Help with child undiagnosed pandas

My oldest son is going to be 12 soon. He did have a tick bite when he was an about 5 yrs old only because the fact that I found him picking at the tick when it was in his leg! The docs would do crap and said not all ppl get lyme from tick bites and they don't see a bulls eye rash so he should be fine. Oh he did have a rash, plus got strept throat 3 times and Scarlett fever. A week a doxy did nothing and he could only tolerate it for about 2 days. I know I posted about this before once , but now it's at its all extreme. My son has gained so much weight and his belly is the biggest Ive ever seen (guessing he has yeast and sibo) due to bloating so bad plus white coating on tongue. Seems like his weight is packing on more and more so I'm trying to help him diet. He has intense moods swings, cries a lot, rage, over emotional, sleeps loads, and has terrible brain fog. He is failing most of his classes as he's in 6th grade now and just cant understand any of the class work. I'm so stressed because $ is so tight as we're just starting my treatment and paying my llmd for it. Seems impossible to save any $. I strongly feel he also has bartonella and possibly babesia. He has sweat drenching down his forehead and it's not hot at all. He prefers to wear shorts in the house with no shirt and always seems to feel hot despite it being winter (we live in CT) . Should I get him tested through Igenex first or go straight to an LLMD ( thinking money wise here and health wise here? ) I feel so depressed and stressed just watching my sons mental health decline and I know it might sound ridiculous that he got bit when 5 and still hasn't gotten treatment but I was terribly sick all these years and had to struggle to save all that $ plus my income tax to get myself tested and tested by llmd all this year because I just found out about igenex this year and all. I feel awful it's been like 5 years but I feel ppl don't understand it can take months to years for some ppl to save $ up, this is a load of $ not to mention supplements and treatment for myself, plus rent, car insurance, bills while struggling to stay alive at work. There's days I've felt I can no longer work and just want to collapse and die at work ( my adrenal fatigue and pots limit me from working) my bf is not helping me save loads of $ since he has it and sees how bad the situation is. I appreciate his help because my own child father didn't even want to here about it and says the doctor knows best and will be able to diagnose him, if not he won't pay. He doesn't understand about lyme and is narcissistic unfortunately. So should I get my child tested first or straight to llmd? Llmd will tell me to most likely get him tested anyway so we can make sure what we're up against. Sorry for rambling on but I'm at wits end here with not knowing where to go from here, and he's been suffering long enough. Thanks for all advice and opinions in advance all.

Girlie said...
I would get him to a LLMD first.
He//she can do the tests that are needed.

I want to make him an appt. with my llmd, only when I had my appt. they told me testing straight up sucks, and told us we need to test through Igenex or another lab. I am aware that the llmd will still treat him anyway even without accurate testing.

Just a heads up, it's very difficult to read posts like this, as the wall of text is not conducive to reading. Try to use more spaces.

I wouldn't waste money on testing, if you saw the tick bite, the LLMD should be alright with that? I wasted so much money testing, only to find out most of my issues are coming from my gallbladder. You're in CT, that's like the home of Lyme, let him know of how difficult it is to save.

Buy your prescriptions online, if you can. The generics are much cheaper than the US pharmacies. It'll go a long way. I found Rifabutin for a third of the price that it goes for in the US.

Have you considered trying Buhner in the mean time? That's what I'd have done, it's cheap and effective enough for most. Cryptolepis works on babesia. That, japanese knotweed, cat's claw, red sage, chinese skullcap are about all you need really. Houttuynia works for bartonella. All of these can be bought for cheap as powders, with the exception of cryptolepis which works better as a tincture.

The sweating is something that babesia happens to produce a lot. Bartonella can do that too, but almost everyone with babs mentions profuse sweating.

Don't let your son miss any more school than he already has, life is hard. Please try something, it doesn't have to be expensive. 1st Chinese herbs has all the powders you could need for the Buhner protocol.

Post Edited (Cignet) : 12/30/2022 11:15:07 AM (GMT-8)

Wishing you and your child all the very best, MedicalNerd! I know it's been a long and hard road. Others have given you fine advice, but I wanted to comment on the diet part.

My child just turned 12 (the tween years are such an emotional rollercoaster, even for kids without PANDAS!) and has gained a lot of weight recently. Like most kids that age for whom puberty is imminent or in progress, soon they will grow vertically and the body fat will redistribute. They need it to produce hormones and store nutrients to fuel that next growth spurt, so I would be reluctant to put a child of that age on a diet, if your only concern is weight gain from increased body fat.

If you worry that his belly is distended because of SIBO or yeast, then of course restricting sugar and processed food makes total sense, if that's what you meant! I just wanted to perhaps ease your mind about the weight gain and increased fat, since it's completely normal for the age.

I hope your LLMD can help him feel more capable at school and ease his symptoms! Has the school been concerned? Are they suggesting evaluation or therapy for him?