JovaLyme said...
I'm pleased to hear your neuropathy is only mild potsnpans.
Perhaps the capsules are helping? Whoever it was that came up with that idea seems to have potentially saved a few people from unnecessary suffering.
My symptoms are worse than ever right now, sadly. The neuropathy I got on disulfiram was very severe and it was my head that was most affected by it. It felt like someone was gouging my head with knives or something, I can barely find the words to describe it. It was absolute agony. Not only that, but the severe pain I was getting in the right hand side of my head and behind my right eye was also agony. I also had a lot of stinging and burning in my feet, but that was nothing compared to the pain in my head.
I feel absolutely awful right now, like there isn't really much hope anymore.
Jova, are you on capsules in the enteric form or the actual pills? I haven't had much joint pain/neuropathy on DSF until I did the 500 MG dose which was my own fault (which is why I am going to take a few days off, let the toxins die out and start back maybe at 250). This capsules thing may be what has separated the people who get the neuropathy as it is supposed to break down in the small intestine instead of stomach.
I want to make sure we aren't moving on from it just yet. I want you to be better, we all do, we are in this together. Maybe that is the reason why? Sorry if you already posted. Just want to help all we can friend.
For me I have only had the migraines and muscle pain just this last week but never before on the lower doses.