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Just a little extra about myself

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Lyme Disease
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Posted 7/19/2009 1:00 AM (GMT -5)
Just in case some of you are wondering....

I started having Lyme symptoms in 2003. It started with panic attacks, anxiety and heightened senses. It wasn't until 2005 that I started researching all of the symptoms I was having which now included flu-like symtoms, brain fog, worsening menstrual cycles, rage, depression, etc. I was on another board then and that's where I met our long time member, Ticker. She is the one that basically told me to check for Lyme. So, although I just recently started treatment, I am not new to this. I've been researching since 2005. And although I may not know everything about this disease, I do know quite a bit. I was told over and over by the doctors here that "there is no Lyme here." It wasn't until 2007 that I finally found an LLMD close to me. Our family finally had good insurance now too. And, although I was clinically diagnosed in 2007, I still didn't feel like I knew enough so I put treatment on hold so I could figure it all out.

2008 came around and I felt alot better so I pushed Lyme Disease out of my head and continued on with my life even though I knew Lyme symptoms come and go. I delt with the very few symptoms I had going on at the time. I could function. It wasn't until august of 2008 that I was really starting to feel bad again. Coincidently, I was put on Amoxicillian for a bladder infection and herxed really bad. I knew then that it was time to face this disease head on and that's what I'm trying to do.

I just wanted you all to know that I do know alot about Lyme Disease. I wouldn't have accepted the Moderator position if I didn't know enough. I've also run forums like this before. It was a weight
loss forum that I ran for almost 2 years. I didn't just jump into this Moderator position just for the
fun of it. Although, I like having a good laugh...I also LOVE helping others. That is just me and I
have a big heart. So, if you see me posting alot, it's because I feel like I can contribute something
to that post even if it's just a hug:)

I would also like to say how very hard it is for 1Bitten and I to run this forum and make sure
everyone abides by the rules and still be friends with all of you. We try VERY hard to make
everyone happy and we volunteer our time away from our families, to do this.

I truly LOVE this board and the people on it. All I am asking is that you all understand where we
are coming from. If you are corrected for anything, it is not out of spite or anger. It is because we
are doing what we are told to do. We are not perfect and are trying the best that we can. Please
respect that. You all know I love you guys:)
Posted 7/19/2009 1:06 AM (GMT -5)
I think it's about time someone gave YOU a hug!

:) You know I love you!
Posted 7/19/2009 1:09 AM (GMT -5)
Thanks darling;) You know I care about and love you too! You remind me so much of my own daughter. I just want to squeeze you!
Posted 7/19/2009 1:38 AM (GMT -5)
Thank you for sharing your story. I would love to see a permant thread where everyone could tell there story if they were comfortable.

I love all the information and opinions I get here.

Thank you for taking the time.

Posted 7/19/2009 1:51 AM (GMT -5)
Really Lyme,

Thanks hun. I just want everyone to know that I go through things right along with everyone else. And I'm not new to any of this. I've been suffering for a long time now. Going to doctor after doctor. Being used as a pin cushion. I know first hand how frustrating this disease is.
Posted 7/19/2009 3:27 AM (GMT -5)
CG, i wouldn't mind being a pin cushion at all, if the 3 different Drs i am seeing now would all get on the same page so they would stop doing the same test over and over again. when 1 does it and its positive the next one doesn't believe it and then redoes it.

its a pain needless to say, and also a huge wast of time and money. just in the last yr alone i have had about7 tests checking for RA. all but 1 came back as normal and 1 was lost.

i have had 5 CBC tests and they all show elevated WBC. only other thing they have found off was my cloistral, witch my trigs are way high 415 normal is between 50-150 and by B12 was a lil on the low side of normal at 240.

then i have the eye issue going on to top it off, yet 3 different eye specialist say i have 20/20 vision, then why is everything within arms reach blurry? they sure as heck don't know.

frustrating you say.. Lyme gives a hole new meaning to the word!

1 day soon i pray that all Drs will get on the same page and recognize Lyme for what it is, and treat it as it should be treated and NOT pass the buck off on someone else.

¤°´¯BIG.¤*¨*¤(¯`´¯)¤*¨*¤.Hugs¯`°¤.
Posted 7/19/2009 3:49 AM (GMT -5)
RD,

I hear you loud and clear! I'm gonna still try to help you as much as I can. I need to get you to send me those results so that I can bring them with me to my appointment. And I'm still waiting for the doctors name in Texas. I'm going to make me husband call that guy again.
Posted 7/19/2009 10:29 AM (GMT -5)
AS always, CajunGrl, THANK YOU for all that you do!  It seems you are so busy here, which must be very difficult, as ill as you are.  All of your knowledge, experience, passion, compassion and sympathy are truly appreciated and you are a real asset to this forum.
Posted 7/19/2009 1:17 PM (GMT -5)
I really appreciate the time you guys spend in patrolling the forum. It is a tough job that I certainly would not want to do. And CajunGrl, you are always so upbeat and positive, which is refreshing. I think most of us could use a dose of uplifting happiness, LOL! Thanks for all that you guys do.

Heather
Posted 7/19/2009 1:58 PM (GMT -5)
CG i sent you a few emails with all my reports :)
Posted 7/19/2009 2:31 PM (GMT -5)
CG, I think you're doing a fantastic job. I realize how much you're dealing with and appreciate all your hard work although I don't know how you do it. THANK YOU!!
Posted 7/19/2009 2:56 PM (GMT -5)
CG,

We love you too! I can't get on here every day, so I feel like I'm missing something. Was someone giving you a hard time or felt like you were? Your caring shows in all of your posts. It is amazing that you can do this and be so suportive even while struggling with your own treatment and healing process.
Posted 7/19/2009 9:32 PM (GMT -5)
Hey guys! Thanks for all of your support!!! I care for each and every one of you. You all are always there for me when "I" need someone.

I'm upbeat and positive? Wow! I didn't think that of myself, haha! Thanks for that!
Posted 7/19/2009 9:42 PM (GMT -5)


I'm upbeat and positive? Wow! I didn't think that of myself, haha! Thanks for that!

lol...a fine example of your positivity...HAHAHAHA
Posted 7/19/2009 9:50 PM (GMT -5)
Hahaha Jen!
Posted 7/19/2009 11:04 PM (GMT -5)
CG-

You (and 1bitten) are both doing awesome jobs! You're extremely friendly, and helpful...Just reading your posts is often like getting a long-distance hug. So thank you so much!
Posted 7/19/2009 11:26 PM (GMT -5)
Awwwww Nicky, you're a sweetheart. Thank you!
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