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Posted 10/26/2011 4:01 PM (GMT -5)
My llmd just called and let me know my blood results are in and now my wbc is low so he removed me from all my abx and the herbs he had given me until he sees me again in 3 weeks...or sooner if he deems necessary.

Friday he had already removed me from the Malarone just  in case until the results came in today. 

Well after I saw the NP on Monday and saw my liver and kidneys were having problems, I removed myself from the rest.  It was coincidental that my dr called and told me to do the exact same thing.

Now I just wonder if I should continue with the liver and lymph tonics.  I think so as they are to help me.  Also I wonder if I will continue the Samento and Camando.  I might continue so at least I am not slipping backwards in  3 weeks.  Besides they were just added so they were not the culprit causing the wbc to be low. 

ah  decisions decisions.  I dont like being my own advocate.  Always something to have to ponder.  I think I'll call and get the NP opinion, or perhaps I'll just ask the dr. 

Posted 10/26/2011 4:11 PM (GMT -5)
Yeah, I'd get the docs and NP's opinion.

Sorry you are going through this. Hope you will start recovering soon. Your NP should have some ideas on how to boost your immune system in this situation.
Posted 10/26/2011 4:15 PM (GMT -5)
I would suggest that you talk with which ever one put you on the med. Chances are pretty good that the tonics that your NP put you on are to help those organs function better, so don't go off of them until you talk with the NP.

Here is the definition of tonic when used as a medical term :
"1. An agent, such as a medication, that restores or increases body tone.
2. An invigorating, refreshing, or restorative agent or influence."
www.thefreedictionary.com/tonic

This is why I like to tell everyone to read, read, read! We really do have to know as much as we can about these infections to help our doc's make the best decisions about our treatments! The bad part is that we won't ever get the same amount of money for learning as they do!!!
Posted 10/26/2011 4:26 PM (GMT -5)

My first post must have posted and I didnt know it, thats why there was a duplicate.

Actually I still feel good tho.   I did get stuff from the NP and take things to boost immune system so we'll see.  I just started them on Monday tho.  I guess when the llmd dr told me to stop everything I figured that might mean the stuff from her too.  But he only meant from him.  And one of those was andrographis and I learned on Monday that it didnt test well with me anyway.

When I see him in November I will tell him of her.  He already knows her and he is familiar with  EDS that she tests with. 


She found I have mono and EPV and said they will wax and wane so may not always be contagious.  I understand that mono could cause low wbc too.  Maybe thats it.

Oh well if I have mono, it isnt bad yet because I am not very fatigued.  Actually I have been making progress today with my cleaning so I better get back to it :-)

Posted 10/26/2011 4:29 PM (GMT -5)
oh I just now saw your post Trav.

Yes I agree and that makes sense because that is what she told me. they are to help it. I guess she already knew what they informed me of today.

And Trav, seriously you could open your own shop with as much knowledge as you have gained thru the years!!
Posted 10/26/2011 4:34 PM (GMT -5)
LOL, Scorp!! With as much controversy that there is with the way I chose to go? It would be way too much stress for me!! But a big hearty thank you!!! for the compliment! blush

I wouldn't have much info at all if I didn't have the internet at my finger tips!! smilewinkgrin Although being on here for 4 1/2 years has educated me beyond what I could have done on my own!
Posted 10/27/2011 2:29 PM (GMT -5)
I was diagnosed with chronic/acute EBV and went through many flares -or so I thought. How can one truly tell the difference from EBV and one of the tick-borne infections that causes the same symptoms?

I still to this day test with very high levels of EBV in my system, so I am still looking for answers. Do we need to be clear of the TBI's before we can know if it is the EBV?

If there is any evidence one way or another that someone can provide, please do!!! Also would you please include any links to where you got your info?

Thanks in advance!!! smilewinkgrin
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