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Posted 9/17/2011 5:19 PM (GMT -5)
Does anyone know of a correlation between Lymes and MSA? I have both. Strange coincidence?
Posted 9/17/2011 7:25 PM (GMT -5)

Wikipedia said...
Multiple system atrophy (MSA) is a degenerative neurological disorder. MSA is associated with the degeneration of nerve cells in specific areas of the brain. This cell degeneration causes problems with movement, balance and other autonomic functions of the body such as bladder control or blood pressure regulation.

This is not a coincidence, Lyme disease produces these symptoms!

Welcome to the forum, doober. Hope you have had a chance to check out the "New to Lyme?..." thread at the top of the forum.

Are you getting treatment for your Lyme?
Posted 9/18/2011 8:34 AM (GMT -5)
im being treated for lymes.  do u know if anyone has had msa  symptoms reversed when treated for lymes?
Posted 9/18/2011 10:42 AM (GMT -5)
A lot of us have had those symptoms reversed by treating the Lyme disease. I don't know of anyone that was given that diagnosis in particular, I certainly wasn't.
Posted 9/18/2011 11:24 AM (GMT -5)
HI Doober!
I haven't ever had the diagnosis of Multiple system atrophy (MSA), but I can tell you -like Achievinggrace has said - that once treatment gets started killing off enough of the infection(s), that all kinds of healing is possible.

Did you get your diagnosis of MSA from a LLMD (Lyme Literate Medical Doctor)? The reason I ask is because they would most likely know the difference between what Lyme can do to the brain and what Lyme can do to the brain. Not many others would be able to tell the difference.

I would keep your hopes up - as I said I know from personal experience that all kinds of healing can take place once the TBI's (tick-borne infections) come under control!!
Posted 9/18/2011 11:51 AM (GMT -5)
I've never heard of MSA... learn something new everyday.

Doober, how'd you get diagnose for that?

Also, would anyone mind explaining to me what is meant by "bladder control"?

Post Edited (whenallelsefails) : 9/18/2011 7:30:44 PM (GMT-6)

Posted 9/18/2011 11:55 AM (GMT -5)
Giggle!! being able to control when you urinate. I had to live with that for about 2 years - saying it wasn't any fun would be the understatement of the year!!!
Posted 9/18/2011 11:59 AM (GMT -5)
Well, no, I mean I understand there's the just going (having zero control)... I was wondering if that included urgency/frequency (with little control)... just curious because I'm still having problems and the dr. I say Thurs. said the cyst has nothing to do with it...

And it's not fun, but I think the feeling of about to pass out is worse :/

Now just mix the two O.o
Posted 9/18/2011 12:09 PM (GMT -5)
Yes, the urgency/frequency is also what is meant., and can be from a TBI. I have no idea if there is a pharmaceutical that you can take for this. I was taking a natural herbal thing for help. This would be something to talk with your LLMD about.
Posted 9/18/2011 12:32 PM (GMT -5)
I was unsure about that. It's always nice to know how to explain stuff to others instead of just listing off the symptoms. Of course when you say bladder control it sounds so bad, but I guess needing to go 30+ times a day is in fact so bad.

Thanks for the clarification!
Posted 9/19/2011 5:14 AM (GMT -5)
Traveler,

What herbal thing were you taking - did it help the frequency/urgency? I seem to alternate between going all the time and not being able to go at all... I know what to do when I can't go at all, but have no clue how to calm things down when I am spending all my time in the bathroom with urinary urgency/frequency. Thanks for any info...
Posted 9/19/2011 11:37 AM (GMT -5)
My Acu doc has me taking what she calls a Cuscute seed formula, so I'm not sure what all is in it. I could ask her - I'm pretty sure she would be willing to share as she is just into helping people. Here is a site that I found for info: www.sinrex.com/cuscuta-seed.php

It's worked quite well for me! I used to be afraid of leaving the house without protective pads, as I would be fine on moment, then the urge would be soooo strong and I would seem to have little to no control over what my bladder was doing!! I've had a couple of real embarrassing times! I missed several doses last week because I didn't get more cuscute formula when I should have and I am running to the bathroom every 20 minutes or so now! UGH! At least I'm back on it now!!
Posted 9/20/2011 3:46 PM (GMT -5)
I finally looked up what the dr. had mentioned about my bladder problem (she thinks it's painful bladder syndrome)... like one of the few bladder problems that can't really be solved... that sounds about right (with my luck).

Also, I'm curious if anyone knows anything about the acidity of urine other than yeast is acidic and bacterial is basic. Mostly because I read somewhere yeast infection is common with lyme because of the acidic conditions.
Posted 9/20/2011 4:01 PM (GMT -5)
You do realize that Lyme causes not only bladder issues, but has been known to cause Interstitial cystitis too?

www.anapsid.org/lyme/symptoms/tbi-symptoms.html

www.canlyme.com/patsymptoms.html
Posted 9/20/2011 4:12 PM (GMT -5)
Interstitial cystitis? Oh wait, that's the other name lol

Now I do. Good, there's a chance it'll go away (eventually)! I'm getting really tired of the feeling that my side's being gutted with a spoon. Recently, there's also a really sharp, bulging pain - like a rock or something digging into one of my organs (I'm not good with anatomy). I almost couldn't get out of bed this morning because of it. Oh the fun of it all!

Is it just me or wouldn't the list of what lyme does not cause be shorter than the one of what it causes?
Posted 9/20/2011 4:29 PM (GMT -5)
Giggle!! Yeppers!! It would be a lot shorter!! smhair

You don't have to be so good at anatomy, but good at describing where the pain is located really helps us to help you! Another thing is you can use this site to help you figure out what is under there.

www.healthline.com/human-body-maps/small-intestine#4/12
Posted 9/20/2011 7:31 PM (GMT -5)
Yeah... apparently I was showing one of the doctors I've recently seen where it feels like something was wearing away at the bone because I thought it was the bottom of my rib cage... nope, it was a muscle lol

That's an awesome site!
Posted 9/21/2011 2:35 PM (GMT -5)
Glad it helped you to figure that out!
Posted 4/18/2022 8:21 AM (GMT -5)

Traveler said...
HI Doober!
I haven't ever had the diagnosis of Multiple system atrophy (MSA), but I can tell you -like Achievinggrace has said - that once treatment gets started killing off enough of the infection(s), that all kinds of healing is possible.

Did you get your diagnosis of MSA from a LLMD (Lyme Literate Medical Doctor)? The reason I ask is because they would most likely know the difference between what Lyme can do to the brain and what Lyme can do to the brain. Not many others would be able to tell the difference.

I would keep your hopes up - as I said I know from personal experience that all kinds of healing can take place once the TBI's (tick-borne infections) come under control!!

************************************
I know this is an old post, but I was recently given this diagnosis, of course from a conventional Doctor, and thankfully I have been on this forum long enough to take it with a gain of salt.

I was exposed to mold for 10r yrs out of exposure and treated, diagnosed from Igenix through a naturopath with Lyme, had candida, and suspect heavy metals currently, so there is a lot of hope my symptoms of Ataxia are not from MSA. Hell even mild Covid causes cerrabellum damage and had that too!

Post Edited (sdarrah) : 4/18/2022 7:37:43 AM (GMT-6)

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