New Here, Undiagnosed For Years, Looking For Support.

Yes, the A-Bab is really good too. I can't remember if I tried it or not, but neem is also supposed to be good for babesia.

Notime4lyme - Yes, I have read that A-BAB is quite effective but it also scares me because I don't have to herx to feel absolute hell. I am afraid to do anything due to how bad the infection is affecting me. I sometimes wonder if this is all that is affecting me, considering I am having all of this stuff 24/7 and had also gone through the same for over a year (no treatment)in 2018 until I used CBD every single day for quite a few months. Makes me wonder. I am so confused about all of it. I am not your typical case.

RobWireGuy - That is great! But I can barely walk as is. I have vertigo that is constant so moving makes it worse. I would love to do that after I start treatment and things have improved. I was doing a lot of that in the beginning and definitely got worse by doing so. :/

This is actually what makes me confused. I personally cannot see how anyone as bad as me can do anything. I went through years of feeling bad and I wonder if I just got to the peak of the worst of this? After the liver issues, the HLA-B27, etc. I had been diagnosed with over 20 things but chances are it was just this crazy long infection.
I hope that I can get back to things like exercise soon though. It IS in fact one of the best ways to get well and decrease chronic inflammation. You are totally right. I am all about a good diet, exercise, and naturally taking care of ourselves. Unfortunately, some like me are in this rotation of it being so chronic. I assume this is because I have yet to treat anything. I can only hope this will do it for me.

Running Wild - Thanks for the reply.

I am sorry to hear about your situation. So, did you have it once and got rid of it and got exposed again? Or did it not entirely go away before? I know we are all different. I am still not entirely sure how this all works.

I do have a hard time believing others could be going through what I am going through. I get mixed results because some tell me to exercise no matter how hard it is and some say they couldn't move cause they are bedridden. I am truly bedridden. I can barely walk to the bathroom without feeling like things around me are an earthquake, and that still happens in bed, just a little less.

All of this happens without a herx. I don't know if you are anyone else has felt this exact way. It's hard to know. I want to know. I want to see and hear words from others that say that its okay and this will pass, because they had a straight Herx-like reaction for 6 months straight. That is what it is like with me. So my fear of treatment is there. I just took Burbur Pinella for the first time about an hour ago. I am not sure what it's doing. I feel no different. I have the same ringing in my ears, shaking, air hunger and heavy breathing, etc. If anything, use of that, or any form of detox makes me feel worse. It's like I am at the worst of it already. Maybe it's a good thing, like as if I took the A-BAB and Serrapeptase and nothing got worse. That would be a dream lol.

I guess what I am trying to ask is if anybody feels like they are always herding or DID they feel that way and after treatment things got better. I am having such a rough time, I can only hope that this stuff works. None of the detox stuff has touched me. I sometimes wonder if my use of benzos for so many years caused me to get much worse because I have had this infection for so long. I feel stuck in this rotation of thinking. I am gonna keep feeling that way until I start matching up with others and when I start to feel at least a little better. I do EVERYTHING right too. I actually eat very healthy, and only eat one ingredient foods. I did exercise, but cannot now, but I was there. I juice and eat lots of good veggies. I keep a positive mindset and focus my time by distracting as often as possible. I try new things and give things time as well. Like I said, just feel like I am stuck in a rotation.

magoo2 - What do you mean by head symptoms? Are you referring to mental symptoms or symptoms that are actually occurring in the head of the body? Could you elaborate?

Admittedly, I have been considering going to the dentist recently due to work that needs to be done. When this is all said and done, my plan was to actually do a complete refresh on my mouth. Old fillings out, new safer ones in. Bridging some of the gaps, etc.

Vertigo-I would consider a head symptom. I know a women who did everything under the son for years then visited her uncle who was a biological dentist.-they found a bad tooth and she was cured.

Many LLMD start with the jaw. I have worked with Dr Rau from Switzerland and Dr Yu from St Louis both check you jaw-nomatter what you have. The body is all connected.

Its worth getting checked