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Blood test results - what say ye, experts?

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Lyme Disease
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Posted 7/30/2011 8:14 PM (GMT -5)
Lots of tests with some good and some bad results. For Lyme, I am IgG negative on all bands now. For IgM, I am band 23 and 41 positive (somehow band 39 from my orig Western Blot is now negative). Some bad things:

I now have mononucleosis with EPV very high for early and nuclear antigens, etc. - JEEZ!! Other bad things are my Human Trans Growth Factor beta 1 for TGF-b1 is very high - 10460 when the 'normal' range is 344-2382. But the Complement 3a and 4a for this were normal. The former is evidently a very high indication of imfammatory response (cytokine storm the doc called it).

There is good news too: Negative on Babesia (B. microti IgG and IgM and B. duncani) and Bartonella (B. henslae IgG and IgM and B. quintana IgG and IgM), Other key measures:

CD57 % = 13.8 (normal is 2.0-17.0)

CD-57 Absolute = 235 (normal is 60-360)

WBC = 4.8 (4.0-10.5)

RBC = 4.87 (4.10-5.60)

Hemoglobin = 14.8 (12.5-17.0)

Hematocrit = 42.6% (36-50)

MCV = 88 (80-98)

MCH = 30.4 (27-34)

MCHC = 34.7 (32-36)

RDW = 14.0 (11.7-15.0

Platelets = 242 (140-415)

Neutrophils = 57 (40-74)

Lymphs = 35 (14-46)

Monocytes = 7 (4-13)

EOS = 1

Basos = 0

VEGF = 38 (0-115)

Rheumotoid Srth Factor = 8.4 (0-13.9)

Vit D (25-hydroxy) = 67.7 (32-100)

SED = 6 (0-41)

C-Reactive Protein = 0.5 (0-4.9)

Melanocyte Stim Hormone = <8  (DOC SAID THIS IS VERY LOW)

 

Posted 7/30/2011 8:29 PM (GMT -5)
How do I get MSH up and TGF-b1 down?
Posted 7/30/2011 10:28 PM (GMT -5)
I had run a small course of Amoxicillin for abt 3 weeks weeks prescribed by my PCP...This blood was taken Jul 6th on my 1st visit to my LLMD
Posted 7/31/2011 4:36 PM (GMT -5)
What I get from my results are that, if one looks at a standard CBC, like they do when I get my annual physcial, I look fit as a fiddle. But, when you dig down and do the others, the "issues" show up. Plus, I think mine are pretty interesting (like CD-57 being "good") because I am in great physical shape from all the running and weght training. That's why my lyme shows up more as neuro-symptoms. They went and hid over the years where I could not get them. Plus, much has probably gone dormant as cyst form (hence, the MAJOR reaction to Flagyl which kills the cysts).

It's entirely possible that my immune system is too good because it fires out the army quickly and effectively and causes too much inflammation in the process. Low MSH causes all kinds of immune system abnormalities and is evidently typical for Lyme so it can recruit available viruses to help suppress immunity.

I am now REALLY focusing on diet (focusing on anti-inflammatory), rest, detoxing and letting the abx's work. I am adrenally-fatigued and will hence, back down my running from high-intesity fast runs to slow and steady even-paced runs every other day. Measured exercise can actually help CORRECT adrenal fatigue where crazy intensity exercise will only make matters worse. Plus, I have re-begun my yoga practice for both stretching and meditation. I have decided to take this whole week off from work to help me get into a better rhythm.

Finally, I have restarted the Flagyl - doc said 1/4 dose but I have gone to 1/2 dose and so far so good. She said that is the MAIN WEAPON we need to use for chronic Lyme as it is the only abx to kill cysts. Still, I am to pulse on/off between it and Biaxin for 2-week periods. I will NOT let this defeat me...I am not being gung-ho either anymore - I will use slow and measured steps forward to get back on top of my situation.

Thanks for your great responses!
Posted 8/2/2011 2:24 PM (GMT -5)
a question for you all about IGeneX testing- i have tested negative to 2 ELISA tests with my primary care though am experiencing numerous symptoms (primarily neuro) that are leading me to suspect lymes. i am planning on testing my blood through IGeneX but have a few questions. i heard that being on antibiotics helps bring out the lyme for testing, is this true? should i try antibiotics out for this reason? i was confused to read miss cranberrys advice to wait 10 days after starting antibiotics, but i didnt know if this is for those already diagnosed. should i or should i not be on antibiotics for IGeneX testing?
Posted 8/2/2011 2:41 PM (GMT -5)
Teeners,

Weren't you going to go see an LLMD? Why don't you just wait and follow their direction?
Posted 8/3/2011 11:56 AM (GMT -5)
my concern is that since my LLMD appointment is over a month wait, that i should be on antibiotics as soon as possible. i have so many symptoms and had the worst day i could have imagined yesterday, almost leading me to the ER. i had intense burning sensations from my head to my chest, extreme nausea, pressure in my head, fatigue, and feeling of weakness. and for the first time ever i had awful brain fog, forgetting things mid sentence, walking into a room and forgetting why i went there, etc. this was very scary for me because i am only 21 years old.this goes along with many other symptoms suck as a creaky/cracking left shoulder and neck, dry mouth, pains in my legs, stomach cramps, sore neck, and more.

my symptoms have been going on for 7 months and are primarily neuro in nature. i saw a neurologist in may who noticed diminished tendon reflexes (isnt this indicative of lyme?). i did have 2 lesions on my brain mri 3 months ago before i had most of the neuro symptoms and am concerned about it spreading more into my CNS if i indeed have it (i know 2 lesions is not many, but given my young age, they were more concerning as possibly having an underlying cause). any advice? or if i wait until september to go on antibiotics, what can i do in the meantime to eliminate some of these symptoms?
thanks!
Posted 8/3/2011 12:31 PM (GMT -5)
Well, as you have a positive result on your test, you could get some antibiotics from your Primary Care Physician. Or call the LLMD's office and ask for some meds to get started. Remember, it's okay to ask for these things -- they are working for you.

You would get some relief from starting a detoxing regimen. There are some details listed in the "New to Lyme?,,," thread at the top of the forum.

You could also try some of the neuro-toxin cleansing herbs like Burdock and Pinella. Do your research, don't rely on my spotty memory for this. I am not a medical professional and don't even play one on TV -- though I do like to watch medical shows...!!!

As you have had the infection for a while now, a month isn't really all that long to wait and won't make much difference in the long run. I know, you are very anxious to get started and more than ready to feel some relief from your symptoms. It won't be long now.

Take care.
Posted 8/3/2011 1:08 PM (GMT -5)
achieving grace- by a positive result on my test are you referring to the brain lesions? i have only been tested from lymes with the ELISA and that was negative. however that test was months (possibly years) after the tick bite that could have infected me. however, given my symptoms and how many other illnesses i have ruled out, my pcp offered to put me on the doxycycline. i originally declined, given i would prefer not to take the antibiotics without an actual diagnosis.
Posted 8/3/2011 1:26 PM (GMT -5)
Woops, teeners, I thought those were your results at the top of the thread, but I see now they belonged to the OP.

I would take the doxy -- many LLMD's use a course of antibiotics to confirm a clinical diagnosis when the test results come back negative but there are enough symptoms to indicate Lyme. If you start reacting it's a positive.

At least that would get you started on treatment and would, in fact, give your LLMD more information to work with.
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