Lyme disease and craniocervical instability

I saw this video on this doctor treating Lyme patients for craniocervical instability and found it interesting. https://youtu.be/zzm3gd1_05y.

I’ve been feeling despondent because the traction doesn’t seem to be helping. But I felt slightly more hopeful that this might help turn around my Lyme after watching this.

Have any of you done prolotherapy or prp or done the stem cell procedure where they inject your own stem cells into your neck? Or even taken peptides for cci?

Haha yeah the prolotherapy didn’t appeal to me until I realized the alternative is probably some combo of fusion my spine and removing parts of my skull 😭

My current doc who thinks it’s cci thought chiropractors wouldn’t work for me because I’m so unstable even if they shifted it back right it’d fall out of place again. Not sure why he told me to do traction then though, unless it’s to just test if I get better.

Bailey said...
Or even taken peptides for cci?

Hey Bailey, I think BPC 157 might help. I did however read about some people having some side effects from it, but I think it's rare. Definitely not as bad as surgery.

Here's what I found:

--------------- Question --------------
does anyone have experience healing cervical spine ligaments with peptides? and inflammation and pain? wondering which peptides would be best and if people have guides on how to inject locally in that fairly sensitive area. its for my craniocervical instability. will probably need surgery but we want to avoid lower cervical instability and fusing...

--------------- Answer --------------

I do--i have a herniated disc at c5/c6/c7. At one point it caused me a lot of pain, and a slight weakness in my left arm. After a month or so of pain, I used bpc-157 at 500 mcg a day, and after 3 or 4 days the pain was completely eliminated. The weakness remains, but for pain it was amazing.
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Those are from here: https://forums.phoenixrising.me/threads/bpc-157.58050/page-3

And I also found this blog post:

https://medium.com/@mecfsmedicalrecovery/me-cfs-spinal-instability-tethered-cord-recovery-protocol-3e1eefffac8c

If you have the energy to read the blog post in full I would recommend it, because at first sight it looks like something else, but then it starts talking about peptides.

Ah totally understand Bailey,
Yes it's the GHK-cu that's the copper peptide.
BPC-157 should be fine but I would inject tiny bit first to check for MCAS.

I read something about BPC-157 in regards to MCAS but don't know if it was positive or negative because I was skimming the page I read it on.

I think it's worth a shot (pun intended), but just be safe.

“ Echoing the nucca suggestion - to be clear, it is not like ordinary chiro. There is no twisting/cracking. I had a terrible experience with that and will never do it again. I have had my doubts about nucca, and I felt similarly about starting treatment because I figured since my connective tissue has been weakened, everything would just fall out of place again and it would be a waste of money. But it has actually helped me quite a bit. I do have to go back to get re-adjusted, but the time between is less and less, and it helps with the pain while I'm waiting for treatment/things to improve. It might be worth a try. “

I will never ever go back to the “regular” chiropractor again.
Horrible experience.

My maintenance schedule with the NUCCA doc is every two months.
Costs me $50 each time.

Bailey said...
Are nucca chiro’s the same as atlas chiros? I asked my doc about atlas ones who take X-rays and then use a ,canine to very gently make precise adjustments followed by an X-ray to see if they worked. He said no to atlas chiros too 😢

Yes - I had X-rays - but I don’t get xrayed anymore.
Not sure what you mean about “use a canine to…”

But yes, it is an atlas chiro.

What was his reason for the “no” to the atlas chiro?

I would prefer to try the atlas chiro before I had bone removed from my skull

Because of my chronic neck and trap pain, my llmd sent me to a chiro 2 years ago wanting me to do a digital motion x-ray which x-rayed my neck while in motion. I resisted doing this because of cost and after working on me a while the chiro didn't think it would show anything. Then each appt the llmd would keep going back to wanting me to get the xray. I finally relented.

It revealed a lot more than standard xray showing exactly what my problems were. For me it was from whiplash injuries (falling off horses). The treatment I chose (surgery was one of them) was to strengthen the muscles around the neck to support the ligaments.

One thing I think he mentioned was that the dmx can help show the doctors the best places to inject the solution.

I have neck and trap pain from my cervical issues. Chiro didnt recommend the injections. He has me using a head weight to correct the muscles. He did give me a paper about how cervical instability can mess with ANS.

He has had patients that did the injections for knees and shoulders. He doesn't do the injections himself - he rehabs the people. He has seen great results with knees and shoulders. He hasn't had anyone do the neck.