HealingWell
Search Close Search
☰

Is lyme brain damage reversible? I need hope

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/20/2024 2:01 AM (GMT -5)
Its been 4 years since I have been house and homebound and I have been like a vegetable. I literally lost all intellectual information in my brain and lost a huge amount of capacity. I saw herxes from cefrtiaxone and andrographis. It feels like I can find energy to go outside once again. Its been only 2 months since I was diagnosed so it became late disseminated condition long ago. However, no abnormalities in mri in terms structure. Can I be the man as I once was before? It feels like long shot and a bs at this point but I wanted to learn if there’s anybody who did full recovery neurologically under same circumstances. If I hear it from you it might be hope for me thats why…
Posted 7/20/2024 4:17 AM (GMT -5)
So there is a recovery. I was quite sick when i was 19. After 1 years housebound i read about lyme. And then it took me another half a year to find a doctor who treat me right. So i took one year over different abx combination. And all my sympoms where gone! all! really also the eye floaters and visual snow. Problem was i was in my 20 and wann live my life so my lifestyle was crap and after all the symptoms where crawling back. But i think if you live a good lifestyle maybe take buhner herbs you can controll it quite good. And yes all the neuro stuff was gone...
Posted 7/20/2024 10:51 AM (GMT -5)
It’s mainly not damage, symptoms are mostly inflammation/cytokines. There are exceptions to the rule but nonetheless..

Most widely respected docs in this space often say symptoms are from our immune response to the microbes vs microbes damaging our body. Hence why it’s not all about “killing”, but also immune “modulation”.

Hope this is encouraging for you.
Posted 7/20/2024 11:05 AM (GMT -5)
Hello, and welcome to the forum!

Yes, plenty of people have cleared brain fog and other disabling neurological effects of tick-borne disease, myself included. You have every reason to keep trying things and to keep hoping that you can regain some or all of the mental acuity and general health you once enjoyed. There is no reason to give up.

Would you like to share a bit more about your history and symptoms? The infections you have treated, treatments and lifestyle modification you have tried, other conditions you have? This might help people give specific advice.

But yes, people can recover neurologically. Absolutely. The nervous system is delicate and can take a long time to heal, but we have lots of ways to impact it. I'm happy to post a long brainstorm once I know what you have tried already for your neuro symptoms!
Posted 7/20/2024 12:08 PM (GMT -5)
I have dysautonomia and mcas. Relieve of dysautonomia drastically after starting doxycycline treatment convinced my doc that I have lyme. I currently take clartiromycin, rifampicin, doxycycline, plaquenil, atovequane for babesia,bartonella and lyme. I take japanese knotweed, cats claw, cordyceps and recently andrographis(which started to help bit neurological symptoms.) I mean during first 2 years I look at the walls with huge depersonalization and hallucinations. Since I didnt have rash I never focused upon lyme for too long which was a huge waste of time. Since antibiotics that I take didnt help neurological symptoms at all I started to take cefuroxime. It started to help pressure and tingling inside my brain along with improvement in neurological symptoms. However, its only a slight improvement wayy far from how it used to be. 2 days later I will start taking iv ceftruxime for bbb passing ability. I think its the last remedy that can help my neurological symptoms.
Posted 7/20/2024 2:31 PM (GMT -5)
Your brain can continue to heal for several years after a brain injury.
I consider Lyme to be a brain injury.
My “regular” doc said improvements can continue for 10 years…

I’m counting on that - my brain was severely impacted by Lyme and coinfections. I went one year without a diagnosis.

I am now in remission and am back to working and earning a pay check.

Am I the same as prelyme?
No
Physically I am.
Cognitively - I still have short term memory issues….but it’s better than it was 5 years ago
Posted 7/20/2024 4:51 PM (GMT -5)
I recommend reading Real Food Rebel’s story on her website and Dr Bill Rawls’ story on his website for encouragement.
Posted 7/21/2024 3:21 PM (GMT -5)
Well, you have pretty good response so far to your question.

I would just like to emphasize that it’s more than just killing the critters which you probably understand anyway by now.

There is a reason why a good portion of adults who get Lyme disease recover from it quite quickly -that is because they didn’t have some sort of existing immune dysfunction to begin with. Kind of like Covid why did it kick some peoples areses and others it just like a flu and it was over with. Answer, their immune system is not “normal”.

So to be optimum, you may have to modify your diet lifestyle, etc. Which I’m guessing you already know.

When I have a really good day now, it really feels like a gift.

After having tick infection symptoms for decades, I felt better after 1.5 years of antibiotics and I kept feeling better till six years after that.

—————-

(But then my immune dysfunction which is most likely inherited and has a very long name, started rearing its head,….so I am “health challenged” again, but not as bad. Slight brain fog, low energy, Periodic gut and insomnia issues are part of my life and various degrees depending on the day. I can’t work a high stress job with the “spotlight” on me. I am under employed and work in the background and somewhat invisible, which is the only way I can really work full-time In the modern world.**** But, I still function better than In my lowest time with lyme.)****

Post Edited (astroman) : 7/21/2024 8:13:00 PM (GMT-8)

Posted 7/22/2024 6:20 PM (GMT -5)
Have you treated dysautonomia and MCAS directly? That's how I finally got better. Happy to share more, just first want to ask what you've already tried for treating and managing those conditions.
Posted 7/25/2024 11:00 PM (GMT -5)

astroman said...
Well, you have pretty good response so far to your question.

I would just like to emphasize that it’s more than just killing the critters which you probably understand anyway by now.

There is a reason why a good portion of adults who get Lyme disease recover from it quite quickly -that is because they didn’t have some sort of existing immune dysfunction to begin with. Kind of like Covid why did it kick some peoples areses and others it just like a flu and it was over with. Answer, their immune system is not “normal”.

So to be optimum, you may have to modify your diet lifestyle, etc. Which I’m guessing you already know.

They are studying post covid cases a lot now and I heard they have found out it has a lot to do wether you previously had EBV or not.. that there is some strong correlation there...
Posted 7/26/2024 12:44 PM (GMT -5)

MooseSafari said...


They are studying post covid cases a lot now and I heard they have found out it has a lot to do wether you previously had EBV or not.. that there is some strong correlation there...

any links to that - would be interested to read more
Posted 7/26/2024 4:41 PM (GMT -5)
Since I have primary immune disorder, I should’ve got long Covid, but I didn’t as far as I can tell. I had regular Covid, which was like the flu and steroids as far as bodyaches. It actually increased two of my thyroid antibodies and they went back down three months after . the doctor sent that information to whatever Government agency would like to have known that

To the best of my knowledge, I never had EBV.
Posted 7/26/2024 5:56 PM (GMT -5)

saraeli said...
Have you treated dysautonomia and MCAS directly? That's how I finally got better. Happy to share more, just first want to ask what you've already tried for treating and managing those conditions.

I have been having huge brain fogs even when I did most strict carnivore diets it has been like mental asylum experience. It didnt matter what I tried I was always gettint huge brain fogs without break for 3 years. I tried cromolyn sodium, h1, h2 antihistamines. I must have lost a lot of intelligence only by those mcas brain fog experiences. Then, as soon as I started for babesia treatment it started to resolve. I mean there are people who resolved their mcas by treating lyme or babesia as far as I know. If thats not the case people stabilize it for the rest of their lives unfortunately I guess… the thing with dysautonomia is its a life long experience but it can be relieved if you find secondary condition like lyme, bartonella and babesia. Since you surpress further damage to nerves by treating those infections you leave room for recovery phase. You might use benfothiamine, r-ala, b9, b2, b12 for recovery. Small fiber nerves have tendency to regenerate higher than cns nerves, so its a good news if you start treating co-infections. Sad story occurs when its idiopathic, not finding remaining co-infections just makes mcas and dysautonomia float around in my experience…
Posted 7/28/2024 12:21 AM (GMT -5)
Haha sorry I might have been a little trigger happy with that statement. Got a close friend that is really sick and she told me there was a new study showing this, and she did have ebv before.

Will ask her for a link to the study..


Garzie said...

MooseSafari said...


They are studying post covid cases a lot now and I heard they have found out it has a lot to do wether you previously had EBV or not.. that there is some strong correlation there...

any links to that - would be interested to read more

✚ New Topic ✚ Reply