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Good antivirals for EBV? (Not Valtrex)
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Lyme Disease
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Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 10:51 AM (GMT -5)
Hey guys, sorry i've been MIA for a bit. Couldn't wait till 5/14 to see my LLMD. I called last week and told her my symptoms.
She sent me for blood work and I received the results this morning from the lab. Still a bad EBV infection, levels even higher from 6 months ago. I didn't do well on Valtrex last year.
Does anyone have any recommendations for something other than the Valtrex? I know many folks in the lyme community deal with reoccurring EBV infections.
Hoping to hear from my LLMD later on. I don't know if she's seen my results yet.
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2440
Posted 5/6/2020 11:25 AM (GMT -5)
Hey just curious when you say “She sent me for blood work and I received the results this morning from the lab. Still a bad EBV infection, levels even higher from 6 months ago.”
What levels are we talking about
? IgG or IgM? Did they do a dna test to actually look for the virus. IgG means nothing 95% of the population has it. Do you have fevers or swollen lymph’s or severe fatigue?
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 11:41 AM (GMT -5)
No fever but horrible fatigue, body aches. When this got really bad 6 months ago she said it was an active infection. Yes, I'm aware about
a majority of the population having it. No, she didnt do a DNA test. It was more than one EBV titer, they all were IGg but the levels are only getting higher, and I'm getting worse, alot worse from 6 months ago. She doesn't think this is typical herxing from my bicillin injections ( been on them 2 months now) I'm hoping to hear from her this evening and I'll let you know what she says.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 11:45 AM (GMT -5)
Just checked back on my results, the IgM wasnt flagged, it was normal.
Penguin77
Regular Member
Joined : Aug 2019
Posts : 28
Posted 5/6/2020 1:46 PM (GMT -5)
What about
IgG early antigen? Is it within range? If not, this could be a reactivation.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 6:50 PM (GMT 0)
Nope it wasn't. Flagged high.
running wild
Veteran Member
Joined : Mar 2013
Posts : 2568
Posted 5/6/2020 1:58 PM (GMT -5)
I have been taking monolaurin and some Lysine. The Lysine is limited to 500 mg a day because of kidney issues.
You also mentioned there was no DNA test done. As in EBV DNA? I ask because I have had two of those done and have no idea what it represents or who it plays into EBV. All my other tests have been highly positive for about
1.5 years, at least, but EBV DNA is negative.
So far, the monolaurin and limited Lysine haven't done much for EBV.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 2:02 PM (GMT -5)
Thank you for sharing. It's been really debilitating for over 6 months now. I'm not lying when I say every week its getting worse. It's very scary, I'm crying almost everyday. I need answers and I need relief, fast.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 2:03 PM (GMT -5)
Yes, I meant DNA of EBV.
running wild
Veteran Member
Joined : Mar 2013
Posts : 2568
Posted 5/6/2020 2:11 PM (GMT -5)
I understand your frustration. So far, I haven't been able to put a dent in any of the EBV. That is not mentioned to discourage you as some others have had success in treating reactivated. One person who used to post here attributed her improvement with it to higher doses of Lysine, along with other naturals.
I have a lot going on, but I have seen some improvement in the fatigue. I couldn't get through a day it was so bad at a couple points. That has improved some, but I still get afternoon, low-grade fevers that last from 2-4 hours. But I don't know for sure it is EBV causing that. Wish I had more to help you.
tickbite666
Veteran Member
Joined : Mar 2014
Posts : 2145
Posted 5/6/2020 2:35 PM (GMT -5)
Some do better taking Famvir vs Vatltrex. Might also want to try the herbal Lomatium vs monolaurin.
We all react differently to antivirals
HeartsinPain
Veteran Member
Joined : Sep 2018
Posts : 629
Posted 5/6/2020 2:58 PM (GMT -5)
I hear great things about
Takuna! It’s a part of the Cowden protocol. I’d fir sure give it a try.
saraeli
Forum Moderator
Joined : Jan 2019
Posts : 3827
Posted 5/6/2020 3:27 PM (GMT -5)
Antivirals for EBV:
Researched Nutritionals PlasMyc (has actual EBV antibodies in it)
monolaurin
lysine
olive leaf
I also have very high IgG titers for EBV. I have had doctors blame a lot of symptom flares on reactivated EBV when they are not Lyme-literate or when they can't explain something in terms of Lyme. I'm not saying I don't believe it can be reactivated, just that it's very hard to tell.
HeartsinPain
Veteran Member
Joined : Sep 2018
Posts : 629
Posted 5/6/2020 4:51 PM (GMT -5)
LDN might be helpful to you as well!
magoo2
Veteran Member
Joined : Mar 2015
Posts : 1671
Posted 5/6/2020 5:29 PM (GMT -5)
Ozone works great for virus-take a look at Dr Robert Rowens youtube channel
running wild
Veteran Member
Joined : Mar 2013
Posts : 2568
Posted 5/6/2020 7:14 PM (GMT -5)
All good thoughts. I have looked up ozone therapy to learn more. For me, I already use LDN at 4.5 mg. Don't know if it's helping or not. Just worn with the late afternoon low-grade fever. I can feel it the moment it starts.
Hope Sunflower saw some ideas that were posted.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/6/2020 7:19 PM (GMT -5)
Yes, thank you all for the quick prompt suggestions/input!
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2440
Posted 5/6/2020 7:29 PM (GMT -5)
What are the body aches like? Did you have them before the Bicillin?
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/7/2020 4:35 AM (GMT -5)
Yes I did have them before the bicillin. Not just aches, but pin and needles, burning and tingling, esp in the limbs, fingers and toes. Sometimes it feels like I have " jellied" limbs.
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2440
Posted 5/7/2020 6:40 AM (GMT -5)
Yeesh, sounds like what I deal with on a daily basis, def some form of neuropathy. What were your lyme labs like?
W/ respect to EBV, Ozone is an option that is supposed to work be quite antiviral. It's potent stuff. I've spoken to Howard Robbins who pioneered the 10-pass, used it quite effectively for Ebola. My only concern, however, is that with EBV since it lives inside your own B-cells, which are generally protected from ozone by the body's own oxidative stress defenses, it may not work.
The Rife or AmpCoil may be an option.
I'd also look into autoimmunity. Really does sound like some form of SFN/autoimmune neuropathy youre dealing with.
ChristianWithLyme
Veteran Member
Joined : Nov 2019
Posts : 880
Posted 5/7/2020 9:57 AM (GMT -5)
Sunflower1920, have you treated for Bartonella? I'm kind of on a Bart "kick" right now because of what I've experienced.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/7/2020 10:04 AM (GMT -5)
ChristianwithLyme- since being in treatment I've exhibited Bart like symptoms...the pain in the feet, the mental symptoms ( anxiety depression, quick to anger). I asked my LLMD about
that and she never tested me for it. I was border line positive for Babesia though last year. Unfortunately, because of the virus we gotta hold off on the Bart test for now....a regular lab cant do it.
ChristianWithLyme
Veteran Member
Joined : Nov 2019
Posts : 880
Posted 5/7/2020 10:13 AM (GMT -5)
Tests can be unreliable. Your LLMD wouldn't just treat you for Bart? You just want to keep it in mind because Bart can keep you in misery.
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 5/7/2020 10:17 AM (GMT -5)
I will be asking her that when I talk to her next...their office is closed for the rest of the week, ugh. Right now my focus is on the EBV, getting that under control first. As with the mental health components, I do have other things going on right now ( non lyme related). So to be fair, I can't really say its the Bart doing this 100%
ChristianWithLyme
Veteran Member
Joined : Nov 2019
Posts : 880
Posted 5/7/2020 11:15 AM (GMT -5)
I hope you can make good progress.
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