Methylene Blue

the liquids are just dissolved MB in water or water ethanol mixes - not really tinctures

these are typically too dilute to allow even the lowish doses used in Lyme, bart etc ( 100mg / day ) - check the maths and you will usually find the amount of liquid you would need for 100mg dose a day is not really feasible or cost effective

secondly - the purity issue is a very serious one with MB - as the manufacturing process includes heavy metals - and unless its specifically purified for human pharmaceutical use - these are left in the product
( it has other uses - antifungal for aquaria, commercial dye etc which do not require the additional purification )
for this reason you should only ever use real Pharma grade product
( should be marked BP, USP, etc )

so that leaves 2 options

1, compounding pharmacies making capsules to order
2, buy Pharma grade MB powder and make your own capsules

are you in Europe Lymie?

OK - not to worry - was going to share a source over here

Bhava
i'm not sure its a good idea to advertise it

if you add an email to your profile i will email you

yeah - i think where bart is present its often the infection driving most symptoms and one of the hardest to get rid of

but i also think that its often Lyme that lets Bart get established - by weakening the immune system in the first place - so its a kind of six of one and half a dozen of the other situation

for this reason i think you are right to keep the pressure on both - this is also what Dr J does

i think it requires a very concerted effort to get rid of it (unless you are v lucky) -
i do not think there is any one magic treatment that on its own is enough -
so i advise against chopping and changing in the hope of finding the "magic bullet"

instead i think its a war of attrition - the disease trying to wear you down - and our job is to find ways to gradually chip away at it to lessen the infectious load - and at the same time to build ourselves up.

biofilms and fibrin are important parts of Lyme and bart - so i would include things that target that from several angles - eg bromelain or lumbrokinase are good for fibrin deposits ( i saw dramatic reduction in fibrin deposits in my blood via microscopy after 6 weeks of bromelain - and lumbrokinase is much stronger )

you have been sick as long as me - so i would also caution about expecting fast results - or rather - against getting dispirited and changing treatments when they do not produce results as fast as "expected"

the "expectation" of fast results can work against us

realistically - if a person has been sick for nearly a decades - then even the best treatments we have so far today are likely to be very slow -

the issue i see is that for people like me ( and likely you ) who have been sick for many years - if we are expecting significant results in say a few months - like a significant step such that it will be easy to spot subjectively -
that may not be what actually transpires - even if we are on the right track - so we might easily conclude "its not working"

in reality we humans are designed to continually adapt to our circumstances - so we are very bad at detecting slow changes to our norms - and so a person could be moving forward at the expected 1-2% a month - but feel like they are not changing at all - or in fact going backwards - so they could give up on a perfectly good regime in the hope of trying something else that might be better

this slow rate of change is actually very hard to detect - especially when there are day to day and week to week variations - not just a steady increase

i have had to go to some lengths to find ways to reliably track small improvements over time in a non-subjective way - and be able to see definitive progress - choose which things help and to keep doing - and which things dont

i wish it was simpler - i know it is for some but i just wanted to put out there that if you have been sick for years and failed several treatments already - then correctly setting expectation and having a means of tracking small changes over time in a very fine grained and objective way is likely to be key to success.

i'm kind of rambling - but hopefully you get something from it

i think full recovery or something very close to it is possible for most of us - or at least i would like to think so

of course secondary conditions like auto-immune disease etc may not necessarily reverse once treatment for the infections is complete - for some people it may, in other cases maybe not - so that one is a bit of an unknown - but we know for sure it will not resolve while the infections are raging

as for the rest - the main typical stuff like pain, sleep issues, fatigue, joint pain, brain fog, physical deconditioning, lots of muscular skeletal issues etc - i think these will most likely resolve once the infections are in remission/ held back in check by the immune system.

i just think its likely to be slower and more gradual than most people think

pain syndromes are perhaps another edge case- where we don't fully understand the mechanism - could be auto-immune or could be neurological - or something else - so again it becomes hard to say what will happen - but again having the infections there needling the system is likely to maintain it - and we have at least a chance of it resolving if that irritant can be taken away
or perhaps its a case of clearing the infections and then bringing other modalities to bear - once the main infection issue is out of the way

i wouldn't give up hope of a full recovery - or something so close to it - where we can function better than most people our age ( most people have some health issues as they get older in any case - but if you have been batting lyme you will likely have learned how to look after your body better than 95% of the population out of necessity)

for me my physical performance seems to be increasing ahead of actually feeling well
so for instance i can make myself do 1hrs workouts with weights most days - but also still spend several hrs every day feeling pretty rough and having little energy to do normal things

i hope that as things progress i spend less and less time feeling off - and it just kind of fades into the background and i find myself doing more in my day

BTW - i don't do the tracking thing because i like it - or find it rewarding
i am just committed to doing whatever it takes to get well - however unpleasant / or tedious it is
since i am 100% on my own and self treating, no doctors at all - i absolutely needed some objective way to guide my treatment trails and treatment decisions.
subjective measures were just not reliable or repeatable and i needed a written record so when patterns or issues repeated i could go back and learn lessons from past events
in the past without something like this - when i got worse/ or better for that matter - there would be 2 or 3 or 4 possible causes and it was never really possible to work out which thing was responsible - and living with the constant uncertainty and confusion was super tiring and frustrating

since tracking things more systematically - i can usually figure out what's going on
which overall, as well as helping me guide my treatment better, feels much better - less blown by the winds of chance and more in control - steering my own ship[
its time consuming - but its been tremendously useful - beyond my original expectation

i would encourage anyone self treating to do some version of this

@garzie, thats pretty interesting, wiht bart symptoms but lyme is the infection who suppressed the immunsystem. So the first time when i was getting symptom free. I took i guess 4 monhts mino+quensyl. I felt like crap, all the time, no improvement just worse. So after 4 months my doctor said lets try to add levofloaxin ( i know nowdays its danger, but 15 years ago nobody knew it) so in 4 weeks, i was von bedridden to almost fully function. I always thought it was because of the levofloaxin. But i think thats not true, the hole 5 months suffering the mino+quensyl killed so much of my lyme bacteras, that my immunsystem starting working again and the push of the levofloaxing killed the barts in 3 weeks.... but because of the treatment bevor. So what im trying to learn about is, dont focus to much maybe on co infections, try to treat lyme in all stages (combi with tini or quensyl). and dont give up!

Bhava123 said...
Dear Garzie,

could you please send me informations and links on MB eshops in EU, that you have mentioned, here, to this email? sun-and-moon123@centrum.cz
Thank you, best regards
B

email sent