Posted 9/27/2024 4:13 PM (GMT -5)
hello and welcome to the forums
absolutely none of us want to do a long drawn out treatment
unfortunately, after around 6 months - once these infections become chronic - unless you are extremely fortunate ( and you have no way of knowing if you will be in this v small percentage of people up front ) - there are no short but effective treatments. so long treatments are the only effective ones.
people who tell you otherwise are likely to be trying to sell you something - or are simply misguided
i don't tell you this to diminish your hope or optimism - but to give you a sense of realism of what to expect
- and in doing so - help you opt for a treatment that is likely to work
(people will find it hard to endure 2 years of consistent treatment if they somehow believe treatment "should be" shorter or easier)
i wish it wasn't so - but its better to know what to expect and plan accordingly - than to have false hope that is repeatedly dashed
for info - the closest we have right now to a relatively quick but effective cure is Dr H and his high dose pulse dapsone protocols - which is 2-3months long - but there are some provisos
-he doesn't use it unless people have already failed standard antibiotic combinations and lower dose dapsone protocols -
and
-its a very intensive program needing close supervision by Dr H - or a practitioner trained by him -
so its not really accessible to many
-not everyone responds well - it often has to be repeated for several cycles with gaps in between - which turns into a long treatment again
in general once lyme is chronic - and co-infections like Bart or babseia or anaplasma are involved ( the majority of cases ) something like 2 years of combination antibiotic therapy - along with lifestyle changes - supplements and supportive therapies is a reasonable expectation for most people
it can take less - and it can take much longer - but there are studies recently showing severely ill people taking typically something like 2 years on average - this is with good diagnosis of infections present and with tailored targeted protocols for each patient.
progress is often determined not only by the antibiotics used - but also by identifying and rectifying other potential blocking factors - holding the patient back. these can be anything from hormonal issues, nutrient deficiencies, gut problems, stress, sleep issues, undiagnosed co-infections etc etc -
speaking of co-infections - bartonella in particular is highly associated with frank psychosis - especially in young adults - so this could be a factor in your daughter's case
bartonella is often very stubborn and often needs different drugs vs lyme to target it effectively
some LLMDs say that once a person had made some good headway - even if the relapse its rarely all the way - and recovery the second time can be somewhat easier
i hope its of some help
feel free to ask more questions - we are a helpful bunch here