Question about Dr J protocol

Does the fact that I was treating before Dr J for about a year shorten the duration I will need to be on Dr J protocol.? I would imagine that it should be compared to someone who's just starting to treat. I watched one of his seminars and he said his treatment takes 12 to 15 months.

bro123 said...
Does the fact that I was treating before Dr J for about a year shorten the duration I will need to be on Dr J protocol.? I would imagine that it should be compared to someone who's just starting to treat. I watched one of his seminars and he said his treatment takes 12 to 15 months.

It will likely be the same or close to it - as far as I know he treats everyone for all the three B’s - which will likely take a year-ish.
Some people aren’t on the stabilization protocols for long - and that can shorten it by a few months.
Even if you treated prior - he will likely have you do the three B’s.
I was on Babs meds first, then Bartonella while treating Lyme throughout.
Approx 1 year.

Then to maintenance.

But it can vary - a friend of mine was treating for over a year and relapsed - hadn’t even made it to maintenance - he started her all over again.

Girlie, what percent would you say you were at when you got to maintenance? And what percent would you give yourself now?

bro123 said...
Girlie, what percent would you say you were at when you got to maintenance? And what percent would you give yourself now?

It’s hard to say - going by number of symptoms I’d say 90 + percent when I got to maintenance - and still the same.
I still have two symptoms that are sometimes quite bothersome - one is my short term memory and the other is my mid back pain.

bro123,

If you read patient and doctor's experiences you will see there are a wiiiidddddeeeeee range of outcomes. You can find anecdotes of someone getting well relatively fast under a LLMD's care and you can find anecdotes of never getting well under a LLMD's care (that would be me).

I learned after my first LLMD told me treatment could take a year or more to get well, and I did that, but still didn't get well, not to put expectations on my timeline to getting well. After I accepted this was going to be a long long journey my mental state improved dramatically. Before I did that I would look at the calendar and convinced myself I would be better by some arbitrary date and then I could go on living my life like this never happened. That date would pass, I'd still be sick, and I would get depressed.

Try to remain open minded about your condition. Don't set expectations. Go where treatment takes you. It's okay to be hopeful for a fast recovery, but be realistic and don't expect it rigidly.

I gotcha bro! Hang in there. Jemsek is supposed to be one of the best. All you can do is be patient. I hope you see some progress soon so as to keeps your hopes up. Keep grinding forward.

bro,

I have been reading many of your posts, and I can sympathize with your dilemma. I remember how much anxiety I had years ago wondering if I was on the right track or if I needed to change course and do something different. I could be right back there again if I had a flare up.

My memory and reading retention are still low, so I don’t remember what testing you had and if you tested positive for Lyme or other infections, but I assume you did. You already treated with both abx and herbs somewhere else.

You mentioned you noticed nothing with the herbs. Did nothing at all happen with abx treatment either? Are you saying you have never had any improvements or exacerbation of symptoms (herxing) from any treatment you have done? If that’s the case, then something else could be involved.

If you had some reactions to treatment - positive or negative - and are just concerned because you haven’t made the progress you expected to make, then that’s a different scenario.

Have you talked to Dr J about your concerns and unmet expectations? He may be able to explain something in a way that makes sense to you or make some adjustment somewhere. Just having an honest conversation could put you in the frame of mind you need to see treatment through and hopefully get the results you’re looking for. I personally think an unsettled mind is a hindrance to recovery.

Lyme/co/mold can really do mental crap to us and make it difficult to commit to anything. Plans often do need to change at some point, but jumping ship and not following through is just as problematic.

Walkingbyfaith, I have made progress since starting treatment about 1.25 years ago. Maybe 30-35% better on my best days. I do Herx but sometimes I never feel better afterwards. My igenex was positive for lyme and bart. When I did the Buhner protocol, I would always Herx but never felt any better. I believe I have made the most progress on the 1.5 month treatment with dr j so far. Maybe pulsing is better for me. Its just my main symptoms are holding me back from getting to a functional point. POTS, depersonalization, hypoglycemia, and anxiety (which has gotten much better since the start).

I take Zyrtec everyday and vitamin c, im not sure it really helps with anything