Chronic Lyme Disease+Cholepancreatitis

Garzie said...
rifaximin is the antibiotic most often used for SIBO

I don't know, I've heard from many people with diagnosed SIBO that rifaximin didn't help them. As I understand it, because of lyme and CO, the immune system is rebelling against peaceful intestinal bacteria. In this case, what is the difference between SIBO or not, one way or another, only Antibiotics can help. The only thing I can't figure out is why I didn't help Doxy...

saraeli said...


An LLMD I saw for a while had patients successfully correct SIBO using only high doses of probiotics combined with a no-sugar diet.

It's interesting about the diet, I've heard a story about how a patient cured his gastrointestinal problems with a carnivore diet. It's worth thinking about

The Dude Abides said...
Hi, Feeble_Tiger. Here's a guide to using mCode tags, since the "Quote Post" feature has been broken on this site for a long time.

https://www.healingwell.com/community/mcode.aspx

It might help you to manually edit your posts, so they are easier to read when using the "Quote Post" feature. (Which is not required, of course.)

Many of us here have asked for the site owner to fix a variety of features on this site, but most have never happened. Then, this site was purchased by a healthcare company and there's been virtually zero response from them. Lots of claims and promises, but no follow through.

Anyway, feel free to use the above link, if you like. If not, that's okay, too. If can help or answer any questions, please let me know.

Garzie said...
rifaximin is the antibiotic most often used for SIBO

however its very expensive and rarely fully effective

there are studies showing herbal approaches work just as well

for clarification - if gut bacteria have migrated to and infected the gall bladder - that does not necessarily mean SIBO is present - as there are always bacteria in the entire length of the gut
when things get thrown out of balance by things like tick born infections - inflammation occurs and the immune system is disrupted - this can allow otherwise normally harmless commensal bacteria into tissues - and set up chronic inflammation / infection there.

so SIBO may or may not be present - and if it is - is not necessarily the root of the problem

to determine if it is a problem - sibo breath tests are reasonably good ways to determine if SIBO is present
the best ones use combinations of substrate and measure both hydrogen and methane

people with bartonella often report all sorts of gut issues - food intolerances, discomfort after eating, IBS type symptoms, irregular bowel habit etc etc - its not clear if they all have sibo or some other gut disturbance (it is known that bartonella infects the endothelial cells that line the gut - and this is likely to upset the gut barrier function and lead to many symptoms) - so it could be something along those lines

Feeble_Tiger said...
Thanks A Lot !

Garzie said...
its difficult to say because i know very little about your case - just a few lines here - so i don't know for instance
why you think you have SIBO -
or what investigations you have had already to help diagnose what it is you are dealing with -
or the severity of the gastro condition itself -
or what co-morbidities you may have along with those that you are describing
all of which would be a factor, for instance, in deciding if surgery was the right path to take - or if it was something i would just tolerate while focussing on treating the underlying tick born infections

many people have SIBO and go through life without even realising - something like 15% of the population - so i doubt its the root of your issues. if its present it wouldn't be helping - but on its own is not normally enough to make people very sick.

i have not taken fluoroquinolones. my most severe symptom was overwhelming fatigue and PEM - to the point that i was housebound - so i was extremely wary of anything which could make my fatigue worse / permanently damage me - like fluorinated antibiotics - the risk / benefit equation for that drug was just not worth it for me - especially as its v unlikely to be a one hit wonder for bartonella - and because there are other drugs that can target bartonella without that risk.

i have targeted bartonella with herbs, methylene blue, fibrinolytic enzymes and combination antibiotics - doxy, rifampicin, clarithromycin etc
i also have lyme and mycoplasma pneumonia - and auto-immune disease - and i went misdiagnosed for 5 years - so i am a slow responder - it takes multiple concurrent treatments for me to move forward - as well as significant diet and lifestyle changes
i have however made steady progress with this approach over the past year and am now at around 70% recovered - perhaps more on the good days

I hope its of some help

Garzie said...
i would like to help but you seem to be having a hard time accepting anything offered here.

as i have already tried to explain, gall bladder disease is rather common in the lyme disease community - you are certainly not the only one who has trouble with it - i have also tried to shed some light on the mechanisms involved.

here is a link to Dr J talking about his paper on gall bladder disease in lyme patients

https://www.facebook.com/jemsekspecialtyclinic/posts/6045894442149547/

Post Edited (Feeble_Tiger) : 10/13/2024 4:27:06 AM (GMT-4)