Hi Chicksinger,
First of all, please let me say how sorry I am, I really do understand how hard this must be on you. I have had to be a caregiver to my previous husband during the last four years of his life & then again with my current hubby twice and now that he is disabled.
Secondly, may I commend you for your hard work, learning all that you could about
a disease that isn't even yours, and guiding your hubby through the maze of things we Lymies have to find our way through! Not an easy thing.
Caregiving is very hard work. There are special support groups just for caregivers. You might find one of them helpful. Here are a few links:
/www.medicare.gov/caregivers/helpguide.org/elder/caring_for_caregivers.htmwww.caregiver.com/You must be very careful to take care of yourself - physically, mentally, and emotionally - as well.
Please continue to let us know how you are doing as well as hubby's progress!!
((((hugs))))