MS/ALS or Lyme?

MS/ALS or Lyme?

I've had HORRIBLE nerve problems for over two years now. Bed ridden. My nerves are completely screwed up head to toe. Permanent fasculations in my calves for three years and in and off throughout the rest of my body. Neuropathy, numbness, weakness in my legs, arms, stomach/chest, back, scalp. My vision is beyond words at this point. I would definitely say binocular vision. Severe Light sensitivity. Completely underactive bladder for over a year now. Have no urge or sensation to pee at all. The signaling is gone and very screwed up where I have to just push out drops to relieve the uncomfortable feelings I get down there every couple hours. I have SO much wrong with me neurologically. My Elisa/Western blot two years ago was negative with only a band 41. This summer I did igenix and had a igm band 23 and indeterminate for bartonella henslae. 4 months later another Igenix showing positive for Lyme with two igm bands being 23 and 31. A positive 160 titre for anaplasmosis. And indeterminate again for Bartonella Henslae as well as Bartonella Vinsonii and TBRF strain. I've been treating clinically this whole time based off symptoms so a year and half going on two years. I don't know what to think or believe anymore when it comes to neurological diseases. I'm so hopeless and sad.

hi Eric

you seem to be struggling with the uncertainty as well as the physical hardship

i think we can al empathise with this uncertainty aspect - especially when testing is less than perfect

i am wondering which specific tests you had done to infections - not all tests are equal - and am wondering if you post the test reports up here - whether you might be able to get a bit more input on what they may mean

you can blackout identifiable info - and i can post instructions on how to post images

Eric,

I am so terribly sorry that your condition and symptoms have been so awful. I am no expert on anything, but here are my thoughts.

1. I believe there are tests that can be done to eliminate the possibility of MS/ALS and such. I don’t really know how they are diagnosed, but I expect a neurologist could test for those. I just don’t know if the tests are direct or indirect.

2. I would consider the bartonella results as positive. Bartonella tests are often negative even when present, and your symptoms definitely suggest bartonella is present.

3. I have often suspected that when people have really severe symptoms, as it sounds like you do, that mold exposure may be playing a role in the symptoms and their severity. Mold and bartonella symptoms seem to have a lot of overlap.

Do you know if you are currently living in a moldy or water damaged home? Have you ever been evaluated for mold illness?

Mold exposure really does matter, especially with anyone who has Lyme, bartonella or other tick borne infections. Doctors who treat both mold and Lyme generally believe that mold needs to be dealt with first.