’t leave much concern about mold at the moment. I am worried that bart or Lyme or something else is destroying me. I have a tendency to ignore symptoms and not notice when I am declining. I’m starting to worry.

The numbness feels like novocaine that’s not completely worn off.

Do you have numbness everywhere? What caused it? What made it go away?
Posted 10/11/2019 6:21 PM (GMT -5)
I have a sensation where I feel like I have been hosed down with that ointment that you put on for a pulled muscle or a Charley horse..."Bengay?" Where my body burns and tingles all over. It's not painful in as much as it's just abnormal.

I also have a slight weakness that comes and goes. Sometimes it's in the morning and gets better by evening. Sometimes it's evening and has improved by morning.
Posted 10/12/2019 9:13 AM (GMT -5)
Wbf: I don’t have any advice nor can I say that I can relate because I don’t have those symptoms. But you’re in my prayers and I hope you find relief soon.

Sending you a hug and positive vibes.
Posted 10/12/2019 4:56 PM (GMT -5)
i found those sensations were the start of my severe nerve damage . each tingle of cold would tighten circulation leaving nerves starving for blood . i was told that once the nerve dies halfway it will not regenerate very fast .like 1nm per month assuming the offending pathogens are removed (bartonella and borrelia) loads of efa ,flax, krill ,cod liver,avacados and phosphatydlcholine iv help seal the frayed nerves . oddly enough when got l.planterium in my gut my nitric oxide levels went up helping my bp get circulation to the places to do the thing. there was a time i needed zhangs circulation p , raw licorice and salt water to combat the cold reynauds /livedo reticulitis / vasculitis or whatever they want label it ... hope this helps...
also fwiw i believe chanca piedra and bvt cleared the borrelia biofilms restoring the circulation pathways . curious what my mri would look like now?!

Post Edited (bluelyme) : 10/12/2019 4:01:49 PM (GMT-6)

Posted 10/12/2019 6:49 PM (GMT -5)

JovaLyme said...

ElizKA26 said...
I have a sensation where I feel like I have been hosed down with that ointment that you put on for a pulled muscle or a Charley horse..."Bengay?" Where my body burns and tingles all over. It's not painful in as much as it's just abnormal.

I also have a slight weakness that comes and goes. Sometimes it's in the morning and gets better by evening. Sometimes it's evening and has improved by morning.

I have that sensation you describe as well. The burning and tingling absolutely everywhere. Is that constant or just when you take something?

I put it down to inflammation of the nerves or something. Seems to get a lot worse whenever I take anything medicinal at all, whether it be herbs or abx.

JovaLyme, so it started for me using herbs and abx and gets worse or better with introducing new meds or herbs related to treating Lyme and co-infections.

It will reach a fever pitch of annoying and then I'll feel so much better. Then it will come on again and linger or go away and come back.

@Bluelyme thanks for your suggestions on different ways to address it! Cheers all! smile
Posted 10/12/2019 10:08 PM (GMT -5)
efa's = essential fatty acids omega 3-6-9 etc etc
did lots of barleens lemon, yuums and royal jelly contains acetylcholine and i ate kilos ... something else helped also i know not everyone has access to iv curcumin (curry coated veins ) but there are some very good orals
Posted 10/13/2019 8:59 AM (GMT -5)
Bluelyme,

Thnx for your input. That’s what I am worried about - that the numbness is the beginning of something worse. I’m guessing it’s bartonella related, though I suppose mold, heavy metals, and other things could cause nerve damage, too.

You mentioned EFA’s and PC. A while back my doctor wanted me to do IV PC. I never did. I did take the oral capsules by BodyBio. She also wants me on the BodyBio Balance Oil. I think that may be the EFA’s you’re talking about.

I am confused on the oil and haven’t taken it. I thought it was just another brand of high dose fish oil. I already take OrthoMega EPA/DHA supplements. The Balance Oil is Omega 3 and 6, I think.

Also the Balance Oil bottle says 2 capsules, but the doc’s instructions is 10 capsules at one time. That sounds crazy. Won’t this cause heart problems?

Last but not least, the Balance Oil bottle has (ALA) on the front label after Linoleic Acid Blend. That has me all worried and confused. I don’t take alpha lipoic acid (ALA) because it gives me weird symptoms that I assume are mercury related. Is this balance oil the sane as alpha lipoic acid (ALA) that Andy Cutler says to take at very low doses on the half-life of 3-4 hours?

What oral brands of curcumin are good? Why does curcumin help nerve damage? I took Jarrow 95 a few years and quit after finding undissolved clumps in my poop day after day.
Posted 10/14/2019 11:46 AM (GMT -5)
sounds like a therapeutic dose , should give some relief by thinning your blood a bit .
the inflammation on my heart was reduced by rocephin and curcumin . not sure on orals but epicore or standard process maybe have a strong oral. royal jelly was the bees knees though.
the iv pc gave a immediate coating btw . i know we are all in charge of our own health but when i couldn't trust my own intuition i did have to rely on amazing kinesiologists to help me sherlock my way in the dark lyme world . im sure its not cheap just to hear your practioner talk? have you considered adding zhang hh2/allicin or rife for mold ?
Posted 10/15/2019 10:13 AM (GMT -5)
Yes, curcumin may thin the blood. Please check with your doctor on all new supplements. In addition, forms of curcumin that are hydro-soluble absorb better. This may help you in determining forms that are absorbing better than others.
Posted 10/16/2019 1:49 AM (GMT -5)
I tend to think bartonella too. Though a co-worker has numbness and tingling in her legs and it appears to be mold-related for her.

I herxed with burning and itching skin when I started bartonella treatment. And one random day last week it felt like I was wearing clothes made of fiberglas.

Sorry if I missed this, but what are you treating these days?

I hope this goes away soon for you! It will be in the rear-view mirror someday.
Posted 10/16/2019 8:32 AM (GMT -5)

Dahlias said...
I tend to think bartonella too. Though a co-worker has numbness and tingling in her legs and it appears to be mold-related for her.

I herxed with burning and itching skin when I started bartonella treatment. And one random day last week it felt like I was wearing clothes made of fiberglas.

Sorry if I missed this, but what are you treating these days?

I hope this goes away soon for you! It will be in the rear-view mirror someday.

Thx, Dahlias!! What am I treating? The whole zoo, LOL!!! I have been on my own conglomeration of herbs mixing up Buhner’s protocols for all the infections for over 2 years now. I initially thought bartonella and mold were my main issues. Over the past year, I have gotten more into treating parasites and wonder if maybe I do have babesia.

Basically treating Lyme, bartonella, possible babesia, mold, ropeworm, yeast/mold in gut.
Posted 10/16/2019 8:38 AM (GMT -5)
Bluelyme,

What does the royal jelly do? I have some but only used it briefly. I remember Buhner mentioned it, which is why I got it. What did it do for you?

I wish there were more alternative practitioners around here. I don’t know of any kinesiologists around here or anyone who does bioresonance scanning. Not willing to travel still due to mold and chemical sensitivities.
Posted 10/16/2019 8:42 AM (GMT -5)
Just an update - I have been feeling better the past few days. Since it was full moon, I increased my parasite treatment the last 4 days/nights. I also added some new binders. Numbness and body pain/stiffness have been better. Not sure if it’s because I am treating parasites more or because the added binders are removing toxins better.
Posted 3/22/2020 8:49 PM (GMT -5)
Somehow I came across this post I made about numbness. Thought I would give an update.

In mid-January, I started taking TUDCA Plus. It has turned out to be a game changer for me. Most of my symptoms have noticeably improved, including the numbness I posted about here. I rarely feel it anymore.

The TUDCA seems to have opened my detox pathways somehow. I suspect now the increasing numbness was from toxins of some sort, not a progressively worsening infection. Anyway, TUDCA Plus has helped a lot.
Posted 3/22/2020 9:14 PM (GMT -5)
WalkingbyFaith
I’ll have to read the entire thread again - I don’t remember what the TUDCA is.

That’s great you’ve had results with it.
Posted 3/22/2020 9:47 PM (GMT -5)
I may have to give it a shot. What made you try it? My numbness definitely flares with chemicals. And I recently saw a doc say mcs is just an overload of toxins. I was under impression that mcs was mcas.
Posted 3/23/2020 10:48 AM (GMT -5)
I've been thinking about the Tudca Plus myself, though I already take NAC. My numbness has been a lot worse off and on since I started the Lyme Babesia Protocol.
Posted 3/24/2020 7:15 AM (GMT -5)
I know these response r very late hope it can still save someone .I was going insane with all these symptoms numbness seizures bells palsy I would just b walking and there I go down fall down due to numbness my entire face and head would get numb misdiagnosed as anxiety panic attacks seizures few years of meds didn't work i had heart palpitations and dizziness cheat pain severe. It was all from Lyme disease and bartonella bartonella really big with the burning sensations numbness and severe sharp pains hope this helps
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