HealingWell
Search Close Search
☰

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/6/2022 9:51 AM (GMT -5)
Our LLMD has stopped the abx for us, after reporting extreme fatigue. He's started us on the Green Dragon LB Core. 1 cap/3x a day, working our way up to 3 caps/3x a day.

How does this sound? I thought it would be a bit more involved, but it could be his really gentle approach. His office also tends to do very amazing but VERY expensive in-office treatments for Lyme, so I think this was the cheapest option he could find for us.
Posted 5/6/2022 1:55 PM (GMT -5)
Some people just need to start really slowly, and some even need to stay at low doses throughout treatment. I, for example, never could have tolerated three capsules of the Green Dragon LB Core per day. And of course there are people on loads of heavy-hitting pharmaceuticals for years who seem to tolerate them! Don't push so hard that treatment keeps you from functioning, and don't hesitate to tell your doctor when things are too intense for you. I'm glad he was responsive when you needed a change! I'm sure over time you will add in other herbs and other forms of treatment.
Posted 5/6/2022 3:40 PM (GMT -5)
i think its a reasonable place to start if you found abx to hard to begin with

i have read several accounts of people not being able to tolerate abx treatment - but after a slow approach with herbs have later been able to commence abx treatment

i have also had to start slow and low with many treatments but am now moving forward
Posted 5/7/2022 3:43 PM (GMT -5)
Herb protocols alone have never really worked for me, but you can find others who have had tremendous success with them. Green dragon is well respected for sourcing Lyme herbs. I've used them before. They are a bit pricey, but, they get everything from the "core" of Buhner's protocol in capsules. Very convenient.
Posted 5/8/2022 10:41 AM (GMT -5)

Lymie24 said...
Herb protocols alone have never really worked for me, but you can find others who have had tremendous success with them. Green dragon is well respected for sourcing Lyme herbs. I've used them before. They are a bit pricey, but, they get everything from the "core" of Buhner's protocol in capsules. Very convenient.


What protocol worked for you Lymie24?
Posted 5/8/2022 12:11 PM (GMT -5)

wladek83 said...

Lymie24 said...
Herb protocols alone have never really worked for me, but you can find others who have had tremendous success with them. Green dragon is well respected for sourcing Lyme herbs. I've used them before. They are a bit pricey, but, they get everything from the "core" of Buhner's protocol in capsules. Very convenient.


What protocol worked for you Lymie24?

No protocol has worked for me in the sense of becoming well with enduring remission.

Initial Doxy treatment for a couple months worked well for me. I was as well as I've ever been immediately post-tick bite after that. I even lived out of a hotel for work for a whole month after Doxy treatment. That seems impossible given my current condition. That was so long ago it feels like a dream. I wasn't in remission, but I was functional. Then I regressed. I did the standard Doxy treatment with my PCP years ago. My initial LLMD combo abx therapy helped moderately as well. I plateaued, got frustrated after about 10 months and quit. The last therapy that worked noticeably well for me was Disulfiram. It was very hard to tolerate, and that's an understatement, for the first two months, but after that I was noticably better. Nowhere near remission, but I wasn't sick 24/7 and permanently housebound. But again, after I quit DSF, I relapsed badly again. Now I am at Jemsek's clinic giving their program a try.

That's the long answer. Short answer is I don't know what will work for me if anything. It's been almost 7 years since the tick bite that made me ill........yikes lol. What a nightmare

Post Edited (Lymie24) : 5/8/2022 11:17:25 AM (GMT-6)

Posted 5/8/2022 12:16 PM (GMT -5)
To further elaborate on herbs. I think I have had mild success with individual herbs, but I've never had success with complete herbal protocols like Buhner. To be clear, I'm not bashing herbs. They are a cheap and relatively safe way to treat. Some people have used them to achieve wellness. Just hasn't worked for me.
Posted 5/8/2022 3:45 PM (GMT -5)

Lymie24 said...
To further elaborate on herbs. I think I have had mild success with individual herbs, but I've never had success with complete herbal protocols like Buhner. To be clear, I'm not bashing herbs. They are a cheap and relatively safe way to treat. Some people have used them to achieve wellness. Just hasn't worked for me.

I agree with you. I instinctively feel that herbs aren’t going to touch this problem. So far, my experience with Lyme herbs have been increased fatigue but no other noticeable changes.

I’ll be pushing through with this for a while to give it a proper go, but best case scenario is that we chip away at it a bit before doing another round of abx.

To be honest, it doesn’t seem like any kind of functioning health is going to happen, but all we can do is the best we can do.
Posted 5/8/2022 3:47 PM (GMT -5)

saraeli said...
Some people just need to start really slowly, and some even need to stay at low doses throughout treatment. I, for example, never could have tolerated three capsules of the Green Dragon LB Core per day. And of course there are people on loads of heavy-hitting pharmaceuticals for years who seem to tolerate them! Don't push so hard that treatment keeps you from functioning, and don't hesitate to tell your doctor when things are too intense for you. I'm glad he was responsive when you needed a change! I'm sure over time you will add in other herbs and other forms of treatment.

I’m struggling with more than 3 a day, too. I get so fatigued that it’s hard to walk. I wish I knew it would work, then I’d just push through. But it’s such a guessing game and I don’t want to wear myself out completely for no reason.
Posted 5/8/2022 3:48 PM (GMT -5)

Garzie said...
i think its a reasonable place to start if you found abx to hard to begin with

i have read several accounts of people not being able to tolerate abx treatment - but after a slow approach with herbs have later been able to commence abx treatment

i have also had to start slow and low with many treatments but am now moving forward

Thanks Garzie, have you done abx?
I’m also wondering about trying jernigans stuff too, or if that needs to come later.
Posted 5/9/2022 10:16 AM (GMT -5)
yes i have done abx - i tried about 12montsh of doxycycline with rifampicin and azithromycin combined for a good portion of that time - symptoms worsened for around 6-8 weeks then very gradually improved somewhat - but not near remission - just measurably more energy and clearer head

other things have in fact helped me more - like
-lifestyle changes - especially working on an exercise program and my sleep
-ketogenic diet - this was the biggest single thing that has helped
-a comprehensive herbal program - based mainly on Buhner's lyme and bart books

my experience with antibiotics taught me it wasn't going to be a quick fix

and i was moderately sensitive and so could not tolerate antimicrobial herbs and still function - so i started with the mainly anti-inflammatory and immune modulating herbs for 6-12 months first - then gradually introduced the antimicrobial ones - targeting bart and co-infections - still reacted strongly so had to go v slowly

am now around 60% recovered - still have symptoms - but am able to do a lot more

i have not tried Jernigan's stuff - i personally do not see anything very convincing there.

anything with vague talk of resonant frequencies and religious overtones has big red flags to me
and his/her site reads as mumbo jumbo designed to attract and take advantage of the desperate.

eg
"Through Bio-Resonance scanning (learn more here), we are able to identify the specific frequencies of a wide spectrum of infections, diseases, toxins, parasites, and many other common health irritants. Once identified, we are able to formulate our herbal extracts to match these frequencies in a way that will provide the body with the bio-information it needs to facilitate its own energetic antimicrobial, detoxification, & other control systems. As this kind of progress grows, the symptoms fall away. So essentially, it is not only a formula of herbs, but also of frequencies that work hand-in-hand with God’s design of the human body,....."

i do not have a monopoly on the truth though - so this is just my opinion
Posted 5/9/2022 10:45 AM (GMT -5)

Garzie said...

"Through Bio-Resonance scanning (learn more here), we are able to identify the specific frequencies of a wide spectrum of infections, diseases, toxins, parasites, and many other common health irritants. Once identified, we are able to formulate our herbal extracts to match these frequencies in a way that will provide the body with the bio-information it needs to facilitate its own energetic antimicrobial, detoxification, & other control systems. As this kind of progress grows, the symptoms fall away. So essentially, it is not only a formula of herbs, but also of frequencies that work hand-in-hand with God’s design of the human body,....."

He and Klinghardt might be tripping. Probably in good faith, experiencing with psilocybin!

In short, Jernigan uses secret devices to scan frequencies for signals coming from infections, then he tells patient to eat some herbs with antennas, so that those send signals inside the body telling it to cure itself. I'm glad he's having a hot line with God to know what signals need to be sent out to facilitate healing. Just wonder why wouldn't he send those signals back to the body directly. Us poor minds won't understand that, although some claim to have learnt muscle testing in Klinghardt academy and you get forums full of claims such as:
- I've tested positive for Anaplasma!
- In which lab?
- I've asked my muscles!

At least "leading researchers" keep us entertained!
Posted 5/9/2022 11:03 AM (GMT -5)
very dry Wladek - made me laugh on my birthday smile

and i will probably be shot in the street for saying this -

but if you told me that Klinghardt has declared himself the new messiah - and there is ticketed event in central park where he plans to feed 5000 attendees from 3 loaves and 3 fishes - i would not be very surprised.

still - i think it takes a certain kind of anti-establishment person to take on chronic Lyme as an area to work in - so perhaps we should expect to find a few "unusual characters" amongst the ranks.

god bless 'em though - as if it weren't for these guys there would be no one trying to help at all
Posted 5/11/2022 8:07 AM (GMT -5)

Garzie said...
yes i have done abx - i tried about 12montsh of doxycycline with rifampicin and azithromycin combined for a good portion of that time - symptoms worsened for around 6-8 weeks then very gradually improved somewhat - but not near remission - just measurably more energy and clearer head

other things have in fact helped me more - like
-lifestyle changes - especially working on an exercise program and my sleep
-ketogenic diet - this was the biggest single thing that has helped
-a comprehensive herbal program - based mainly on Buhner's lyme and bart books

my experience with antibiotics taught me it wasn't going to be a quick fix

and i was moderately sensitive and so could not tolerate antimicrobial herbs and still function - so i started with the mainly anti-inflammatory and immune modulating herbs for 6-12 months first - then gradually introduced the antimicrobial ones - targeting bart and co-infections - still reacted strongly so had to go v slowly

am now around 60% recovered - still have symptoms - but am able to do a lot more

i have not tried Jernigan's stuff - i personally do not see anything very convincing there.

anything with vague talk of resonant frequencies and religious overtones has big red flags to me
and his/her site reads as mumbo jumbo designed to attract and take advantage of the desperate.

eg
"Through Bio-Resonance scanning (learn more here), we are able to identify the specific frequencies of a wide spectrum of infections, diseases, toxins, parasites, and many other common health irritants. Once identified, we are able to formulate our herbal extracts to match these frequencies in a way that will provide the body with the bio-information it needs to facilitate its own energetic antimicrobial, detoxification, & other control systems. As this kind of progress grows, the symptoms fall away. So essentially, it is not only a formula of herbs, but also of frequencies that work hand-in-hand with God’s design of the human body,....."

i do not have a monopoly on the truth though - so this is just my opinion

I get a bit weary just thinking about this. I’ve only just started treating Lyme and Co for about 4 months, but I’ve been doing immune treatments, antimicrobial, antifungal, anti inflammatory, etc..for years now. But Lyme is its own monster and feels like there are years and years left ahead of me *if* God grants me any healing through these treatment attempts.

I can’t go full keto because of my hormones but I go as low carb as possible and it does make a difference in some ways.

I was skeptical of the Jernigan herbs, given their very certain claims to bring wellness. I’ve been trying neuro antitox for a month, now, and haven’t noticed anything, positive or negative. Lymogen made me really tired, that’s all.
Posted 5/11/2022 8:59 AM (GMT -5)
it is wearing Canary

just keep putting one foot in front of the other - and celebrate the positives every day - especially any small signs of progress you can find.

change is possible
✚ New Topic ✚ Reply