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Has everyone who used Igenex tested positive for Lyme?

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Lyme Disease
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Posted 1/3/2020 9:53 PM (GMT -5)
Just saw my pcp today and when I told him about my diagnosis of Lyme and Bartonella through Igenex, he said that all his patients who used Igenex tested positive for Lyme. Is this true?? Any false negatives out there with Igenex? This disease makes you question everything with ten different doctors telling you ten different things.
Posted 1/3/2020 5:40 PM (GMT -5)
Lots of false negatives!! (Not false positives)
If a person tests positive for lyme after a clinical diagnosis - it’s definitely not false.
The WB relies on our immune function to be strong enough to mount a response to the bacteria.
Often with chronic lyme our immune system has taken a hit.

We have loads of members here who tested negative
Posted 1/3/2020 7:19 PM (GMT -5)
I did not test positive with Igenex. Band 41 was positive and band 39 (borrelia specific) was indeterminate. A couple of other positive non-specific bands. DNA Connexions test was positive for borrelia and ehrlichia.

I guess your PCP thinks a positive test from Igenex is a false positive. He’s wrong. Dead wrong. The only people I know of paying money out of pocket for Lyme testing through Igenex are people who have otherwise unexplainable symptoms indicative of tick born diseases.

No, not everyone with Lyme tests positive, even with Igenex. It is still a Western blot, which depends on the immune system creating sufficient antibodies. Many with Lyme have immune dysfunction, which could mean no antibodies or not enough to be read as positive by a lab’s testing methods.
Posted 1/3/2020 10:05 PM (GMT -5)
I had one negative test from IGeneX and one indeterminate. Some doctors dismissed me because of this, unfortunately, so i stopped mentioning it. I have positive tests from LabCorp (after four years of treatment, when my system was strong enough to make antibodies again). Also positive from DNA ConneXions, including when I was very ill. LabCorp tests for mycoplasma, EBV, and borrelia hermsii were positive early on. I know people respect IGeneX, but if you get clinical diagnoses or positive test results from elsewhere, then trust them.
Posted 1/4/2020 5:33 AM (GMT -5)
Thank you Girlie, WalkingbyFaith, and saraeli. I really appreciate all your responses. Next time I see him, I'll show him this thread and maybe it'll open his eyes a little. smile
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