Neurologist apt

Lea777needinghelp said...
After waiting over 3 months!! I finally have my neurologist apt next week. For those who have followed my posts my main issue is tingly/numb sensations. I’ve been on a protocol with my naturalpath for over a month but still having the symptoms. I know it may take time but I’m still wanting to rule everything out with the neurologist as well.

My question is should I mention this to the neurologist? Or should I let him try to figure it out, I would think it would be smarter to do that.

But if I mention Lyme would he do testing for it?

What’s yalls experience with neurologist apts?

The neurologist I saw wasn’t Lyme literate so he didn’t help me at all.
He looked at the MRI and had nothing to offer.

Been there......done that......it was depressing for me.
The neurologist did a series of nerve conduction tests, but totally wrote off the results due to my activity as a runner. He also ordered a Lumbar Puncture & did a series of tests on the spinal fluid that was withdrawn. Of course, the ELISA Test on the fluid came back negative, as it will over 80% of the time. Needless to say, several of my tests came back abnormal for inflammation activity, but he again wrote that off & finally stated that he didn't know what the cause was. In the future, I will definitely have my reservations about going that route again........

If there was one (1) thing I would have changed, I would have demanded a Lyme PCR Test on my Spinal Fluid. From what I understand, there is a better probability of getting positive than with an ELISA Test.

hi Lea
good luck with the neurologist

a lot of people here are taking, or have taken prescription type medications for Lyme disease and co-infections.

it is probably the most common treatment approach

all the best

If I recall correctly, I think neurologists would likely prescribe Gabapentin. There are pros/cons to taking that drug (or any drug). I know Gabapentin has been discussed here in the past, but I don’t recall the details. I seem to remember a lot of people declining it.

No update because I was called by the neurologist office to reschedule due to dr being on call at the hospital all week. I’ve waited 3 months!! But apparently that’s not long enough for them.
It’s so annoying to have to wait months to see a specialist as if people weren’t suffering everyday.

I’ve been prescribed gabapentin by my primary dr, I’ve taken it a few times but didn’t notice a difference so I stopped it.
And my naturalpath told me not to take it that it’ll just cause more issues, she also advised to stop any thing like iburprofen/tylenol. Which I still have to take Iburprofen due to my pain/headaches. I do have Xanax from my primary dr but only take those when I really need them.

I’ve tried to stop omeprazole but I suffer from gerd/acid reflux/gastritis so it’s difficult for me. When I notice a lot of pain I get back on them for a few days. If anyone has recommendations to help with that plz share.

If you suffer from GERD and gastritis, and take ibuprofen regularly for pain, then it seems urgently important to find a replacement medication for the pain. Ibuprofen should not be taken by people with GERD, and I believe it even says that on the bottle. If you can't tolerate any other pain medication for headaches and pain, or find another way to treat headaches and pain, then be sure to take ibuprofen on a completely full stomach. Keep taking whatever helps to protect your stomach and esophageal lining while you figure this out.

GERD remedies: oral cromolyn sodium, D-limonene, famotidine, Pepto Bismol, potato juice, aloe vera juice, dietary changes, food and drink time limits, posture and sleep changes, addressing any dietary sensitivities or allergies, addressing mast cell activation syndrome (if applicable), no carbonated beverages or coffee or alcohol, addressing H. pylori infection, glutamine, manuka honey, probiotics, enzymes, chamomile, bitters, licorice (DGL), apple cider vinegar, zinc carnosine, slippery elm, and addressing perimenopause issues (as hormonal shifts can cause LES laxity).

I hope you find relief soon!

I learned about that GERD-ibuprofen connection the hard way.

Would it be helpful to do a search or start a new thread for pain and headache remedies, in case you'd like to stop taking ibuprofen?

Neurologists might have many other recommendations aside from gabapentin, depending on your symptoms. I have seen neurologists many times and have never been told to take gabapentin.