My syptoms
Neuroinflammation
derealization
tinnitus
brain fog
CFS
fibromyalgia
Dental Stones
phlegm in the throat
burning in the nose
Cholepancreatitis
Biliary gastritis

i hope its of some help

That doesn't sound very encouraging. Is there anything i can do about it?

Maybe it's just secondary infections. Lyme is a kind of bacterial HIV

as i mentioned - unfortunately - if thats what it is - the options are to try gall bladder flushes - or surgery

its possible that secondary infections are involved - once tissues become inflamed and even necrotic that would be pretty common ( DR J described the removed gall bladders as exactly that) - but such things do not tend to respond well to antimicrobials -

BTW i think its a mistake to tar all doctors with the same brush - some LLMD's have only got involved because close family members have become ill with lyme and its altered the course of their lives so that they have dedicated themselves to helping people with lyme.

as in any area - there will be good ones and bad ones - but the good ones still have to earn a living - and after 7 years of training it seems fair that they should expect to get paid for their work.
clearly, if they were only interested in the money there are much easier areas to practice in for more money - so i think most are well intentioned. the fact that they have departed from conventional dogma at some considerable personal risk to their livelihood - makes them significantly different

in terms of the alternatives - i am self treating - but its a very challenging path indeed - both from a knowledge standpoint - where it takes years of researching to know enough to do it well enough to make real and consistent progress - and also from an experiential perspective - where you are entirely on your own - not relying on or supported by the judgement of anyone else and doing it all for the first time in your life. its a long and lonely road.
most people who do it seem to bounce around from treatment to treatment, going down rabbit holes, getting sucked into pseudoscience or scams - having ups and downs - and making little or no real progress.

its a personal choice - and can be rather expensive - but the benefit of a decent LLMD is they have seen 1000's of patients - know what to expect - what works and what doesn't - when to push and when to back off - how to treat the inevitable hiccups along the way etc - if you can access one its usually the quickest and most likely path to recovery. i would have gone this route if there were any decent LLMD's in my country - self treating was only out of necessity.

all the very best in your journey

And I am not opposed to long-term AB regimens, but not in high dosages, as prescribed by these PROFESSIONALS from ILADS

Feeble_Tiger said...

What helps you personally with cholecystitis?

as i described above - liver flushes cured my gall bladder attacks

Garzie offered some helpful suggestions, but I can share a few more ideas, in case something resonates. I understand your distrust of the medical industry, and I'm sorry you've had such bad experiences. It's terrible to need help for so long and not get it from the people who are supposed to be helpful!

When I hear that GI symptoms (including biliary tract symptoms) arise after someone uses pharmaceutical antimicrobials, my mind goes to the microbiome, detox pathways, and mast cells.

Do you have a sense of how your microbiome is doing? Do you supplement or otherwise consume beneficial bacteria, eat very little sugar so as not to feed candida, eat fiber for prebiotics, have a complete bowel movement every day, and so on? I found stool testing from Genova to be expensive but worthwhile for learning about the ratio of beneficial to pathogenic bacteria in my gut, how much candida was there, etc. so I could address dysbiosis. It's possible for issues in this area to contribute to the GI trouble you mentioned, especially if you have SIBO or candida overgrowth.

The phlegm, nasal burning, and tonsil stones can be associated with reflux. Is GERD part of the picture for you?

Something I often encourage people to look into is mast cell activation syndrome. It can be basically a "chronic herx" in terms of symptoms. Once I addressed MCAS, I no longer experienced brain fog, fibro, neuroinflammation, CFS/ME, sore throats, or derealization. Many GI symptoms went away as well. The difference was dramatic for me. If you have MCAS, then that can cause a burning nose as well. Reducing your histamine load (low-histamine diet, reducing triggers, etc.) and increasing your histamine tolerance with mast cell stabilizers (prescription, over-the-counter, or supplements) is the way forward, if you have MCAS. I recommend the book Toxic by Neil Nathan if you have not read it yet.

When I had issues with gallstones and related biliary tract inflammation, this might sound simplistic (I sure would have thought so at the time) but certain yoga poses intended to address gallstones and drinking unfiltered apple juice were what finally helped move things along so that I could avoid surgery.

Another thing I want to mention is the importance of making sure you move your bowels completely every day. Constipation (even for a day) is problematic because it can lead to dysfunction and inflammation in the biliary tract and GI tract, especially when you are herxing from antimicrobials and really need to be passing endotoxins out of your body. If you have gastroparesis that keeps your gut nerves from signaling properly, or some other condition that makes elimination difficult, then it might be worth focusing on that so that your GI tract can gt back to functioning better.

I hope you find some relief soon!

saraeli said...

I hope you find some relief soon!

1) I don't use sugar
2) i have MCAS all my life
3) Chronic HERX Is real, I've always had terrible symptoms, I can tell the difference
4)I do not know anything about the state of my microbiome from a research point of view, but I believe that, like all chronicles, the condition is deplorable

brantheman said...
the guy claimed he was banned from healingwell in another forum lol.

I haven't said a bad word to you.

I really don't understand why I have such a severe course of lyme disease.

brantheman said...

Feeble_Tiger said...


dont turn things around here please. i tried to help and you started lying to me. am i out of here again as i do not put effort in such conversations.

I could have taken a screenshot to confirm my words, but now I don't believe you.

Garzie said...

Feeble_Tiger said...
I have Staphylococcus in my mouth, and after a broken bone, I got osteomyelitis. So much for secondary infections

around 94% of adults have staph in their mouth - its considered normal

BTW bartonella is known to cause osteomyelitis -

Are you sure bartonella causes a bone infection? It's just that I'm only familiar with it as a neuroinfection, just another intracellular friend of lyme

[quote= "Garzie"]
все лучшее

Yes, it looks like what I saw about osteomyelitis. Actually, I think you're right about the gut as the primary source. The only problem is that I already drank doxycycline after metronidazole and it got worse. What do you think, the wrong antibiotic?