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Expected time to see any improvement on RIFAMPIN

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Posted 2/20/2020 4:16 PM (GMT -5)
I would love to hear from those that have or are treating with Rifampin; especially for Neuro symptoms, as to the average time it takes to see any results or reduction of symptoms?
Posted 2/20/2020 4:37 PM (GMT -5)
Hi Cignet I am taking it with Clarithimycin and high does Amoxicillin, and have been on the Rifampin (300m 2x daily) for a little over 3 wks. Yes I am treating Bart.
Posted 2/20/2020 4:46 PM (GMT -5)
The first time I used Rifampin, it seemed to help me especially in the 2nd month of using it (have a lot of neuro symptoms). Doc had me off it, and I relapsed. Tried it again alone later, and it didn't do much in the two months I used it.
Posted 2/20/2020 4:56 PM (GMT -5)
I had no improvement on rifampin, and stopped taking it after a few months.
Posted 2/20/2020 5:13 PM (GMT -5)
I think it was a few months before I noticed an improvement.
Generally, one by one, my symptoms slowly got better over time... until they were gone.
Nothing happened quickly for me.
Posted 2/20/2020 5:18 PM (GMT -5)
Cignet I was nervous to take it but I had no issues I took just 300m for a week and then up to twice daily.
I began Herx within a few days but lots of detoxing
Posted 2/20/2020 11:39 PM (GMT -5)
my llmd only recommends 3-4 months on it once every couple years due to liver tox n stress... relief came from zhangs bart combo at month nine fwiw
Posted 2/26/2020 9:23 AM (GMT -5)
I take it 1.5 hours after the Rifampin.
Posted 3/10/2020 1:02 PM (GMT -5)
Girlie - how long were you on rifampin? I recall you pulsed it. Did you stop it as soon as your symptoms improved or stay on it for a while?
Posted 3/10/2020 2:11 PM (GMT -5)
Cignet, I stopped it yesterday but not for reasons related to the medicine. I had an appt with my LLMD and I am so confused!! My #1 symptom is off balance when I walk, it has destroyed my life for 3 yrs and at every appt with him we discuss it is not improving and I was confused if it was a Babesia or Bart symptom and asked him previously but dont think he ever really answered me. I have been treating bart for over 9 mo and balance not improving and as you know was just changed to Rifampin last Month. So when I asked him again yesterday if the balance is related to Babesia he said yes and I was so confused!!! So now I am on Azithromycin, Malerone and Bactrim DS and I pray it improves my balance. I also have slurred speech and dont know what caused that.
Posted 3/10/2020 5:19 PM (GMT -5)

jb1994 said...
Girlie - how long were you on rifampin? I recall you pulsed it. Did you stop it as soon as your symptoms improved or stay on it for a while?

Initially, I took it daily when the LLND I was seeing prescribed it. After a long time on it...I then did a pulsed approach for awhile - trying to imitate what Dr. J does.
I took Rifampin for approximately 1 1/2 years (including the pulsed time) - yes that long...
It did do me good though....and I tolerated it quite well.
It didn't get rid of all my symptoms though.

I still have a few lingering symptoms....not sure what to do about them. I have an upcoming appt with Dr. J....I'll ask him.....but part of me doesn't even want to ask....worried about getting bad news...that these last few will never go away....
Posted 3/10/2020 8:16 PM (GMT -5)
Girlie - wow, that's a long time, but I guess if you were a week on and a week off and pulsed it only a few days it really doesn't add up to too long. At least it helped, I'm glad to hear it. What symptoms remain and which ones left? I'm sure you've considered Rifabutin as well. I'm a bit scared of that one but if it comes to that well, I want this crap gone...just hope the herxing isn't as bad as the actual illness. Also not looking forward to temporary blindness since I drive...
Posted 3/11/2020 1:55 PM (GMT -5)
CIGNET

Dr. Burrascano list off balance; tipsy feeling as a Babesia symptom and the checklist I complete at every LLMD appt also list off balance as a Babesia symptom. The only bart symptom I really have currently is sore soles when I first get out of bed. I have air hunger which is babesia, I treated initially when diagnosed in Nov 2018 for Babs and Lyme for only 3 months then started treating Bart for last 9 months with no change in my balance. I will have to see if any improvements occur with babs treatment.
Posted 3/11/2020 3:03 PM (GMT -5)
sdarrah, forgive me if you have covered this elsewhere, but have you tested yourself and your living space for mold and mycotoxin exposure?

Neuro symptoms can take a long time to go away, even if infections are under control. Balance issues can come from Borrelia, Babesia, Bartonella, mycotoxins, MCAS, herxing, heavy metals, and anxiety. It's a non-specific symptom. I know you want to figure out where it's coming from in order to make it go away, but have you tried anything specifically for neurological health? (Meditation, limbic system retraining, mind-body therapy, craniosacral therapy, essential oils, lion's mane, Jernigan formulas, yoga, qi gong, CBD, etc.?) How about your gut and immune system? Antimicrobial treatment has its limits; sometimes we have to work much harder to fix the damage and dysfunction left behind.
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