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I don't think I'll ever be cured 100%

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Posted 9/10/2009 1:21 PM (GMT -5)
Maybe I'm just having a week or two of those "down" days, but I honestly have come to the conclusion that the best I can hope for is coping with this condition. I feel so frustrated. My mind is so jumbled and I'm still working (thank goodness), but I know at times I mess up.

My mind and body both feel so violated (or maybe it's more correct to say invaded). I can't find a medical doctor to treat the normal stuff when they find out I'm on long-term antibiotics - which is a major problem. I don't want to be tested for MS - I don't have MS - I have Lyme Disease. I can't afford an MRI - I can't afford an echocardiogram. The right side of my body is numb, new little quirky things are constantly popping up.

I feel bad complaining - so many others are so much worse than I am. I guess I just needed to vent.

Does anyone think they will be cured?

Victoria

Posted 9/10/2009 2:59 PM (GMT -5)
Hi Victoria,

I'm sorry you are not feeling well and that you are also feeling "down". We all have our ups and downs and understand your concerns. I personally think that the word "remission" is a better word to describe the healthier body we hopefully experience after treating lyme. I'm not sure we can be "cured" after we have had lyme for a long time, but I do think we can live a "pretty good life" if we learn all the healthy living habits and natural supplements that will help keep us in good shape. We live with "bad germs" in our bodies every day but we do not suffer from them all the time. Some how nature has allowed a healthy balance to exist. While I hope and pray for a cure, I think a "complete remission" is what is currently possible.

I think when the disease is caught very early and properly treated, then cure is possible.

I hope you can find a doctor that will respect the lyme diagnosis and still treat you for other stuff. I have found this to be quite difficult. My lyme docs are the only ones that are agreeable. I do know a PA that tries to be helpful, and my friend did find a doctor that does not treat her lyme, but does cooperate with other health issues and also lab tests etc. I guess it just takes some luck along with a lot of searching.

Best wishes, bablymers mom
Posted 9/10/2009 3:36 PM (GMT -5)
I am afraid I am in the same place as you so I cannot cheer you up. I also feel that we can just hope to stay in remission and that means always being on guard, never slipping even an inch and going back to abx when necessary to keep this at bay. I feel like my body has been invaded by terrorists. I do the shock and awe thing with all the drugs. They go into their caves and things seem pretty normal for awhile. Then they sneak out and plant another IED's on my pathway of life.
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