Long term Lyme

Hi there and welcome to HW

What lab did you test at?

And to answer your question, yes, many have had successful treatment after having lyme for a long time. Are they in remission? well remission is all relative.
Some peole get well with abx, some with abx and all natural healing and some got well just using all natural methods.

I was sick for a really long time and did the abx for 5 months. I was not getting well, but got much better when I did a more natural approach.
Do people ever get well from all the effects, well not sure. Only time and more research can answer this

The key is to research as much as possible and stay super healthy in order to have the best chance at recovery :--)

Jen

Hi. I was just diagnosed last year and was bit about 28 yars ago. I am trying oral first but am preparing myself for the IV treatment. I am getting new insurance.

georgegrl said...
I finally tested positive for Lyme after having been infected 20 years ago.

Congratulations on the diagnosis!!! I am very sorry to hear that you have been sick for that long!!

How many times were you tested before it finally picked up a positive? What test was it that tested positive?

Hi KeepHope and others.  I think we need to be recognizing herxes for what they are, but listening to our bodies at the same time.  If it feels too dangerous, talking to your doctor about lowering the dose or using something like Actos along with it might be helpful.  You might want to get tested for methylation pathway issues (which would hinder your body from ridding itself of toxins, and inform you to be on folate and other supps), heavy metal burdon's, etc.  Not sure if you already know this information.  For me, lyme (along with some other hiccups like I just mentioned) affected my endocrine system so badly that I almost died from adrenal crises.  So on the one hand I think one should push through some pain, but on another s/he must be careful.  Keep communicating with your doctor and close friends and family, and asking questions.  Do you have the gene that renders it difficult detox from Lyme?  Checking out your complement levels might tell you something as well (c3a and c4a).  My advice is, allow yourself to only 'give up' for a day or so (meaning, give yourself a break if you need it)... From researching, questioning, planning out pills, etc.  It will help you in the long to prevent giving up/total burnout.  The positive thing about Lyme and the Lyme community- There are a lot of options and a lot of new areas being studied.  I'm sending good e-vibes your way...

Tallison: You mentioned complement levels. With Lyme are they usually high or low?? thanks D

got bit around 20 years ago as a kid fishing....had it floating around never paying anymind till i crashed hard one day and basically couldn't walk! It's taken roughly 4 years to get back to some form of normalcy. Doxy didn't do it...Biaxin didn't do it...only a combo of Bicillin and diflucan did. i've been weaned off the Bicillin now to a maintenance once a month and haven't felt better. Yeast is still a major issue and it gives me neurological issues because doxy basically just destroyed my gut. Thinking of trying the salt/vit c treatment cuz a large percentage of sufferers are also infected with parasites(I get this weird creepy crawly feeling in the middle of the night..wakes me up at 3am like clockwork!...also had acne like cysts take over my whole back...i'm thinking that i must be infected with this also). I had a co infection of mycoplasma pneumoniae which took a while to get rid of...so it's a long hard road back. I can function now....on good days 85% to 90% normal. on bad ones 75% LOL.