Disulfiram - Part 14

Yeah, Im happy from your successes! ...and of course from others.

I will probably also return to disulfram when I get the results from the new LTTs.
I had to end it involuntarily two months ago! From day by day I got terrible diarrhea, when I was on 250mg/day.
Did anyone have this experience too? drug tolerance for several months and sudden intolerance?
I have a sparkling form, I alternated it sublingually and classically orally with water.

cheers, Martin

dcd2103 I want to thank you for the advice to take lots of magnesium in the other thread.
I took some today and it really took the edge off of the disulfiram side effects.

Well I think I'm on my last push with DSF and went from 375 to 500 mg last Sunday. Plan is to stay at 500 for a month then wean down or try to hit Bart one last time. I was hoping that the DSF shortage would be fixed by now but I had to make one more pricey refill with Hopkington Drug compounding pharmacy this week.

Friday is my last day of work and retire earlier than planned on June 1. I may look for a part time gig later this summer if this pandemic crap settles by then.

later if I don't get to post too often.

Thank you both for your responses!

FlatERF, you take dihydromyrocetin for aceteldehyde buildup correct?

I want to take it too but I'm worried it might interfere with disulfiram's efficiency. Is this a valid concern or no?

can aceteldehyde buildup cause headaches?

Thank you!

Hey all,

Been a while since I posted.

I was on DSF at end of last year but took it on and off. I felt better but then felt worse.

Started with a new doctor because I wasn’t confident with my old one. Started on Buhner for 3 months then back on DSF but this time properly.

Initially on DSF I started to feel better but now at 375 I’m exhausted and beat up almost every day. I’m told that this is now common for most. The thought you feel better on it is wrong and it takes weeks after you’re off a full length of treatment where you feel cured / better.

I’m also on doxy and azithro for unsure Bart. So yes I’m going through hell, but have 39 days left of it.

I’m confident this will do it. I’ll post back hopefully once I’m better.

Thanks Rainy. 38 days left!

The hardest roads are often the longest travelled, and the greatest rewards take the toughest battles.

How’s everyone doing?

32 days left at 375. Also taking cholestyramine, doxy and azithro.

I am exhausted. My body is simply beat up. No pain really. Just an exhaustion along with stomach pain and feeling just beat up.

Started in January also. Worked up to 400mg a day. Started dropping back to 200mg last week. The last Two weeks @ 400mg were a booger. When I dropped to 200mg it was half as bad as 400mg

Well I've just finished reading this entire thread. Took three days between feeling bad and dealing with my 21 month old grandson who lives with us. He's a handful lol.

I'm about to start my journey with dsf. Llmd is just waiting on blood work results. He had me sign a release form before he would prescribe it , some scary side effects.

After reading this thread I am very worried about taking it but I feel I don't have a choice. I've been treating with multiple abx for over three years now. I have made some recent headway with dapsone. It has helped the most so far.

My main concern is the rage/psychosis. While I'm not looking forward to the other crap herxes it's the rage/mental that I'm really concerned about. I don't want to do or say anything that would physically or emotionally harm my family. I am more worried for them than myself.

Before Lyme and co I never experienced anxiety or rage but since it started I have and don't like either. Around Christmas when I let a prescription for my azithromycin run out I had some episodes of rage and paranoia that scared the hell out of me. That's not me.

Anyway I will be starting soon. I hope this is the miracle I've been hoping for. I want my life back and I'm willing to do just about anything to get it back. Money is running out, I have to do something.

I am currently taking azithromycin, dapsone, cefuroxime, plaquenil, Nystatin, and rifampin. Plus all of the herbals and supplements. I have Lyme and Bart. My main symptoms are joint pain, heart palpitations, dizziness, fatigue, ears ringing, anxiety, extreme weakness and memory.

Here we go on the next step of this journey. Hopefully it will be the last.

I don't know where I'll get it. If I have to I guess I'll have to get it from a compounding pharmacy. Maybe just cut out a few supplements. I don't know anything really yet. Just got my release signed and returned and waiting for them to get my blood work results. It's not like me to be nervous or worry but I am really nervous about this.

Your LLMD should write up the script to assume full dose at 500 mg per day. This will help you get more bang for your buck as you ramp up slowly so your first script may actually last you a little over two months. Most people will do OK at 250 mg or 375 mg per day. I think I went a little overboard with 500 mg a day for the month of June. Maybe if your script is written for (2) 125 mg capsules twice a day, you can ramp up with 1 capsule every other day to see how you react to get started.

Post Edited (tickbite666) : 7/10/2020 1:48:17 PM (GMT-6)

Hi WV Mike, I'm rooting for you.

That's really impressive that you managed to read the whole thread!

I'm still on disulfiram myself, so we'll be in this together