Who sees Dr. K, Neurologist in Orange, CT

I have an upcoming first appointment May 10th, any hope would be appreciated. I know he comes highly recommended here.

Post Edited (sdarrah) : 4/21/2022 1:05:29 PM (GMT-6)

Telehealth. I had another appointment with another Neurologist, also recommended from here that was not until September though.

Post Edited (sdarrah) : 4/21/2022 1:26:32 PM (GMT-6)

Good luck at your appointment, sdarrah.

Please let us know how it goes!

He's pretty sharp. Please let us know tonight what he says, hoping he has some insights!

Didnt get anything

It was very disappointing, as I assumed because he didn't accept insurance that he wasen't a western medical Doctor, so $1500 later discovered he just doesn't take insurance. But that was my misconception. He is western medicine trained, accept he is a Lyme specialist that doesn't have to follow standard dictated treatment and has no knowledge of mold or other related illness's.

Post Edited (sdarrah) : 5/12/2022 3:59:24 PM (GMT-6)

He did but assumes it’s genetic even after I told him I was exposed to mold for 10 years, and he said he is not a mold specialist. He is referring me for genetic testing, at least I can rule it and the testing and neurologist he is referring me to takes insurance.

I wasn’t disappointed that it cost $1500 I was upset because he didn’t even have my mri or file I sent 2 months earlier and confirmed received with the office manager and when we got on the FaceTime call he said he didn’t have anything and wanted to reschedule the appointment, finally after 15 minutes he at least found the mri in the wrong place but still had no history or previous medical records to prepare for this very important appointment.

I have an appointment on 7/12 I know the regular written report shows severe atrophy in multiple areas of the brain? I am very frightened.

sdarrah said...
I have an appointment on 7/12 I know the regular written report shows severe atrophy in multiple areas of the brain? I am very frightened.

Try not to get too down.
I had some scary news about the “findings” of an mri I had of my thoracic spine I had - prior to my Lyme diagnosis.
Since then nothing has progressed and I have resolved it and rarely think about it anymore.

sdarrah,

No matter what the report shows or what any doctor says, God has the last say, and He is a miracle worker.

I would suggest taking notes at the appointment and reading through the report again beforehand and be prepared with questions you might have regarding it. Pay attention to medical terms like caudate, putamen, etc. Read what Shoemaker has said about these things and learn more about how mold and Lyme affect the brain. Ask which parts of your brain have been affected and what symptoms that might cause. Different parts of the brain perform different functions and affect different areas in the body. You may be eligible for disability based on your MRI findings, as well.

Contrary to conventional doctors’ beliefs, many things can be improved and even reversed with the right knowledge of what to do. All they know (or are allowed to say) is what they are told.

Dr. Dale Bredesen has reversed Alzheimer’s in some patients and is an expert on that disease. He has done extensive work related to Alzheimer’s and has trained other doctors. Look into his work. He discovered that certain types of dementia were a type of CIRS and were reversible. He has a diagnosis and treatment protocol. Testing can determine certain things, which can determine course of treatment. I believe some genetic testing is involved. If you had the HLA testing to determine CIRS susceptibilities, you may be able to use those tests to determine other susceptibilities.

I know most of your issues are balance related, but you may still find useful information in Bredesen’s work to help yourself. The diet may be useful for you. He has a book. You might want to read it.

Make sure you get written copies of all tests, reports, and doctor’s records related to this. Is someone going to the appointment with you? Sometimes it helps to have a second set of ears and someone to provide moral support.