Trying on a Long Covid Theory for my Spaciness

Hi everyone,

I'm trying to make sense of my constant spacy/out of it feeling that I've had since 2020 when my symptoms became terrible. I had bart and I think mold/mcas for a decade before 2020, which mostly manifested itself in body pain, particularly at night, then had a cascade of other symptoms from 2020 on - dizziness, spinning vision, intense brain fog, worsening of nerve pain, etc. I've improved significantly since then in certain ways but not others and trying to figure out why.

What I'm trying to figure out is why I have a constant spacy/out of it feeling. The weird thing about it is that it doesn't really get worse, it's very constant, as opposed to all my other tickborne symptoms which have wide variations in intensity. My LLMD thought maybe we should explore the idea of long covid as a catalyst for everything going downhill on me. The other symptom I have constantly is this icy-hot thing in my leg, not particularly painful, but constant like the spaciness. I've had very intense symptoms - spinning vision, horrible sciatica, pain in my feet, nighttime pelvic pain, bartonella rage, you name it. I've tested positive for bart, mold (very high numbers), lyme and have also had intense babs symptoms that resolved with mepron, so I'm sure I have the usual portfolio of b's plus mold and likely MCAS, just trying to figure out why this spaciness lingers in this constant way. At this point it's my most annoying symptom as my pain has improved significantly with antibiotic treatment. I'm still very emotionally engaged in my life so I'm not really sure it's the disassociation that people usually blame on bart.

Anyone else have this constant and non-changing spaciness/out of it feeling? I didn't have covid acutely until 2022 but it's certainly possible I had it at some point in 2020. Just curious if anyone had any thoughts. There are of course many other things it could be, I would say my other main theory is that I got babs and or lyme in 2020 and it became a pile-on on top of the bart/mold.

Any thoughts appreciated - thanks everyone as always, really appreciate this forum.

What your experiencing is not uncommon in the lyme world,..."lyme brain". Which prob can be from any tick illness though.

Many times it gets better as these infections go away. Sometimes completely, sometimes not.

One thing to check is thyroid health, In thyroid speak "spaced out feeling" is called lethargy by conventional medicine. .

Even my low thyroid dog went lethargic- thy replacement med seemed to help noticeably by observation and lab tests.

Thanks for all the suggestions. I'll definitely check my thyroid. And yes, it could be anything in the lyme family, I do realize that's the most likely culprit, it's just weird that it's so constant while the other symptoms vary so much in intensity. And yes, getting a solid answer is really tough. My LLMD has told me at various times that it was definitely mold, definitely the babs, and now thinks perhaps Covid. So who knows! Thanks again for the replies.