No improvement in POTS

I don’t know how long it will take for you - but it took me awhile for my pots symptoms to go.

I think it was over three years of treatment before my POTs got better.
BUT the first 2 1/2 years of treatment I was with a LLND and he wasn’t able to prescribe antimalarials.
Then I was self treating for about a year.
After that I switched to Dr J.
My pots slowly improved - it took over a year for it to resolve.

I think perhaps that addressing babesia was necessary.
After babesia, I treated bart.

Sorry - it’s been awhile so the timeline/details are sketchy!

I do think if I had treated babesia sooner on - some symptoms may have resolved sooner.

Bro, I know you have posted about this before, and I don't recall which things you have tried for POTS. Did you experience any help at all from the usual things - high salt intake, proper hydration, compression garments, meds? Are you noticing that particular thing make it worse, like herxing, barometric pressure changes, or stress? Do you have issues that could be related, like mast cell activation syndrome or mold exposure?

I'm sure you have covered a lot of this already in other posts, but I don't want to offer advice that's stuff you already tried!

POTS is fundamentally a neurological disorder, so things that chill out the nervous system or even "rewire" it can have an impact for some individuals. Meditation, mindfulness, tapping (EFT), limbic system retraining programs (DNRS or Gupta), vagus nerve toning, breathwork, Jernigan Neuro Antitox, lion's mane mushroom, magnesium, B vitamins, theanine, adaptogenic herbs, reducing inflammation in general, acupuncture, therapy focused on stress processing (so that stress won't activate the nervous system so much), craniosacral therapy, and restorative yoga are some options for ways to regulate and heal your nervous system.

This stuff is what made the biggest difference for me, particularly DNRS. When I started DNRS, I could not stand up for more than a minute because of POTS. My resting heart rate was 75 and jumped to 130+ when I sat upright. Within a month, POTS no longer was limiting my activities, my resting heart rate was 60, sitting up was 75, and standing was 90. I wasn't lightheaded, my heart didn't pound, I wasn't exhausted, etc. DNRS takes a great deal of commitment, and that's not practical for everyone, so I don't know very many people who have been able to stick with the practice for the recommended time (one hour per day, for six months, plus a major mindset change), but I can tell you it worked wonders for me. I believe many of the other things I mentioned helped me a lot as well, but none so drastically.

At the same time, I also stopped over-hydrating, and started treating MCAS (curcumin, quercetin, and a low-histamine diet). These things also could have helped correct the dysautonomia.

I know it's immensely frustrating and limiting to have POTS. I hope you find some improvement soon!

This is really old, but you might find this useful. This is Buhner responding to a person who has POTS.
https://planetthrive.com/2008/07/orthostatic-tachycardia-pots/

saraeli - What you mention are the exact symptoms I currently have and have had for the last 6ish years. My resting heart rate is 75-85. Standing up is 130 and a very light jog puts me at 190-200 and very lightheaded.

It sounds like you were doing DNRS and started those supplements right around the same time? Can you tell me what brands and dosages you were taking of the supplements? I am thinking about starting with those to see if I can get some relief before trying something like DNRS.

I have had bouts of MCAS symptoms over the years. I took Aller-DHQ, NeuroProtek, Cromolyn sodium, and Xyzal.

Later, I took 1/2 tablet of Zyrtec every 12 hours. I found that to be more effective than the other regimen. I don’t remember taking the other supplements during this time.