HealingWell
Search Close Search
☰

herx?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/19/2009 12:00 PM (GMT -5)
hi

I amon my 4th week of amoxixillin 2mg. daily - I am wondering if I am herx. I would like your opinions please:

  started - right eye felt blurry/twitchy in outside corner - that passed - entire body itching/tingling/little stabbing sensations - lasted about 36 hrs.

 pain in right wrist {no swelling} woke me up - couldn't get back to sleep - stopped suddenly.

  pain in entire right side, esp. hip/thigh - moved to head/neck then to left side

  very bad pain in left-back rib cage - too painful to sleep.

  pain also now moving to chest area

  anyone here think I am herxing - I pretty sure I had herx whilst on doxy. but it was different to these symptoms.

 thanks - gorbs

Posted 7/19/2009 1:05 PM (GMT -5)
Hi Gorbs,
I too am on 2,000mg. of Amoxicillin daily. I am herxing, no doubt about it. Same sort of symptoms as yours. My muscle and joint pain increased as soon as I increased my Abx. doseage. I added a couple of drops of Samento and Cumanda into the mix and my scalp was tingling and my left eyelid started to twitch. So yes, I think you are herxing. I am looking at it as a positive. I am pushing fluids, exercising as much as I physically can. I just got back from Target with Epsom Salt and Hydrogen Peroxide to start my detox baths in earnest. I hope this helps my joint pain. I wish you all the best.

Heather
Posted 7/19/2009 1:07 PM (GMT -5)
Gorbs, I am sorry and hope that your herx ends very soon! What do you and Stunned think about amox and co-infections?
Posted 7/19/2009 1:21 PM (GMT -5)
Do you mean Amoxicillin in treating co-infections? I am not sure. My co-infection panels came back negative. Well, the Babs AB was positive, but the f/u blood smear was negative, giving me a negative result. My LLMD feels that my Lyme bacteria caused the Babs. result to be off. I am going with what he says for the moment. I really do not have any of the Babs symptoms. I would have guessed that my Bartonella would have been positive, go figure. I see him again the first week in August to have blood re-drawn and discuss what medicine to use next.

Heather
Posted 7/19/2009 8:25 PM (GMT -5)
OMG! I am so sorry to hear you are not feeling well but so glad to have read this right now as I am feeling horrible with almost the exact same symptoms. I have been sick for over 3 years but just diagnosed in March. I have been on 3000 mg. amox for over two months but dr. just added probenecid(?) which he said will make antibiotic stay in system longer and make more potent. Since he added this my knee is killing me, my ankle gets sharp pains, and now I have this horrible new pain in my right rib cage area to add to all the already horrible numerous symptoms. So so scary to try and figure if the lyme getting worse or herx. I haven't tried any detox other than hot tub but may - did buy epsom salt and hyrogen peroxide now just have to get up the nerve to try detox bath.
Posted 7/20/2009 12:55 AM (GMT -5)
thank you for the replies - I have never had a pos. test for Lyme [Bb.] and have not been tested for any co-infections - my symptoms started following 'tick bite' - but I had never heard of lyme then.

sorry to hear 'you' are suffering - but I guess it is a good thing - that's how I try to look at it too - I suppose that a 'reaction' from abx. means we must have 'something'?? My symptoms are a lot like 'fibro.' as I understand - a lot of folks symptoms are.

my rib pain is like ' a pulled muscle ' type feeling and sore to touch - can't get comfortable - is this the sort of pain you are all feeling?
Posted 7/20/2009 7:05 AM (GMT -5)
Yes I actually thought I did pull a muscle but I've been trying to figure out things for three years now and there's never an answer other than lyme. It is sore to touch also and also up in my heart area which I have been massaging to get pain to go away. My knees and leg muscles are also very sore. However, I can still say I feel better than I did so I'm hoping I'm on the right track. I had three bands on lyme and tested positive for HME also.
Posted 7/20/2009 8:28 AM (GMT -5)

I have the same kinds of feelings.  Muscles feel sore to touch.  I get this along my ribcage.  Once I upped my antibiotics, the feelings/pains became more intense.  I even have a spot on my left ankle that if I touch it, I have tingling in one of my toes.  Weird huh?  I told my LLMD this week, when giving him the rundown on my symptoms.  He said it was most likely nerve.  I will say this.  I have been on the Abx. for 3 weeks now.  The last 3 days have been the best for me in quite awhile, as far as energy and mood goes. I am still having pain, but have been able to exercise more.  I did a detox bath last night and will do one again today.  I am trying to hit this from every direction. 

And it is so true about the Fibromyalgia.  That is what I was wrongly diagnosed with prior to finding my LLMD.  I know Fibromyalgia is very real to some, but for me, I was not buying it.  The infectious Disease Dr. I saw does not believe in chronic Lyme.  Even though I presented with 2 positive High titers and was very symptomatic with history of untreated tick bites.  He still was no believer.  Most of the time Fibro. is a trash can diagnosis, that they like to give you when they do not know why you are in such pain.  I feel so lucky that I found an LLMD that I trust.

I wish you both speedy healing and hope we will all  eventually be pain free!


Posted 7/20/2009 11:08 AM (GMT -5)
I haven't taken my abx. today - I am going to [hopefully] talk to LLMD. later this evening - my rib pain is easing already - will be interesting to see if it starts again when I take my abx.

my neck is creaking/cracking more than it has for a while - this was my first symptom following tick-bite.

I have been trying to figure things out for over 3 yrs. now too - it is such an 'odd' illness - I had never heard of 'fibro' either when someone suggested I might have it - that is what led me to research lyme - I was reading a book on 'fibro' when I came across a small paragraph on lyme - this was about 18 months after the 'tick-bite' - which I had forgotten about - when I read the lyme stuff it was like a bolt of lightening - wow - unbelievable what this little blood sucker can do.

I live in U.K. where lyme is almost unheard of!!

so you can imagine how my doc. looked at me when I asked about it !!!

I feel so lucky in that I have an LLMD. about 1 hour drive away - I know how far some folks have to travel.


I also get pain around my left chest/breast area - I think that is affected by hormonal stuff - but it has been particulary bad along with the rib pain - like that side of my body was turning to stone or something !!

best wishes to everyone x
Posted 7/20/2009 12:10 PM (GMT -5)
You are lucky to have an LLMD in the UK. I was just speaking to my Mother-in-law yesterday. She lives in England (my husband is English). She has no clue what Lyme is, and I have to explain everything to her. So I am glad your LLMD is fairly close.

You can definitely have hormonal issues with Lyme. My cycles have been off for a long time. I was always told, "it is stress." Or "Once you are in your mid-thirties this stuff happens."

I am glad you did your research and put two and two together. At least now you will be able to get the right treatment. I hope you are having a great evening.
✚ New Topic ✚ Reply