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Posted 10/18/2021 4:30 PM (GMT -5)
I’m wondering if anyone else has noticed their symptoms worsening when sitting. I’ve searched the forum but I don’t see any mention of this.

I definitely have a Lyme lower back these days…achy and stiff. I notice very often when I sit my dizziness and head issues - sometimes along with flushing - start right up or get worse. I realize this probably makes no scientific sense but I feel like my lower back is somehow affecting my head. I do know someone who was very sick with lyme years ago that said when she sat down too hard her symptoms would be provoked but that’s the closest I’ve heard to what I’m experiencing.

I feel like I either have to stand or lay down all day otherwise I’ll start to feel dizzy and get flushed. Anyway, I’m curious if anyone else experiences this and if there is an explanation of why it happens. Thank you!
Posted 10/18/2021 6:56 PM (GMT -5)
Bestill,

Sorry you are having these symptoms. That sounds awful. While I haven’t experienced that, I imagine some others have.

Your symptoms sound like they could be coming from one or both of these issues:

- MCAS and dysautonomia (autonomic nervous system dysfunction); the flushing could be from MCAS

- an impingement on a nerve due to inflammation, injury, or misalignment in the head, neck, or spine

Have you seen a chiropractor or had any kind of body therapy for this?

Post Edited (WalkingbyFaith) : 10/18/2021 6:00:52 PM (GMT-6)

Posted 10/18/2021 6:59 PM (GMT -5)
I know this sounds crazy, and I have no scientific explanation, but I had aching bone pain in my knees and legs and sometimes forearms like bartonella bone pain from early childhood until I saw a chiropractor around age 40.

Once I had my spine aligned, the frequent nighttime bone aching stopped. I took Tylenol almost nightly for decades because of this, and it went away after seeing a chiropractor.
Posted 10/19/2021 5:29 AM (GMT -5)
Thanks for your reply WalkingbyFaith! I’m also suspecting MCAS could be playing a role. I don’t know a lot about it other than what I’ve read on this forum. Is there a way to tell the difference between flushing caused by Lyme versus MCAS?

Also, I recently started with a chiropractor so I will ask him about the possibility of a nerve impingement and I have an appointment with a neurologist next week so I will ask about him about autonomic nerve dysfunction.

It’s all a bit confusing since I didn’t have any of these symptoms until the last few months. I am currently being treated for Lyme so could these resolve with Lyme treatment or are these additional issues I am going to have to address separately?
Posted 10/19/2021 7:00 AM (GMT -5)
I have found that laying down / sitting ALWAYS MAKES ME FEEL WORSE.
Felt totally cruddy this morning laying in bed (ready to write my obituary),
but once I got moving around I started FEELING BETTER.

Physical Activity is ESSENTIAL to a full / speedy healing from Chronic Bb.
Found that out the hard way......

Rob
Posted 10/19/2021 8:27 AM (GMT -5)
Hi Rob. Thanks for your response. Would you say it made you feel worse when you did TOO much sitting and laying down? Because I can understand that and did have few days early on when I would just stay in bed and I think those didn’t help.

However, the sitting down I’m talking about here is just sitting down to eat a meal or work on emails and even after a very short time - almost immediately sometimes, things seems to start. Alternatively if I’m in bed sitting up and kind of slouching (I know that’s horrible), it doesn’t seem to happen. It’s almost like sitting up and activating/engaging (?) my lower spine provokes the symptoms. I guess I feel like Lyme is wreaking havoc all throughout my back and am concerned about how it seems so linked to having a dizzy reaction.
Posted 10/19/2021 8:52 AM (GMT -5)
As crazy as it may sound, when I experience back pain such as that, I
usually attribute it to constipation. This is unfortunately a common condition
of Lyme - "traffic" of the gastrointestinal tract is significantly slowed-down,
resulting in back aches and pains. Keep up on your probiotics and fiber intake
and perhaps that could alleviate this.

Rob
Posted 10/19/2021 9:22 AM (GMT -5)
You could be on to something Rob. I’ve been tracking my BM’s since starting treatment last week and didn’t go yesterday - sorry for the TMI! I started lemon water last night so hopefully that will get things moving and I’ll notice a difference. I really appreciate your insight - thank you!!
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