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Reoccurring body viberation sensation during sleep & waking up

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Posted 10/13/2024 7:48 AM (GMT -5)
Hi. I'm new to the group. I've been on treatment for 1 month (Atovaquone & 2 diff. Balance herbs). Before diagnosis i had really bad viberation sensation in my body during sleep and upon awaking, which went away with the start of treatment. It has now returned. I also high B 6 level (toxic) before treatment, which i completly stopped all B supplements. I just started Biotine & B12 back up, which I'm wondering if that could be the cause vs. Lyme. Just not sure. Anyone else have issues with viberation & or vit. B sensitivity with Lyme?
Posted 10/13/2024 8:22 AM (GMT -5)
hello and welcome to the forum

bartonella is associated with internal vibrating buzzing sensations according to Dr SP

its also common for symptoms to flare during treatment ( old ones reoccur - or get stronger - or new ones arise)

there are also some reports that bartonella actually produces vitamin B6 ( it has the gene to do so anyway) so i wonder if that could have been the cause of high B6 - or at least part of it

bartonella is often very difficult to detect with blood tests - unless you use the very expensive specialist labs

do your other symptoms match?

any linear rashes / stretch mark type marks
Posted 10/13/2024 9:10 AM (GMT -5)
Thank you. My Igenex test showed Bartonella IND 23.41. My BB.1 herb is suppose to help address it just in case I have Bartonella. I had a body torso body rash last year that my MD nor Dermatologist knew what it was. I even had a biopsy that was indecisive. No rash or stretch marks at this time. Thanks
Posted 10/13/2024 11:34 AM (GMT -5)

Goaway said...
Thank you. My Igenex test showed Bartonella IND 23.41. My BB.1 herb is suppose to help address it just in case I have Bartonella. I had a body torso body rash last year that my MD nor Dermatologist knew what it was. I even had a biopsy that was indecisive. No rash or stretch marks at this time. Thanks

I also had the vibrations from Bartonella.
Re: testing
My Lyme doc (actually two different Lyme docs) said diagnosing should be based on symptoms and the testing is used to back up the symptoms.
Band 23 is Lyme specific - only Lyme will make it show up.
Posted 10/13/2024 12:15 PM (GMT -5)
Thanks, Girlie. Apologies. Being new to the world of Lyme diagnosis, I'm not sure about the last sentence "Band 23 is Lyme specific - only Lyme will make it show up". Thanks again!
Posted 10/13/2024 12:27 PM (GMT -5)
Hi Garzie, Thank you very much about the the info on on symptoms can reoccur along with vit B. I will do some research. Also, can you tell me who is Dr. SP.?
Thanks again!!
Posted 10/13/2024 1:03 PM (GMT -5)
sorry - i wasn't trying to be cryptic

we try not to use the names of LLMD's here as a way of avoiding drawing unwanted attention to them - as most have been persecuted by medical boards for treating Lyme patients

in this case the guy is a well known Yale medical school educated LLMD and has book out

https://www.amazon.co.uk/Chronic-Hidden-Autoimmune-Pandemic-Healthy/dp/0358064716
Posted 10/13/2024 1:21 PM (GMT -5)
Garzie, Thank you! I understand. It's so unfortunate how the medical field turns away from truly understanding Lyme and many other diseases. After years of test, doctors and a TON of research, I finally requested a Lyme testing using the Igenex test. I hated to know I have a hard to cure disease, but grateful to finally know what I'm fighting. Thanks again!
Posted 10/13/2024 9:07 PM (GMT -5)

Goaway said...
Thanks, Girlie. Apologies. Being new to the world of Lyme diagnosis, I'm not sure about the last sentence "Band 23 is Lyme specific - only Lyme will make it show up". Thanks again!

Band 23 is Lyme specific
Meaning - if you have band 23 you have Lyme - or you had it
Posted 10/13/2024 9:20 PM (GMT -5)
Thank you!
Posted 10/21/2024 8:40 PM (GMT -5)
No Vit B issues that I know of, but I did have vibrations just before and while waking. That was an awful feeling. It felt like my nervous system was straining. It was very uncomfortable, almost painful. The times I remember, I was under a lot of stress, not getting enough sleep, and being awoken by lights or sounds or something before naturally waking. Cold temperatures also have triggered this, especially if my head got cold in the night. I suspect adrenal dysfunction is part of it.
Posted 10/21/2024 9:07 PM (GMT -5)

Goaway said...
Thanks, Girlie. Apologies. Being new to the world of Lyme diagnosis, I'm not sure about the last sentence "Band 23 is Lyme specific - only Lyme will make it show up". Thanks again!

If someone has positive band 23 - then they have or had Lyme in their system.
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