Joint Pain & Weakness - Is it Just Me?

I have some of the some things happening right now in cycles - stiffness/soreness in small joints (hands), occasional joint pain in larger joints (mostly knees), and episodes of overall muscle weakness/heaviness.

I attribute it to herx cycles from either Bartonella or yeast/fungus, I'm still going on Houttuynia and think it hits both. It'll get bad for a few days and then break and I'll usually feel better than I did before, but then rinse and repeat, over and over...

Not sure if this helps you at all in terms of new information but you're not alone.

Pain is hard to universally describe.

Even though there are certainly different pains, Im guessing in some cases, some of us had very similar pain to others....but may describe it in a different way.

The way we feel pain can be really weird. They have even proven that sometimes were the pain in and where one feels it can even be in opposite limbs.

Joint pain that IS caused in the joint will usually cause swelling with lyme. Joint pain from tendon tension will not swell, but still hurts a lot - and said tendo(s) will be hard.

I do know tendon pain can be very deep, which might be what some people call bone pain sometimes if its near a joint. It seem like areas with circulation congestion can also just ache after a while. The mid sections of my outer legs did that to- no joint near-by. But my knees hurt from tendon tension on the inside. 30 years ago my knees were swollen....and known lyme symptoms were raging. My pain was not the same it changed here and there.

If I could go back in time when my lyme was making crazy body pain before ABX, knowing what I know now, I could maybe understand it better.

I had cortison injections twice in the same shoulder 25 years ado - it did nothing.

One thing that will never change is that muscle contraction has the greatest circulatory effect of anything. For most here that means baby steps. This should help nerves too that are not physically pinched.

One other thing- If a joint has limited range of motion deeply feel the tendons controlling it and compare to other side if thats not affected as much.

Finishing showers with cold water is also pretty awesome and has circulatory benefits.

Post Edited (astroman) : 8/1/2020 5:50:49 PM (GMT-6)

I'd stop the Motrin before it wrecks your gut if your using it regularly. Now and then ...OK....regular use...bad....

Penetrex cream from online and wallmart can heal pain if used 3-4 times a day after a month or so..and wont wreck your gut. It takes a while, but that with muscle/tissue massage works.

I had to fix my hands before fixing other areas...hands are tools.....wish Penetrex was around back then.

Hi WalkingbyFaith!

I haven't been around here in a while. How have you been doing, hopefully out of mold?

I read your post about the bone pain and this one about the joint pain, what came to my mind immediately is gluten intolerance.
Have you tried going gluten free?

There are different tests for gluten intolerance/sensitivity/allergy/coeliac (all different things from what I gather) but I don't think that a test is really necessary, just going gluten free for is enough to confirm things. A few years ago while I was still seeing my nutritionist we did one of these food allergies test (great Plains one I believe), actually this was one of the first things we did, it came back very high positive for wheat gluten and gliadin. So I avoided gluten for a long time. Since moving to a mold-free house a year ago my health improved so I lost my self discipline and started eating everything again, and of course, my health started suffering. I have been experiencing much of the same symptoms you are describing, bone pain, joint pain, joint soreness and 'dryness' and snapping, also rashes, being just slightly off balance, hair loss and dandruff, headaches, numbness, swelling under eyes, damaged tooth enamel, blocked nose when asleep etc etc. Pretty much like mold, but to somewhat lesser extent I guess you could say, and not as consistently.

Then I watched a random video on einkorn flour, and a woman describing her daughter's issues with gluten was like a revelation to me! What am I doing to myself, I AM intolerant to gluten! I feel so much better after removing it from my diet again, and I expect to feel even better with time, as it takes time for this inflammation to taper off.
Gluten wreaks havoc in your body and this is not to be taken lightly.

I remember you mentioning also experiencing GI tract issues. These are all red flags that potentially point to gluten. I think us 'moldies' are particularly prone to gluten intolerance for some reason.
Then there are also other food intolerances worth investigating ( my nd at the time also recommended a test called GI-MAP but I am not sure if that is still up to date, if there are some newer and better tests, other forum members will know for sure). But gluten is an easy one, I am almost certain it is at the root of at least some of these problems.

If you decide going gluten free, always read the labels on everything, although you would expect it to be just in flour products it's everywhere, salamis, sauces etc. Also when eating out you need to ask specifically for a gluten free option, otherwise you may get some wheat flour with your meat or sauce.

WBF I don’t usually get joint pain but I’ve been using my sauna this week and last night had so much joint pain, hips knees feet.

Not sure if it’s herx or a flare.

Hope yours get better soon, it’s frustrating. I’ve not been supplanting with magbesium so I’m going to start that too again .

k07 I really hope it helps you with these symptoms, I had all of the ones you're mentioning, pain in the finger joints and all.
I had been so lazy with avoiding gluten too, finally things had gotten to the point where I am more eager to try to get rid of these symptoms pestering me once and for all than to eat filo pastry cheese pie. But it's not really that bad, there are so many more GF options, recipes etc now than there were a couple of years ago.  Some people that are gluten intolerant can even tolerate einkorn, kamut and other types of ancient wheat which have not been genetically engineered. I found the book Gut and Psychology Syndrome to be a great resource explaining in detail the mechanism behind inflammation caused by gluten in the body, leaky gut etc. Good info to keep me committed, as just one meal containing gluten resets the vicious cycle of inflammation and doesn't let the gut heal (oddly, I never experienced much GI issues).

Thank you everyone for the feedback. I will look into gluten.

I am convinced it’s the house (mold or mold toxins), though. Since we moved two months ago, my mother has complained repeatedly about pains she never or rarely mentioned before. She has had increased fatigue, too, and sleeps later and naps whenever at home and falls asleep in the car. She says she doesn’t think it’s worse since moving, but her verbal complaints have increased since moving.

Every time she sits in the living room, she sneezes and immediately gets burning tongue. Every time I sit in the living room, I get numbness across the bridge of my nose and in a line going down the back of my head and neck. These are classic mold symptoms for us.

Timing really points to mold, too. I had very little joint pain for weeks on end earlier this year. Then, in late April we started coming to the house every day while the handyman was doing work. That’s when I noticed the return of the joint pain. It just kept progressing from there. The back pain started the first night in the house. Then the numbness returned weeks ago.

Makes me want to die. I can’t do this anymore. I can’t keep running from mold.

Post Edited (WalkingbyFaith) : 8/9/2020 7:16:33 AM (GMT-6)