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Posted 1/3/2011 4:40 AM (GMT -5)
Friends...hello

My Father is home from his hip surgery after falling about 2 weeks ago while
trying to feed the cat at 5 AM.
My Dad has had lyme for many yrs. over 25 yrs (I lost track) he had the big swelling bite on his ankle. got
about 2 weeks of ABX and when he had alll these phantom insane neuro pains he was told it was al in his head by the Stonybrook doctors.

anyway it has been an insane ride for my family because he has been raging like a complete lunatic all these years.
If there is no one in the room for him to curse out he curses out the television.

He drinks beer so my whole family has been saying he is drunk. I kept saying he doesn't drink as much as you think......he is crazy and it is from LYME.

Well, he is home now from hospitol. Hasn't had a beer in weeks and you would swear he was completely bombed.
I am looking at the end results of untreated lyme disease.
almost 2 yrs ago they found the white spots in his mouth and radiated his saliva glands for cancer.
He is more angry because no doctor's know what the F is going on, as he puts it.

He is watching himself loose his own mind and the frustration has made him so bitter.

Meanwhile, my two sisters will ripp your head off if you ask them if they want a cup of tea.

After being in my Dad's house for about 3 weeks and back and forth to the hospitol, plus painting and scraping wall paper ...I am having the worst signs of neuro stuff coming back up.

I cleaned out the garage where the cat was living . the whole house has gone to hell. (now I am getting vertigo but I am hoping it is just from being around my sisters that walk around in circles in a fog)


I think my whole family has some sort of lyme or bartonella. My two sisters are in this strange float zone and no one in this house sleeps. My 4 yr old niece is bouncing off the walls singing and dancing NON STOP. (is that what 4 yr olds do? )

I was supposed to leave Friday but changed flight to this friday coming up. The insurance company denied the rehab for the hip replacemant because my dad spent extra time in the hospitol after surgery for 3 blood transfusions and having to be in the heart monitor section for a week.
So there was no one here to handle this at the house. But I swear if it wasn't for the fact that I lost my iphone somewhere in this mess , I would have taken that flight out of this crazy toxic scene. (this is my family and it makes me so sad.)


The real eye opener here is that he is NOT bombed. He is lymed out and raging . My family is in such denial about the lyme that they think he was bombed when he fell at 5 AM.
I am on Long Island and I think half the place is infected with something.

God help us all.
Posted 1/3/2011 4:59 AM (GMT -5)
bucci,

Hey hun. I am so very sorry that your family is going through this. A few things that came to mind that you may want to have checked out is mold. Mold can give you the same symptoms as Lyme and it will make you foggy in the head and feel crazy. Another thing, since your dad is having those rages, is Bartonella. He could have gotten it from a cat scratch too. It doesn't have to come from a tick.
Posted 1/3/2011 1:17 PM (GMT -5)
YEP!! you got it , Cajun. he has neuro lymre and definitely bartonella from the cat. He has gotten totally attacked by the fleas. I was just thinking he had 3 blood transfusions from the hip surgery. he was anemic when he went in and had low platlets but they pushed him through the surgery anyway.
Well, with his luck if there was anything in the blood suppley ( like more lyme. Hah!) he will be sure to get it.

But I am wondering if he has amonia in the brain. That's all I need to do is suggest a coffee enema!!!

I am painting the kitchen now and making him food. He is acting like a rabid dog. I don't take it personally though.

I always wonder about the mold thing here because i always get all messed up when I am here and so does everyone else but I don't see any signs. There definitely is something going on upstairs.
Is ther any other way to figure out mold without paying someone to come check? should I punch a whole through the wall???
Posted 1/3/2011 1:36 PM (GMT -5)
Boy! You girls were up early this am!!

After reading your post Bucci, my heart really goes out to you. What a tough situation to be in!

I definitely agree with CG about the mold!! We are currently trying to get the mold under control in our house. It's a double whammy for those with a tbi!!

One thought I had (Yeppers!! I do get those once in a while!!) is getting your Dad to detox a little somehow? Maybe a nice relaxing soak with the epsom salt/peroxide? Maybe a pill or two that will encourage his body to detox just a little???

Now those suggestions were for your Dad - but please don't forget to keep detoxing yourself - especially with the possibility of mold in the house. Although punching a hole

in the wall to look for mold would work well - it would be a bit messy & lots of clean-up after wards!!! I would suggest maybe going up into the attic and look first...

Keep us informed of how things are going, please Bucci.
Posted 1/3/2011 3:41 PM (GMT -5)
Home Depot sells mold test kits for about $10...you put them out in your house for a prescribed amount of days and then send them in. There may be an additional fee for various levels of testing...I can't remember but its cheaper than having someone come out.  Check the basement and bathrooms first if you are limitted on cash. I know how bad mold can be...ugh.

Back to lurking...

Posted 1/3/2011 6:22 PM (GMT -5)
Hi bucci,

I'm so sorry to hear this about your Dad..  I suffered from lyme rage and had no idea what was causing it until I called the Hansa Center (even though I never went there) but back then I was following Dr. J's protocol from his first book.

I cursed people out, said horrible things to my family and friends, said things I didn't even remember saying until people told me what I said and I was horrified with myself.. 

I remember becoming really scared and feeling so lost inside because I didn't know at that time what was causing these rages...

What helped me was after I called the Hansa Center (it had a different name back then), a staff member suggested a supplement to me that would bind up and rid the ammonia out of my brain and body (today it is called the Neuro-Antitox Formulas). 

I remember taking a product called Silphitrin and after a month or so I felt calmer and the rages were happening less often so I continued on this product as well as another one called Pale Spike Lobelia (I don't think Dr. J. uses that botanical anymore)..

I don't know if this will help your Dad but it helped me tremendously.   To this day I don't believe I ever had bartonella but who knows?  The important thing is I am symptom free and stayed that way, knock on wood...

Maybe reading this article would help:

http://beatinglymedisease.blogspot.com/2009/11/although-many-people-have-heard-of.html

This is really a great product to help with the neuro problems:

http://www.hansacenter.com/productinfo.html?neuro-antitox-ii-cns-pns

Let us know if things get any better for your Dad..  I guess it was a good thing that I lived alone when I was sick..  If I was married I am sure I would have destroyed that with my rages.. rolleyes

Hang in there,

Denise

Posted 1/3/2011 7:08 PM (GMT -5)
I agree with what Denise says. Ammonia in the brain (and other organs) is not good and can cause all kinds of unpleasant symptoms. For more information you can read about it here http://www.jernigannutraceuticals.com/Neuro-Antitox%20II%20long%20new.html . You can order this product directly from Jernigan Nutraceuticals or Hansa Center. Price is the same either way but the delivery service with JN is usually much more prompt and timely.

By the way, drinking beer isn't to your dad's advantage, no matter how small of an amount it is. Alcohol, especially beer with yeast in it, is going to hinder his ability to get well. Beating this disease requires a lot of discipline in the way we eat, what we drink, exercise, detoxing, and even the kind of mental outlook we have.

Medicine, supplements and all of that play an important role in getting well, but if a person isn't 100% committed to make the sacrifice it takes to beat this disease--they simply won't beat it. This disease is evil and it sucks to have it--as we all know.

I pray things get better for your dad.

Gary
Posted 1/4/2011 7:02 AM (GMT -5)
Bucci,

Sometimes mold can be underneath your floors, in back of showers, etc where you cannot see it. I would get that mold testing kit and send it off. It is worth it.
Posted 1/4/2011 9:02 AM (GMT -5)
thanks guys, I will order the neuro anti tox, It would be easiest thing to get him to do and I'm hoping my kid sister (46) will take it. something is not kool here.
My father has been using a curse word in every sentence for as long as I can remember. Every sentence has the word "God darn". It is like an adjective to him. Ha ..and you know he got the cancer in his mouth.
what a coincidence.*
I told him last night I am painting the house for RESALE so if he is really unable to keep the crazy rants in check that he will be able to afford a nice senior home. So then he snapped too and tried but it is uncontrollable and he is really suffering. The hip surgery is nothing. It is what we needed to happpen to nail him down to one spot and now able to observe that he is completely bombed but hasn't had any alchohol.

Otherwise he was driving himself to the bar everyday. His hours were 11:am leave house to bar and return by 3:30. and he was drinking beer before he left and when he came home.

The broken hip was the best thing that could happen because now we see how far gone he really is.

I'm gonna get the mold kit at home depot and am tempted to invest in some of the equipment that the real mold guys use. I think the mold is major in too many houses and no one realizes they are being gassed.
Posted 1/4/2011 11:12 AM (GMT -5)
Hi again bucci,

Glad we could be of some help..  Lyme rage really stinks and the strange part is when I was suffering from it, I didn't realize how bad I had it until I received feedback from friends and family members...  I wish I had tape-recorded myself because I must have come out with some wild things..

Anyway be sure to order the CNS/PNS formula and it can be taken more than 3 times a day to start binding up that ammonia and toxins (I think Wacko Woman took 30 times the recommended dose when she was at the Hansa Center under the care of Dr. J. because her brain and liver was soooooo overloaded with ammonia).   I don't recommend your Dad and sister taking that much but I do remember when I first started it, I did up my dose in the beginning to get the ball rolling..

Funny you mentioned Stonybrook, that was one of the many places I went to try to get diagnosed with lyme and right before I had my app't at Stonybrook I had already done so much research so when I arrived there I asked one of the doctors to please test me for ehrlichiosis and I was shocked as his reply as he said to me "Denise if you have ehrlichiosis you would be dead right now"..  No kidding.. When I did get back my results from IgeneX and I was CDC positive for ehrlichiosis I sent a copy of my results to that doctor..   

Anyway, take it slow with the painting and all that.. You need to take care of yourself too...

Well, I am leaving to go to the dentist soon as one of my bottom front teeth fell out and I look like a Jack-O-Lantern!  LOL!!   I neglected my gums when I was sick and now it's catching up to me..

Let us know how it goes and please take it slow okay?

Denise

Posted 1/4/2011 6:10 PM (GMT -5)
Denis ..did you read wacko's post about the treatment she is getting that cure her gums. darn, I can't remember. what was it called. she is seeing the dentist in Washigton state.
Posted 1/4/2011 6:15 PM (GMT -5)
OSB that is the name of the treatment for the dental.

Denise and I thi nk the stonybrook lab is controlled by the government to let out only but so much info so not to cause a complete panic with the truth . either that or they only have a staff that know about as much as any other GP about lyme. They don't have real LLMD training. what a joke

Post Edited (bucci) : 1/4/2011 4:27:40 PM (GMT-7)

Posted 1/5/2011 6:42 PM (GMT -5)
Bucci,

Wow, your family sounds like it is in a lot of pain.....


My 2 cents worth wink

I was not on the Neuro/Antitox. At the time I was on plain Silphitrin and Pale Spike Lobelia (it is now combined in the CNS/PNS formula). But Denise is correct, I was taking it (under Dr.'s orders) 10 times a day, at 3x more than the suggested dose. My liver was shutting down from all the ammonia and it was real touch and go for me. (I would not suggest taking it at that dose without a Dr. recommendation though). But by the end of my three week stay at Hansa Center my liver was up and running again (the liver can actually regenerate very quickly). Of course I was taking a lot of other things while I was there, but those were certainly instrumental in my healing.

Does your dad also have problems with his teeth? Wondering if there is some heredity there.... Reason I ask is that alcohol is actually a stimulant and can help you breath easier. Remember, the body will do whatever it needs to do to keep breathing.... Dr.R. is thinking that is one of the reasons people become so addicted to stimulants. They are actually addicted to breathing. (go figure).

Take care of yourself.

Jeanne (WW)
Posted 1/5/2011 8:01 PM (GMT -5)
Hi Bucci.. I am sooo sory what you are going through with your dad... I just wanted to tell you that I was thinking of you and stay positive. and please remember to keep an eye on your health as well.

Luv ya xoxo
Posted 1/5/2011 10:56 PM (GMT -5)
Wish I had something unique and clever to say....something that would lift your spirits and bring a smile....but perhaps a big hug from Westchester will reach you.

SO sorry to hear you are dealing with so many trying things.
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