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Mold/mycotoxin treatment and family members

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Posted 2/5/2022 9:16 AM (GMT -5)
Good morning, I have elevated mycotoxins and we had our house remediated for mold in the fall, successful in living spaces, still doing some hepa vacuuming etc in basement to get Hertsmi under a 10 but we aren't down there too often. I recently had one of my children tested because he developed ongoing sinus infections out of the blue and he came back quite elevated for one mycotoxin. Our local naturopath ordered the test but he admits he isn't versed in these conditions at all, just more mold "allergy", I was the first person he every order the GP mycotoxin test for when I asked if he could, my llmd is in a state that it can't be ordered; NY. Obviousy I am very upset and concerned by this. He is in college, already takes immune supportive supplements, nasal sprays to stay covid free and sinus infection free etc.. I am not sure if I should get him to a top mold doctor/Shoemaker person, which will be intense, or send him supplements and try to get levels down on our own, or ask his naturopath to help us. Vacillating on whether to hit it hard or step back and take things slow until he is home in May.

Our naturopath and my llmd have been helping me but mostly my llmd. Interestingly, my llmd takes a middle of the road approach to mold, less of a Shoemaker approach, more of a Nathan approach perhaps. Not as focused on Marcons etc... But, I am certainly on a thorough supplement protocol.

If you were treated for mycotoxin illness did you get your whole family tested or just have them do some light treatment? Any thoughts would be appreciated. I have MCAS, I get so concerned that family members will end up in my shoes.
Posted 2/5/2022 1:37 PM (GMT -5)
Am I correct in understanding that your son, who is in college, suddenly developed sinus issues and tested positive for mycotoxins?

Is your son living in the remediated house or somewhere else?

I was living with my parents in their old house when I learned I had mold. My mom and I got tested and were both positive. My dad did not get tested. My mom took Welchol for about a month and no other treatment. I took CSM, charcoal, Pectasol-C, glutathione and NAC.

We moved to a less moldy house (from HERTSMI-2 of 10 to 4). We retested 18 months after initial test. I completely cleared the one mycotoxin I was previously positive for. My mother did not. We both had higher values for other mycotoxins due to the change in houses.
Posted 2/5/2022 1:39 PM (GMT -5)
I know Shoemaker uses HERTSMI-2 of 10 as the standard, but it really depends on the person. Some people like me need to be in a non-moldy environment period.

Lab testing is useful, but I did not find it correlated well with my symptoms. Even when mycotoxin test was “negative” and I was in a HERTSMI-2 environment of 4, I was highly symptomatic and in constant pain and misery.

TUDCA has helped reduce my misery.
Posted 2/5/2022 3:33 PM (GMT -5)
Thank you Walkingbyfaith! Tudca, I was just looking at that, thanks for reminding me to get that into the supplement mix. Phosphatidylcholine has been a huge help for me.

Yes, my son lives at home over breaks and in his college dorm during school, which has mold, at least in parts of the dorm...
Not helpful. When I dropped him off a few weeks ago I sprayed his room heavily with EC3, left the bottle with him, and he runs his air purifier 24/7, all we can do for now. Our house is good but I'm going to rerun Hertsmi's again this week to make sure all is staying okay.

For him, I'm thinking of trying a light binder of some kind such as calcium d-glucarate or modified citrus pectin and additional probiotics to what he already takes, some NAC, ALA, glut, etc... and retest in a few months, if he isn't improved I'll get him to a a specialist. His sinuses are great now, he uses goldenseal in them every day, fortunately its keeping things healthy.

Thank you again!!!! Its definitely an issue on another level when its your child. I am used to all of these health adventures, don't want him having to be anywhere on this journey. But...I know good can come of these things, for sure. One of my other sons had TBI's for years, including in college, it was so tough.
Posted 2/5/2022 7:36 PM (GMT -5)
So sorry. College dorms and buildings actually have a bad reputation for mold. Can you advocate with the school or get him in safer housing? So sorry you have a child in this predicament.
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