Starting treatment today!! Help!!

I'm finally starting treatment today and I'm terrified!! If I hadn't had that bad herx from amoxicillian, I wouldn't be so scared. Please, someone, tell me something to make me feel better. I'm freaking out!

CajunGrl, take a deep breath and know that you are on your way to getting better.  Remember you are not alone.  You are stronger than you know, and you will get through this.

Good luck with your new protocol.  Keep us posted on how you are doing, okay?

 

Everyone,

Thank you so much. I'm just gonna write a short line because I'm not feeling too good but thanks for the positive notes. My mind was racing last night and fear took over. So far, so good. I'm just feeling bad. I don't think I'm herxing yet. Just having a bad day.

Thanks again everyone! You are all so very supportive. We all need that in our lives.

You're in our prayers, CG. Go kick those spirochetes' you know whats!

Are you back on the same med. or trying a different one?

The first time I took the Doxyclycline, I had to take Benadryl to tolerate it, because I broke out in itchy hives. The Benadryl helped with that, but did not add anything to my already nonexixtent energy level. I think the pain pills and muscle relaxers that I had been on prior to beginning the abx, were still in my system which may have contributed to the reaction.

This time when I was put on the Doxy. that didn't happen, but it wasn't getting rid of the symptoms, they just kept moving and changing. The IV ceftriaxone has helped and I feel better overall. I am hoping it was enough, but plan to go on herbal treatment to be sure.

It is ironic that you are starting treatment at the same time that mine is ending! Oh, and by the way, the PICC line comes out without even feeling anything at all! I thought they were just saying that, but it's true!

Ohhh, I guess I missed that detail. I hope it goes well for you!

I did find out the meaning of herx. The first several days of the IV I felt weaker and achier and worse all over. It's a good thing I knew what it was or I would have panicked! Then slowly I began to feel less and less aches in all the muscles and joints. The other symptom that had just started before I started the IV was that the new varicose vein in the side of my calf was throbbing and the whole back of my calf in that leg ached. All of that subsided gradually little by little. The only thing left is a little stiffness around my knees, and my back keeps bothering me, but I'm hoping that is from when I fell down the steps in March, when I was still having vertigo. The other symptom I had in March was the pain in all my nerve endings that felt sorta like bruises, but sometimes in my feet, sometimes feet and hands, and sometimes head to toe. The symptoms that I had in March subsided, but were replaced with the muscle and joint pain.

The symptoms kept changing, and the whole time I had the back ache, so I can't tell if that was the Lyme, or the fall, or my response to all of it, or all of the above. I go back to the chiropractor tomorrow. I wasn't up to going there in the past two months. Oh, and my lymph nodes seem to be going down too. That was the other part that worried me. Now I just hope the critters are dead and not just back in dormancy.

I want to start on the herbal stuff, but do you think I should wait or do it right away? I have to find the info paper on it.

That is understandable.

I am definitely going back on all of the supplements to boost my immune system, but not sure if I should wait to do the blend of herbs that is supposed to help fight the spirochetes. I remember there is teasel root in it and some other herbs. My reason for waiting would be to see if they are just dormant and give them time to come back out, or does that make sense? Should I post this as a new question?

To everyone:

I decided to stop my treatment until Friday. I am home alone all day until Friday because my husband works and my youngest daughter is babysitting all week. My oldest daughter doesn't live here anymore so I have no one to stay with me until Friday. I'm just very scared of the side affects and I want someone here in case anything happens. I kinda feel like I let myself down in a way. But, this is just what I have to do for now that makes me feel better.

I will let everyone know how it goes on Friday. Thanks for listening.

CG, you have to do what you fell is best for you to manage, if that means to wait till your now alone then so be it. after all we do still need our saftynets. I would be willing to bet thats your hubby. wishing you the geartest of luck when you do start your treatment,who knows we may be starting at the same time and can help each other out.

There is a difference between being cautious and safe and unreasonable fear. You have to do what is right for you, and you have valid reason for your anxiety about the meds!

We are all here with you!