going down hill, don't know what to do next

Hi, I am so depressed all I can do is cry. what happened to my life. Everytime I start a treatment and believe me I've done them all except vancomycin.

My Dr wants me to keep that in case I get a really bad flu or whatever it's the only antibiotic I haven't done.

some days I feel like I am going to die. anyways every time I start a treatment about a month or so into it it always stops working.

I go to the Dr Tuesday and I don't know what else to ask him to try. I just did cleocin which was working in the begining but then all of a sudden I started feeling weak and having migraines and weakness in my arms and legs and pain (deep throbbing pain). and numbess and tingling.

I have so many things going on with me that all popped up after I was diagnosed. and basically a pill for all of them I'm just so tired my fatigue is off the charts this time.

any Ideas?

mainegirl/marlene

Thank-you for answering me . I know herxs. but this really feels like the drug stopped working. yes my Dr is the top Dr of lyme in NY. He is also featured on the movie under our skin. I am so sorry you have suffered for 40 yrs.

when for me it's only been 15. could I ask you how have you funtioned over those 40 yrs.
I can't do anything. I feel so bad even when I feel good that means i'm able to get off the couch or out of bed. and walk around the house.

can u still drive? since last yr and also since my mini stoke I 'm scared to drive. If I have to its behind my house to riteaid to pick up a prescription. but that does'nt happen often.

maybe your right maybe it's a herx?

I'm just tired of it all and all the meds. prayers to you marlene

Patti,

Good luck with your mammogram - try not to worry about it too much - chances are it's nothing. My breasts hurt so badly just to touch that it hurts to shower or clean with a bar of soap. I often have to hold them when I walk because just the slight movement, walking around, is agonizing.

Hi Mainegirl,

My opinion from research shows that we are in the age where most of us are resistant to antibiotics.  I really believe that long term antibiotics are not the answer to this disease but only cause harm.  I believe alternative medicine combined with eating healthy and detoxing on a daily basis works, at least it did for me and I still continue to detox daily to keep my immune system strong.

I believe people should become their own advocate and read as much as they can, afterall, it's your body and by what you wrote, it sounds like your body is telling you "antibiotics are NOT working!" so maybe listen to your body, it's trying to tell you something.

My motto is if your current protocol is NOT working, why stay with it?  Why not try something else as one can always go back on antibiotics, right?

I suggest reading Dr. Jernigan's book "Beating Lyme Disease" as that is the protocol that got me totally well and it's going on 5 years now that I have been better..  I read these posts and I feel so sad for people that are suffering.. 

Anyway, if you want to buy the book the only place I know to buy the 2nd edition is here (softcover is much less money and it's a wealth of information):

http://hansacenter.com/books.php

www.hansacenter.com

Hope this helps,

Denise

Hi Marlene,

Yes, most people have high levels of heavy metals including mercury which is not good.   As far as yeast problems, yep, many members do complain about that as well..  Kind of makes sense because antibiotics weaken one's immune system, kind of like a domino effect..  

I suffered for about 10 years and became infected from a spider bite (according to my skin biopsies), not a tick.   After 5 years from going to one doctor to another, I became so frustrated (and I was so sick) that I sat down and did my own research and knew I had lyme, finally found a nurse who I asked to perform darkfield microscopy and I watched my own spirochetes on the monitor and then my blood was sent to IgeneX and yep, lyme and ehrlichiosis...  So no, I did not get diagnosed right away, I heard what most people hear "it's all in your mind, you're depressed, you have CFS, whatever".. 

Anyway, I think you would be doing yourself the biggest favor by reading Dr. J's book, he had lyme so bad that he thought he was going to die..  I think Dr. J. is brilliant and really knows his stuff..  He explains it all and has a healing at home protocol for those who can't afford to go to his clinic.. 

Good luck and let me know how you make out okay?

Denise

I have to agree with Deejavu on this - why keep doing something that isn't working? I am currently under the care of an Acupuncturist who is also a Master herbologist with both Chinese & Western herbs & am finally getting some real help.

Maybe it's time for you to look into other kinds of treatment???