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Posted 3/6/2023 3:18 PM (GMT -5)
I have been stretching my time off of the abx.
It’s been 7 months now.


Fingers crossed I don’t herx.
Posted 3/6/2023 3:47 PM (GMT -5)
Good Luck Girlie

fingers crossed for you!
Posted 3/6/2023 4:30 PM (GMT -5)

Garzie said...
Good Luck Girlie

fingers crossed for you!

Thanks Garzie!
Posted 3/6/2023 5:34 PM (GMT -5)
Good luck, Girlie.

Perhaps give some extra attention to your memory, during treatment. Maybe retrospectively journal any recent memory challenges you recall, as well as journaling how you do during and after antibiotics. Infections can affect memory.

You could set up some basic memory tests to see how you do before, during, and after. But, don't use the exact same information that you might remember over time after repeated exposure, as that would skew the results.

Example: You might select five numbers that you could look at for 15 seconds and then turn over the paper and try writing those numbers on a different piece of paper and then compare the two. But, don't use the same five digits each time, because you might confound the results. Or, you could figure out other ways to test yourself. I'd say do any such testing on your own and not involve anyone else. You don't need any extra pressure.
Posted 3/6/2023 7:21 PM (GMT -5)
Good idea Dude.

It’s too late to do that memory test for “before” I take the abx.

But I can test during and after.
Posted 3/6/2023 7:23 PM (GMT -5)
Feeling my head already .

That’s likely the mino side effects.
Posted 3/7/2023 4:22 PM (GMT -5)
“It’s too late to do that memory test for “before” I take the abx.

But I can test during and after.”

I tested with 5 numbers today - and it was easy.
I don’t think it’s hard enough.

I think I should try looking at the 5 numbers and walking away - and see if I can recall them a couple hours later.
Posted 3/7/2023 5:10 PM (GMT -5)
I hope it will go well for you Girlie!
Posted 3/8/2023 2:03 AM (GMT -5)
Today was just xylitol and lactoferrin.
Tomorrow will be those plus mino, Rifabutin and Ceftin.

I asked my husband to look at my back today - to check if I got the usual red spots that show up when I take the Lyme antibiotics. Sure enough they were there.
Posted 3/8/2023 6:31 AM (GMT -5)
Is the red spots a herx or just a reaction to one of the meds?

I hope you don't have an active infection after being off antibiotics for 7 months.
Posted 3/8/2023 10:07 AM (GMT -5)
^ and after being on them for 7 years.
Posted 3/8/2023 10:47 AM (GMT -5)

Quin said...
Is the red spots a herx or just a reaction to one of the meds?

I hope you don't have an active infection after being off antibiotics for 7 months.

Me too.
No other symptoms/issues so far.
Posted 3/8/2023 10:49 AM (GMT -5)

Fronton said...
^ and after being on them for 7 years.

Right?
Posted 3/8/2023 11:51 AM (GMT -5)
How long were you on abx all together like how many years, and did you always pulse ? How long off abx , longest? Posts like these make me nervous even though it's not me, I'm in worse condition, hopefully all goes well.
Posted 3/8/2023 12:15 PM (GMT -5)

MedicalNerd said...
How long were you on abx all together like how many years, and did you always pulse ? How long off abx , longest? Posts like these make me nervous even though it's not me, I'm in worse condition, hopefully all goes well.

I started treatment in 2014.
Took abx for about two years under the care of a LLND here in my Province.
It was not a pulsed protocol.
Then I self treated and tried other non-Pharma “things” like CBD etc. That was 2016/2017.
Feb 2018 I had my initial consult with Dr Jemsek. Did about year with him (pulsing) and “turned the corner.”
Have been on maintenance since - and stretching the time off abx.
Posted 3/8/2023 1:47 PM (GMT -5)

Girlie said...

MedicalNerd said...
How long were you on abx all together like how many years, and did you always pulse ? How long off abx , longest? Posts like these make me nervous even though it's not me, I'm in worse condition, hopefully all goes well.

I started treatment in 2014.
Took abx for about two years under the care of a LLND here in my Province.
There were breaks in that two years. It was not a pulsed protocol.
Then I self treated and tried other non-Pharma “things” like CBD etc. That was 2016/2017.
Feb 2018 I had my initial consult with Dr Jemsek. Did about year with him (pulsing) and “turned the corner.”
Have been on maintenance since - and stretching the time off abx.

So did the 1st 2 yrs of treatment make any difference, better, worse? Turned the corner as in remission or felt mostly better I'm assuming. What did you pulse differently with new doc in 2018? Were they different abx that you had tried the 1st time?
Posted 3/8/2023 11:28 PM (GMT -5)
“ So did the 1st 2 yrs of treatment make any difference, better, worse? Turned the corner as in remission or felt mostly better I'm assuming. What did you pulse differently with new doc in 2018? Were they different abx that you had tried the 1st time?“

Yes the time with the LLND (here in my Province) did reduce a lot of my symptoms but not completely/not all of them.
I wondered if not treating Babesia (ND’s can’t prescribe Mepron or Malarone in my Province) was why I didn’t resolve some symptoms.

So Dr J prescribed Mepron for Babesia and then onto Bartonella/Persisters protocol.
There were more meds on that protocol compare to what my LLND prescribed for Bart.
Also Dr J uses Rifabutin instead of Rifampin (which my LLND prescribed )
Also with Dr J I took dapsone.
On Dr J’s Bart /Persisters protocol I had some wicked herxing which I hadn’t experienced with the previous LLND .
Posted 3/9/2023 5:17 PM (GMT 0)
Day 4 of protocol.

No herxing/new symptoms.

One more day to go
Posted 3/9/2023 7:02 PM (GMT -5)
So happy for you Girlie!
Posted 3/9/2023 7:28 PM (GMT -5)

RainyCloud said...
So happy for you Girlie!

Thanks, RainyCloud!
Posted 3/10/2023 12:56 PM (GMT -5)
Last day of the protocol.

No herxing so far!
Posted 3/10/2023 1:40 PM (GMT -5)

Girlie said...
Last day of the protocol.

No herxing so far!

fantastic news !

yeah yeah yeah yeah yeah

well done Girlie
Posted 3/10/2023 4:32 PM (GMT -5)
Thanks Garzie!
Posted 3/12/2023 8:30 AM (GMT -5)
Yay!!! ❤️
Posted 3/12/2023 2:51 PM (GMT -5)

summer16 said...
Yay!!! ❤️

🙂
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