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Experiences with Babesia

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Posted 12/27/2010 5:43 PM (GMT -5)
Hello everyone

I hope everyone had a headache free and happy holiday week. May the holiday spirit bring healing wishes to us all!

Anyhow.. I wanted to start this topic for some of the people on here who have had experiences with Babesia to help me confirm what I have been going through. My LLMD suspects babesia, but has not tested for it yet. I was treated for lyme last year, and it seemed to resolve itself. After a month of being well, all of the sudden i developed headaches, every night, and finally breathing problems. I am now left with severe air hunger, it feels like i cant expand my lungs all the way. Sometimes i get hoarse, and feel as though i am wheezing. I have tried asthma meds, but they do nothing. I also have weird chest feelings, like pains and sometimes a burning, or a weird pressure sensation. Off an on, they come out of nowhere and disappear almost as mysteriously as they came. The breathing thing is killing me. I am out of work, had to move back home, and have lost all quality of my life. I dont go out, i miss my friends, i am in poor spirits. My LLMD wants to treat the suspected lyme relapse a bit more before starting the Babesia treatment but i am just terrified. I am very uncertain about whats going on, i never had fevers or anything and im just worried that its something else, or if the treatment will help me, or if babesia is even capable of making me feel the way i do half the time.

Any words, thoughts, comments, suggestions. Please . I feel like im slowly drowning for 3 months now, and i am so desperate to get my life back. I want it back, or i dont want it at all.

Love Luck and Happiness to everyone

Toboein
Posted 12/28/2010 1:10 AM (GMT -5)
Hi Toboein,

The air hunger has been my biggest problem with Babesia too, and I've already posted about it elsewhere when you asked, but for me the sweats have happened almost as often and have been very annoying, to say the least. I have seen some improvement after months of treatment, but still have the sweats from time to time.

But at the beginning the episodes were awful; my clothes were frequently soaked and I would have to change. They are much less severe now, thank goodness!

Have you ever had sudden episodes of heat/excessive perspiration?

Good luck! I hope you get an answer very soon!
JoAnn
Posted 12/28/2010 12:31 PM (GMT -5)
thank you for responding. i never get sweats, in fact, i cant remember the last time i actually sweated even when i was feeling hot. i do get hot flashes but they last for a few minutes, what bugs me more is the chills. i get really cold in normal temperatures and i shake like im shivering from the inside.

just trying to get a grasp on this, my symptoms are so off the wall sometimes i feel like my whole body is getting ready to shut down. i almost wish it just would and be done with it..
Posted 12/30/2010 8:30 PM (GMT -5)
Tobein,
It sounds like you have a rather low body temp - do you know what your regular body temp is? Mine was at 97.4 for many, many years. This past summer I actually warmed up regularly to 97.9 to 98.1!!!! shocked

After having a bit of a family melt-down for Christmas, my body temp is now back down to 96.9 to 97.2.

Be sure to bundle up!! Socks too!! Drink plenty of warm liquids (I love herbal teas). Don't quote me on this, but I'm pretty sure that the low body temps makes for a very wonderful playground for viruses that LD patients frequently as well.
Posted 12/30/2010 9:16 PM (GMT -5)
Toboein, hi. So you got bit and went to doctor and he treated you only for lyme and not babesia, bartonella, erechilles, or parasites? is that the story? what did he treat you with and for how long. what state are you in?
Posted 12/31/2010 8:00 AM (GMT -5)
Hi Toboein,

I tested positive for lyme and ehrlichiosis, but also had the air hunger and profound coldness (often at 94.5F) and I didn't sweat for years. After I didn't respond to treatment, my llmd began to suspect Babesia. Once I started working on that, we saw real progress (I'm not going to say "improvement" because it took getting a bit worse before it got better. It was then the other symptoms of Babesia came out and then gradually diminished.

By telling you this, I am trying to make you feel that you do not need to be afraid of treatment. While it might worsen your symptoms in the short run, you will get better. Without treatment, your quality of life will most likely not get better.

I am going through my second round of treatment for Lyme and Babesia as I got bitten again without knowing it. The second time round is easier because I can recognize the stages and see the path out. There is a way out, I assure you. Please take it. You can regain your health.

Happy New Year
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