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What supplements to stay on after treating?

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Posted 12/29/2019 7:11 PM (GMT -5)
Hi guys I’m on month six of the Cowden protocol. This was after a full nine months of antibiotics. I’d say I’m 85 percent better but still get migraines and a few other symptoms. I’m already looking to find out what supplements I should be taking once I’m done treating. I’d really like to boost my immune system as much as possible so I’m thinking Lions Mane and Ashwaganda are two I’d like to be on. Can I stay on Samento and Banderol longterm? What are you all planning to continue taking once you’ve finished treating?
Posted 12/29/2019 7:47 PM (GMT -5)
I would say, have herbs ready in case you get a relapse of symptoms, especially babesia. I haven't really had an all out relapse, but sometimes I start getting night sweats and I have to start artemisinin again. If say, viruses are your biggest problem, have antivirals ready. If you still have migraines, take herbs that are specific for whatever is causing them, if you can pin your headaches down to a specific cause, for example.

I would say that most supplements are fine long-term if they are helping you. For me, I actually started to feel better not taking certain supplements after a year or so of taking them, so I just gradually ended up stopping a lot of my supplements.

I try to alternate immune boosting supplements, so my body doesn't get dependent on them. Monolaurin is one, and sometimes I take lomatium.
Posted 12/29/2019 8:12 PM (GMT -5)
Thanks so much for all the info! Do you think staying on LDN is a good idea? The price just went up but I feel like it does help me.
Posted 12/29/2019 8:32 PM (GMT -5)
Where are you getting the LDN?

It is very cheap at the compounding pharmacy.

Have you thought about taking the herbs maybe one week a month before quitting entirely?
Posted 12/29/2019 9:38 PM (GMT -5)
That might be a really good idea about the herbs Girlie thank you so much for that! I get mine at a compound pharmacy but the price just went up to over $100 sad
Posted 12/29/2019 9:57 PM (GMT -5)
Did you do the Cowden protocol through nutramedix for $350/month? I’m contemplating starting that February. Right now I’m on some of his herbs mixed with Buhners and supplements. I feel I should follow a protocol more closely to get better. I was with an LLMD but I wasn’t tolerating the antibiotics. My insurance costs will go down come February so I should be able get by ... while I’m hemorrhaging more money 😉🤪
Posted 12/29/2019 10:01 PM (GMT -5)
Vitamin C and D are always good to take for the immune system. Check your levels of D to see how much you need. I’m going to start taking the prescription strength till I get to the optimal range.
Posted 12/29/2019 10:05 PM (GMT -5)

HeartsinPain said...
That might be a really good idea about the herbs Girlie thank you so much for that! I get mine at a compound pharmacy but the price just went up to over $100 sad

There is a private Facebook group for LDN and people list which pharmacies they use that are cheap — I believe you can order from anywhere in the country and have it delivered once you have an Rx. The group has tons of good info.
Posted 12/29/2019 10:11 PM (GMT -5)
F Lyme I’m on month five of the protocol right now. I do believe it’s helping. I would give it a try if you can afford it!

Orbit thanks so much for that info! Do you know the name of the group?
Posted 12/30/2019 7:37 AM (GMT -5)
Check out LDN cost at Hopkington Drugs in MA. It was just under $50 if I recall for a 3 month supply.
Posted 12/31/2019 1:46 AM (GMT -5)
D3 k2 I do 20-40
Vit c 2000
Dhea I do 50-100
Fish oil loads
A good multi vitamin
Curcusyn or a good available turmeric curcumin
Chlorella a handful before meals
If you have and you should assume you do, gut issues , digestive enzymes before meals
Lots of probiotics and prebiotics
If you are Mthfr a good methyl folate and methyl b
CBD Oil from a good source

Hang in!
VCL

Post Edited (Village Crazy Lady) : 12/31/2019 12:12:39 AM (GMT-7)

Posted 12/31/2019 7:29 PM (GMT -5)

HeartsinPain said...
F Lyme I’m on month five of the protocol right now. I do believe it’s helping. I would give it a try if you can afford it!

Orbit thanks so much for that info! Do you know the name of the group?

The private Facebook group is called:

Low dose Naltrexone (LDN) for chronic illness & infections

It's not just for Lyme people, but there are a ton of us in it.

I pay $75 for a 3 month supply fyi, which seems high compared to what others are paying.
Posted 1/1/2020 1:08 PM (GMT -5)
Thank you so much!
Posted 1/1/2020 2:47 PM (GMT -5)
#1 ?......................not a supplement, but keep your gut healthy.

Eating what is right for your body, which can be a little different for all of us. This is certainly more difficult for younger or highly social people, or those with time constraints.
Posted 1/1/2020 3:42 PM (GMT -5)
Amen Astroman!
If the gut isn’t right the rest is a bit of wasted money.
Posted 1/2/2020 10:12 AM (GMT -5)
HeartsinPain:

In the LDN Facebook group someone recently posted that they pay $45 for a 3 month supply from this place in Florida, and they ship to every state:

Infuserve America Inc

You just need to send them your Rx.
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