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At home sleep test results
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Lyme Disease
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loski01
Veteran Member
Joined : May 2020
Posts : 655
Posted 9/18/2024 2:13 PM (GMT -5)
Summary : “mild obstructive sleep apnea by RDI (5-14.9) but normal AHI with no significant hypoxemic obstructions.
There was decreased sleep efficiency and decreased sleep latency”
Interestingly that night I woke up with my weird headache phenomenon around 4-4:30, and my o2 had dipped into the low 90's high 80's towards the latter half of 3am. Couldn't fall asleep after that for 1-2 hours.
Anyone here find treating sleep apnea helpful? Really hoping this might be a big missing piece.. although it doesn't sound like the main reason holding me up but it also doesn't sound like it's helping my body recover either.
I should also mention my dad and his dad both have sleep apnea.
Garzie
Forum Moderator
Joined : May 2017
Posts : 6567
Posted 9/18/2024 5:16 PM (GMT -5)
Sleep is so important to health and immune function i really think its worth treating sleep apnea if its present.
Especially if fighting an infection.
I am similarly lioking for pote tial blocking factors and wondered if i might have sleep apnea also.
I have had people tell me i snore REALLY LOUDLY.
I did an iphone based snorelab thing a few weeks ago and it showed some moderate snoring at times in the night but my fit it thing shows low O2 saturation variability so it doesn't look like i have too much of a problem.
curious how the home sleep study works.
loski01
Veteran Member
Joined : May 2020
Posts : 655
Posted 9/18/2024 6:57 PM (GMT -5)
My PCP ordered it. Was a finger o2 monitor that wires into a watch like structure on your wrist - which also wires to a sound monitor that you place on your chest. That all connects to a phone app. And then the company has people who make a report etc. it’s rather thorough.
I have an appt with my PCP tomorrow to discuss treatment options.
Garzie
Forum Moderator
Joined : May 2017
Posts : 6567
Posted 9/19/2024 6:00 AM (GMT -5)
interesting - and not too invasive
but overall - seems not v different to what a fitbit and phone app are doing wirelessly
let us know how the appt goes and treatment experiences
BTW one of the reasons i looked into this is a paper i read ( may have posted about
it here in the past ) that showed even mild sleep apnoea actually causes increased gut membrane permeability via hypoperfusion-reperfusion injury to the tiny blood vessels in the gut lining - and we know of quite a few downstream effects on inflammation, food intolerance, immune disruption, auto-immunity that overlap with chronic Lyme and can flow from that
pinkblossom
Regular Member
Joined : Jun 2023
Posts : 410
Posted 9/19/2024 9:31 AM (GMT -5)
I have been looking into this as well and the home testing kits available in the uk,
I would be keen to know your doctor recommendations Loski,
I think usually a CPAP machine is the recommended treatment, is that correct?
loski01
Veteran Member
Joined : May 2020
Posts : 655
Posted 9/19/2024 3:14 PM (GMT -5)
Garzie - I'm not familiar with the fitbit but I have used apple watch versions of such things. This was FAR more comprehensive and detailed than that was. The o2 and heart rate monitoring is continuous vs snapshots every so many minutes etc. I wouldn't have caught this from my apple watch. I have been told in the past I snore lightly on occasion - but this rather definitively showed I'm stopping breathing.
BTW the device I was ordered is the Watch PAT ONE by itamar medical. I'm sure there's several similar things out there.
Pinkblossom- Yes my PCP ordered me a CPAP with auto titration today. There can also be some oral appliances but this was his rec. Wants to follow up in 4-6 weeks.
I'm cautiously very excited about
all this..
pinkblossom
Regular Member
Joined : Jun 2023
Posts : 410
Posted 9/20/2024 5:21 AM (GMT -5)
Thanks for sharing about
the device you used loski,
I found it in the UK so will leave here for anyone who is interested
click here for link
Would be interested to hear how you get on with things as you move forward
trkane
Regular Member
Joined : Nov 2021
Posts : 151
Posted 9/20/2024 6:21 AM (GMT -5)
FWIW I tried the Fitbit and discovered that I could not sleep with something on my wrist. Therefore I doubt I could sleep with anything attached to me. Something to think about
before you spend money on anything that attaches to your body.
Garzie
Forum Moderator
Joined : May 2017
Posts : 6567
Posted 9/20/2024 6:22 AM (GMT -5)
yep i understand - snapshot vs continuous or at least more frequent samples ( all digital devices are effectively sampling - and only the sample rate varies )
still as a basic screen - measured over many nights - i would have thought even the Fitbit would catch some low O2 events
the other idea i had was to set up a go pro and video myself for a couple of nights to see just how bad my snoring is or if there is any actual stopping breathing
loski01
Veteran Member
Joined : May 2020
Posts : 655
Posted 9/20/2024 2:27 PM (GMT -5)
PB - That's it! Since my PCP ordered it my insurance is covering most of the cost here in the US.
trkane - yeah if you can't sleep with a smart watch this kit is definitely a bit more than that.. but it's also a lot less intrusive than a formal sleep study. And those are really your only options for diagnosing something like this. Insurance wouldn't cover a CPAP without it.
Garzie - In more severe cases I would definitely expect it to. My diagnosis as mentioned was with "no significant hypoxemic obstructions". So my o2 dropping isn't really a "significant issue". It's the Obstruction causing a higher heart rate to keep up o2 saturation and then the body lightly walking to fix obstruction - preventing one from deep continuous sleep. So many of my remaining symptoms overlap with descript
ions of OSA, will be very interested to see how the next month goes. Feel like I'm waiting on a new toy with this cpap order lol
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