Lyme in Japan. Advice please!

Hi all.
Im not living in US but in Japan. Would like to know what I should do.

Details below but the gist is thatI have tested for everything and most roads are pointing to longterm Lyme disease. I know so little about this so pointers and insight about Lyme would help but at the same time,I wonder if anyone knows places to go or doctors to see in either Japan or China that are decent for Lyme disease.

Thank you,
rainny123ljj

Additional notes.
Symptoms:
Air hunger;
Lightheaded/Feeling faint/Dizzy;
Bloating/Gas/Burping;
Facial Flushing (after long day);
Visual snow and floaters/Eye preasure;
Tingling in head and left ear;
Tingling in hands and cold localized (nervey) sensations in the legs and chest;
Chest pain but probs from reflux;
Back pain all the time;
Nasal inflammation (dry) making it hard to breathe through the nose;
Fatigue;
Health anxiety (lack of predictability);
Depression;
Bounding pulse;
Headaches.

I have had tests for Lupus, Addisons, Diabetes, Autoimmune Gastritis and other autoimmune diseases. But not MS. EKG, exercise test on heart - all normal. Been to the optician - says Im fine. I have Hashimoto's thyroiditis. All within range and seemingly fine. I need advice because I have to get better to support my awesome family.

Cant exercise. Cant drink alcohol; Cant drink coffee or green tea; Forgetful and irritable! No joint pain, just my back. But I pull intercostal muscles from time to time. I used to be as strong as an ox. Now physically shot and only 30.

Don't know what it could be and what I should do. Doctors wont do anything unless I point them to a possibility. Most things have been ruled out.

If I have lyme then it is a longstanding infection. What should I do? Would look for docs in Japan or China if anyone knows of anyone...
Your help would be much appreciated.

Welcome to the forum! I'm glad you reached out. Familiarize yourself with the thred titled, "New to Lyme? Start Here" for answers to a lot of your questions, and try using the search bar as well for specific issues. And of course post as well! We're here for you.

Unfortunately I have no idea about resources in China and Japan, but I hope that someone here will. There are some doctors who do phone consultations, if you decide that you are interested in that. A lot of people self-treat with antibiotics, herbs, homeopathy, rife, and many other modalities, so while a knowledgeable Lyme specialist ("Lyme-literate medical doctor," or LLMD) can be very valuable, you are not totally without recourse if you cannot find one near you. Some people find these websites useful as well:
rawlsmd.com
treatlyme.net

Are you interested in testing?

From your symptoms, you might want to look into POTS (postural orthostatic tachycardia syndrome), mold toxicity, gut issues, and MCAS (mast cell activation disorder) as well as Lyme. (Gut issues meaning candida, SIBO, dysbiosis, parasites, leaky gut, food allergies and sensitivities, etc.). All of those conditions can occur together, but sometimes it helps to address them separately in order to get your body back to a balanced place where you can handle Lyme treatment, exercise, etc.

Good luck!

Hi rainny - welcome!

Send me an email and I’ll see what I have for Lyme treatment docs - are you able to travel outside if Asia if necessary?