Hi everyone , I have written a few posts over the last few weeks in regards to this but thought it would be best to start a new one as it’s a new question. I have been experiencing a severe mast cell attack over the last 2 weeks - I can’t eat anything bar apples and rice - today I tired sweet potato and after a tiny bite , my entire left side of my face feels severely numb , I now feel confused and very sleepy . I was wondering if MCAS can ultimately affect your brain more than anywhere else - my gut has been fine no issues all and I haven't developed any skin rashes . I’m taking this slow all I’m consuming is quercetin , apples and rice other foods that have been suggested olives cherry’s (fresh) I’m have no access too as we are in lockdown now .To add I didn’t realise I had mast cell until this attack.One more thing I am due my period within the next few days - I also suspect I have the Mthfr gene which I know can create hormone imbalance especially Estrogen dominance. Estrogen can increase histamine production, have any of the ladies experienced terrible reactions from ovulation to the day your Period starts? I am hoping that once it begins my symptoms ease off a little bit .. wishful thinking ??

Post Edited (tashmash) : 3/28/2020 6:19:53 AM (GMT-6)

Oh god Aerose .. yes that sounds familiar to what I have been experiencing.

Thank you Saraeli, just don’t know where to go or what to do to be honest - i am trying so hard to be patient and calm and give it time - I’m really hoping I can add new foods in at some stage concerned that it just won’t ever improve.

Thanks Saraeli , no my doctor wasn’t sure I had MCAS - she really didn’t understand just how bad the reactions where to everything - I don’t have a doctor at all at the moment that is treating me for Lyme I have stopped antibiotics 2 years ago I then tried herbs for a year and a half - I have been off everything for the last while - I wasn’t in remission but I was feeling better so I was giving my body a break . I have however been doing a few biomagnetism sessions I did my last one the Friday before my flare started so I am wondering Maybe there is a herx happening as well causing so much inflammation? Maybe unlikely I don’t know enough about it to know if this is possible ... I have stopped using products on my skin, I don’t react awfully to showers I feel ok after them. I meditate every night before I go to sleep - it does help and apart from 2 nights where I thought my body was going to explode into a ball of flames I have actually been sleeping quite well.

It’s just very difficult I am on my own with two children - I feel so sorry for them and I’m trying to be present as much as I can. But i am scared that if I don’t start eating soon I’ll end up in hospital

There are so many possibilities, I find it so difficult to solve the puzzle. One option- might you be dealing with some yeast die off? Sometimes if I have that and I eat something fermentable the symptoms will lighten up. The die off is always neurological for me, too.
Not saying that is it, just spitballing

MCAS flare ups can go on a while depending on each of us. The hardest part, I've found, is that once you're in a flare it's so easy to exacerbate it further with small incorrect moves. You will come down from this- the antioxidants and polyphenols should help but most important is to avoid all tirggers- diet, environmental and psychological.